Role of multimeric analysis of von Willebrand factor (VWF) in von Willebrand disease (VWD) diagnosis: Lessons from the PCM-EVW-ES Spanish project.

The multimeric analysis (MA) of plasma von Willebrand factor (VWF) evaluates structural integrity and helps in the diagnosis of von Willebrand disease (VWD). This assay is a matter of controversy, being considered by some investigators cumbersome and only slightly informative. The centralised study...

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Main Authors: Almudena Pérez-Rodríguez, Javier Batlle, Irene Corrales, Nina Borràs, Ángela Rodríguez-Trillo, Esther Lourés, Ana Rosa Cid, Santiago Bonanad, Noelia Cabrera, Andrés Moret, Rafael Parra, María Eva Mingot-Castellano, Nira Navarro, Carmen Altisent, Rocío Pérez-Montes, Shally Marcellini, Ana Moreto, Sonia Herrero, Inmaculada Soto, Nuria Fernández Mosteirín, Víctor Jiménez-Yuste, Nieves Alonso, Aurora de Andrés Jacob, Emilia Fontanes, Rosa Campos, María José Paloma, Nuria Bermejo, Rubén Berrueco, José Mateo, Karmele Arribalzaga, Pascual Marco, Ángeles Palomo, Nerea Castro Quismondo, Belén Iñigo, María Del Mar Nieto, Rosa Vidal, María Paz Martínez, Reyes Aguinaco, Maria Tenorio, María Ferreiro, Javier García-Frade, Ana María Rodríguez-Huerta, Jorge Cuesta, Ramón Rodríguez-González, Faustino García-Candel, Manuela Dobón, Carlos Aguilar, Fernando Batlle, Francisco Vidal, María Fernanda López-Fernández
Format: Article
Language:English
Published: Public Library of Science (PLoS) 2018-01-01
Series:PLoS ONE
Online Access:https://journals.plos.org/plosone/article/file?id=10.1371/journal.pone.0197876&type=printable
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author Almudena Pérez-Rodríguez
Javier Batlle
Irene Corrales
Nina Borràs
Ángela Rodríguez-Trillo
Esther Lourés
Ana Rosa Cid
Santiago Bonanad
Noelia Cabrera
Andrés Moret
Rafael Parra
María Eva Mingot-Castellano
Nira Navarro
Carmen Altisent
Rocío Pérez-Montes
Shally Marcellini
Ana Moreto
Sonia Herrero
Inmaculada Soto
Nuria Fernández Mosteirín
Víctor Jiménez-Yuste
Nieves Alonso
Aurora de Andrés Jacob
Emilia Fontanes
Rosa Campos
María José Paloma
Nuria Bermejo
Rubén Berrueco
José Mateo
Karmele Arribalzaga
Pascual Marco
Ángeles Palomo
Nerea Castro Quismondo
Belén Iñigo
María Del Mar Nieto
Rosa Vidal
María Paz Martínez
Reyes Aguinaco
Maria Tenorio
María Ferreiro
Javier García-Frade
Ana María Rodríguez-Huerta
Jorge Cuesta
Ramón Rodríguez-González
Faustino García-Candel
Manuela Dobón
Carlos Aguilar
Fernando Batlle
Francisco Vidal
María Fernanda López-Fernández
author_facet Almudena Pérez-Rodríguez
Javier Batlle
Irene Corrales
Nina Borràs
Ángela Rodríguez-Trillo
Esther Lourés
Ana Rosa Cid
Santiago Bonanad
Noelia Cabrera
Andrés Moret
Rafael Parra
María Eva Mingot-Castellano
Nira Navarro
Carmen Altisent
Rocío Pérez-Montes
Shally Marcellini
Ana Moreto
Sonia Herrero
Inmaculada Soto
Nuria Fernández Mosteirín
Víctor Jiménez-Yuste
Nieves Alonso
Aurora de Andrés Jacob
Emilia Fontanes
Rosa Campos
María José Paloma
Nuria Bermejo
Rubén Berrueco
José Mateo
Karmele Arribalzaga
Pascual Marco
Ángeles Palomo
Nerea Castro Quismondo
Belén Iñigo
María Del Mar Nieto
Rosa Vidal
María Paz Martínez
Reyes Aguinaco
Maria Tenorio
María Ferreiro
Javier García-Frade
Ana María Rodríguez-Huerta
Jorge Cuesta
Ramón Rodríguez-González
Faustino García-Candel
Manuela Dobón
Carlos Aguilar
Fernando Batlle
Francisco Vidal
María Fernanda López-Fernández
author_sort Almudena Pérez-Rodríguez
collection DOAJ
description The multimeric analysis (MA) of plasma von Willebrand factor (VWF) evaluates structural integrity and helps in the diagnosis of von Willebrand disease (VWD). This assay is a matter of controversy, being considered by some investigators cumbersome and only slightly informative. The centralised study 'Molecular and Clinical Profile of von Willebrand Disease in Spain (PCM-EVW-ES)' has been carried out by including the phenotypic assessment and the genetic analysis by next generation sequencing (NGS) of the VWF gene (VWF). The aim of the present study was to evaluate the role of MA to the diagnosis of these patients and their potential discrepancies. Two hundred and seventy out of 480 patients centrally diagnosed with VWD had normal multimers, 168 had abnormal multimers and 42 a total absence of multimers. VWF MA was of great significance in the diagnosis of 83 patients (17.3%), it was also of help in the diagnosis achieved in 365 additional patients (76%) and was not informative in 32 cases (6.7%). With regard to discrepancies, 110 out of 480 (23%) patients centrally diagnosed with VWD presented some kind of discordance between VWF:RCo/VWF:Ag and/or VWF:CB/VWF:Ag ratios, multimeric study and/or genetic results. The VWF MA was key in the presence of novel mutations as well as in cases with phenotypic discrepancies. A comparison between the contribution of MA and VWF:CB showed a clearly higher contribution of the former in the diagnostic process. These data seem to reinforce the relevance of the VWF MA in VWD diagnosis, despite all its limitations.
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spelling doaj-art-5e94502fc1b040e6a7ae3d310804e4e92025-08-20T02:46:02ZengPublic Library of Science (PLoS)PLoS ONE1932-62032018-01-01136e019787610.1371/journal.pone.0197876Role of multimeric analysis of von Willebrand factor (VWF) in von Willebrand disease (VWD) diagnosis: Lessons from the PCM-EVW-ES Spanish project.Almudena Pérez-RodríguezJavier BatlleIrene CorralesNina BorràsÁngela Rodríguez-TrilloEsther LourésAna Rosa CidSantiago BonanadNoelia CabreraAndrés MoretRafael ParraMaría Eva Mingot-CastellanoNira NavarroCarmen AltisentRocío Pérez-MontesShally MarcelliniAna MoretoSonia HerreroInmaculada SotoNuria Fernández MosteirínVíctor Jiménez-YusteNieves AlonsoAurora de Andrés JacobEmilia FontanesRosa CamposMaría José PalomaNuria BermejoRubén BerruecoJosé MateoKarmele ArribalzagaPascual MarcoÁngeles PalomoNerea Castro QuismondoBelén IñigoMaría Del Mar NietoRosa VidalMaría Paz MartínezReyes AguinacoMaria TenorioMaría FerreiroJavier García-FradeAna María Rodríguez-HuertaJorge CuestaRamón Rodríguez-GonzálezFaustino García-CandelManuela DobónCarlos AguilarFernando BatlleFrancisco VidalMaría Fernanda López-FernándezThe multimeric analysis (MA) of plasma von Willebrand factor (VWF) evaluates structural integrity and helps in the diagnosis of von Willebrand disease (VWD). This assay is a matter of controversy, being considered by some investigators cumbersome and only slightly informative. The centralised study 'Molecular and Clinical Profile of von Willebrand Disease in Spain (PCM-EVW-ES)' has been carried out by including the phenotypic assessment and the genetic analysis by next generation sequencing (NGS) of the VWF gene (VWF). The aim of the present study was to evaluate the role of MA to the diagnosis of these patients and their potential discrepancies. Two hundred and seventy out of 480 patients centrally diagnosed with VWD had normal multimers, 168 had abnormal multimers and 42 a total absence of multimers. VWF MA was of great significance in the diagnosis of 83 patients (17.3%), it was also of help in the diagnosis achieved in 365 additional patients (76%) and was not informative in 32 cases (6.7%). With regard to discrepancies, 110 out of 480 (23%) patients centrally diagnosed with VWD presented some kind of discordance between VWF:RCo/VWF:Ag and/or VWF:CB/VWF:Ag ratios, multimeric study and/or genetic results. The VWF MA was key in the presence of novel mutations as well as in cases with phenotypic discrepancies. A comparison between the contribution of MA and VWF:CB showed a clearly higher contribution of the former in the diagnostic process. These data seem to reinforce the relevance of the VWF MA in VWD diagnosis, despite all its limitations.https://journals.plos.org/plosone/article/file?id=10.1371/journal.pone.0197876&type=printable
spellingShingle Almudena Pérez-Rodríguez
Javier Batlle
Irene Corrales
Nina Borràs
Ángela Rodríguez-Trillo
Esther Lourés
Ana Rosa Cid
Santiago Bonanad
Noelia Cabrera
Andrés Moret
Rafael Parra
María Eva Mingot-Castellano
Nira Navarro
Carmen Altisent
Rocío Pérez-Montes
Shally Marcellini
Ana Moreto
Sonia Herrero
Inmaculada Soto
Nuria Fernández Mosteirín
Víctor Jiménez-Yuste
Nieves Alonso
Aurora de Andrés Jacob
Emilia Fontanes
Rosa Campos
María José Paloma
Nuria Bermejo
Rubén Berrueco
José Mateo
Karmele Arribalzaga
Pascual Marco
Ángeles Palomo
Nerea Castro Quismondo
Belén Iñigo
María Del Mar Nieto
Rosa Vidal
María Paz Martínez
Reyes Aguinaco
Maria Tenorio
María Ferreiro
Javier García-Frade
Ana María Rodríguez-Huerta
Jorge Cuesta
Ramón Rodríguez-González
Faustino García-Candel
Manuela Dobón
Carlos Aguilar
Fernando Batlle
Francisco Vidal
María Fernanda López-Fernández
Role of multimeric analysis of von Willebrand factor (VWF) in von Willebrand disease (VWD) diagnosis: Lessons from the PCM-EVW-ES Spanish project.
PLoS ONE
title Role of multimeric analysis of von Willebrand factor (VWF) in von Willebrand disease (VWD) diagnosis: Lessons from the PCM-EVW-ES Spanish project.
title_full Role of multimeric analysis of von Willebrand factor (VWF) in von Willebrand disease (VWD) diagnosis: Lessons from the PCM-EVW-ES Spanish project.
title_fullStr Role of multimeric analysis of von Willebrand factor (VWF) in von Willebrand disease (VWD) diagnosis: Lessons from the PCM-EVW-ES Spanish project.
title_full_unstemmed Role of multimeric analysis of von Willebrand factor (VWF) in von Willebrand disease (VWD) diagnosis: Lessons from the PCM-EVW-ES Spanish project.
title_short Role of multimeric analysis of von Willebrand factor (VWF) in von Willebrand disease (VWD) diagnosis: Lessons from the PCM-EVW-ES Spanish project.
title_sort role of multimeric analysis of von willebrand factor vwf in von willebrand disease vwd diagnosis lessons from the pcm evw es spanish project
url https://journals.plos.org/plosone/article/file?id=10.1371/journal.pone.0197876&type=printable
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