Pediatric to adult care transfer in rare liver diseases: Recommendations based on insights from a European omnistakeholder event

Pediatric to adult care transfer in rare liver diseases: Recommendations based on insights from a European omnistakeholder event

Background & Aims: The transfer journey from pediatric to adult care services of young people with rare liver diseases poses significant challenges and is an underexplored research area. This study examined the critical aspects of, and opportunities for, transfer journey management for these...

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Main Authors: Karsten Vanden Wyngaert, Janne Suykens, Deirdre Kelly, Isabel Goncalves, Ena Lindhart Thomsen, Jose Willemse, Zoe Mariño, João Madaleno, Jemma Day, Marianne Samyn, Mohamed Ali, Marianne Hørby Jørgensen, Eva Goossens, Johan De Munter, Anneloes Van Staa, Jo Wray, Panayiota Protopapa, Ansgar Lohse, Ruth De Bruyne
Format: Article
Language:English
Published: Elsevier 2025-06-01
Series:JHEP Reports
Subjects:
Chronic liver diseases with pediatric-onset
ERN RARE-LIVER
Healthcare transition
Adolescents and young adults
Workshop
Rare liver diseases
Online Access:http://www.sciencedirect.com/science/article/pii/S2589555925000801
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