Using Patient‐Reported Outcomes in Two Program Examples Measuring Health Status in Primary Care: An Observational Study

ABSTRACT Background and Aims Patient‐reported outcome measures (PROMs) are increasingly used in primary care practices; however, the broad characteristics of this population pose unique challenges. Generic PROMs (e.g., EQ‐5D‐5L) measure general health status from the patient's perspective, cont...

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Main Authors: Allison L. Soprovich, Hilary Short, Al‐Bakir Ali, Krista Brower, Arto Ohinmaa, Jeffrey A. Johnson
Format: Article
Language:English
Published: Wiley 2025-01-01
Series:Health Science Reports
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Online Access:https://doi.org/10.1002/hsr2.70308
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author Allison L. Soprovich
Hilary Short
Al‐Bakir Ali
Krista Brower
Arto Ohinmaa
Jeffrey A. Johnson
author_facet Allison L. Soprovich
Hilary Short
Al‐Bakir Ali
Krista Brower
Arto Ohinmaa
Jeffrey A. Johnson
author_sort Allison L. Soprovich
collection DOAJ
description ABSTRACT Background and Aims Patient‐reported outcome measures (PROMs) are increasingly used in primary care practices; however, the broad characteristics of this population pose unique challenges. Generic PROMs (e.g., EQ‐5D‐5L) measure general health status from the patient's perspective, contributing towards a comprehensive evaluation of health programming. This study describes the integration of the EQ‐5D‐5L within program evaluation in primary care in Alberta, Canada, using two program examples. Methods A retrospective, longitudinal, observational design was used. The Edmonton O‐day'min Primary Care Network (EOPCN) routinely collects the EQ‐5D‐5L in their exercise and active living and nutrition programs. Data collected between January 1, 2021 and March 31, 2022 was analyzed descriptively, by dimension, index, and visual analog scale (VAS) scores. Minimally important differences were used to interpret index (0.04) and VAS scores (7.0) and the Pareto Classification of Health Change was applied to the dimensions. Effect size of change in index and VAS scores and population comparisons were examined. Results In the exercise and active living program (n = 301), 72% were female with a mean age of 57 (±16) years, and 90.2% reported any problems (levels 2–5) in pain/discomfort. The mean index and VAS scores were 0.74 (±0.18) and 66.5 (±18.9), respectively. Among those with repeated measurement (n = 112), the greatest improvement was in usual activities (17%); the greatest deterioration was in pain/discomfort (25%). In the nutrition program (n = 573), 71% were female with a mean age of 50 (±17) years, and 75.9% reported any problems in pain/discomfort. The mean index and VAS scores were 0.77 (±0.19) and 70.1 (±15.6), respectively. Among those with repeated measurement (n = 212), the greatest improvement was in anxiety/depression (16%); the greatest deterioration was in pain/discomfort (26%). In both, health status was lower than the general Alberta population norms. No baseline characteristics were found to be statistically significant. Conclusion These results inform future programming, to help patient needs.
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spelling doaj-art-5e66dcc7d93a43febedb7afbff8f3f152025-01-29T03:42:40ZengWileyHealth Science Reports2398-88352025-01-0181n/an/a10.1002/hsr2.70308Using Patient‐Reported Outcomes in Two Program Examples Measuring Health Status in Primary Care: An Observational StudyAllison L. Soprovich0Hilary Short1Al‐Bakir Ali2Krista Brower3Arto Ohinmaa4Jeffrey A. Johnson5Alberta PROMs and EQ‐5D Research and Support Unit (APERSU), School of Public Health University of Alberta Edmonton Alberta CanadaAlberta PROMs and EQ‐5D Research and Support Unit (APERSU), School of Public Health University of Alberta Edmonton Alberta CanadaEdmonton O‐day'min Primary Care Network Edmonton Alberta CanadaEdmonton O‐day'min Primary Care Network Edmonton Alberta CanadaAlberta PROMs and EQ‐5D Research and Support Unit (APERSU), School of Public Health University of Alberta Edmonton Alberta CanadaAlberta PROMs and EQ‐5D Research and Support Unit (APERSU), School of Public Health University of Alberta Edmonton Alberta CanadaABSTRACT Background and Aims Patient‐reported outcome measures (PROMs) are increasingly used in primary care practices; however, the broad characteristics of this population pose unique challenges. Generic PROMs (e.g., EQ‐5D‐5L) measure general health status from the patient's perspective, contributing towards a comprehensive evaluation of health programming. This study describes the integration of the EQ‐5D‐5L within program evaluation in primary care in Alberta, Canada, using two program examples. Methods A retrospective, longitudinal, observational design was used. The Edmonton O‐day'min Primary Care Network (EOPCN) routinely collects the EQ‐5D‐5L in their exercise and active living and nutrition programs. Data collected between January 1, 2021 and March 31, 2022 was analyzed descriptively, by dimension, index, and visual analog scale (VAS) scores. Minimally important differences were used to interpret index (0.04) and VAS scores (7.0) and the Pareto Classification of Health Change was applied to the dimensions. Effect size of change in index and VAS scores and population comparisons were examined. Results In the exercise and active living program (n = 301), 72% were female with a mean age of 57 (±16) years, and 90.2% reported any problems (levels 2–5) in pain/discomfort. The mean index and VAS scores were 0.74 (±0.18) and 66.5 (±18.9), respectively. Among those with repeated measurement (n = 112), the greatest improvement was in usual activities (17%); the greatest deterioration was in pain/discomfort (25%). In the nutrition program (n = 573), 71% were female with a mean age of 50 (±17) years, and 75.9% reported any problems in pain/discomfort. The mean index and VAS scores were 0.77 (±0.19) and 70.1 (±15.6), respectively. Among those with repeated measurement (n = 212), the greatest improvement was in anxiety/depression (16%); the greatest deterioration was in pain/discomfort (26%). In both, health status was lower than the general Alberta population norms. No baseline characteristics were found to be statistically significant. Conclusion These results inform future programming, to help patient needs.https://doi.org/10.1002/hsr2.70308EQ‐5Dpatient‐reported outcomespopulation healthprimary careprogram evaluation
spellingShingle Allison L. Soprovich
Hilary Short
Al‐Bakir Ali
Krista Brower
Arto Ohinmaa
Jeffrey A. Johnson
Using Patient‐Reported Outcomes in Two Program Examples Measuring Health Status in Primary Care: An Observational Study
Health Science Reports
EQ‐5D
patient‐reported outcomes
population health
primary care
program evaluation
title Using Patient‐Reported Outcomes in Two Program Examples Measuring Health Status in Primary Care: An Observational Study
title_full Using Patient‐Reported Outcomes in Two Program Examples Measuring Health Status in Primary Care: An Observational Study
title_fullStr Using Patient‐Reported Outcomes in Two Program Examples Measuring Health Status in Primary Care: An Observational Study
title_full_unstemmed Using Patient‐Reported Outcomes in Two Program Examples Measuring Health Status in Primary Care: An Observational Study
title_short Using Patient‐Reported Outcomes in Two Program Examples Measuring Health Status in Primary Care: An Observational Study
title_sort using patient reported outcomes in two program examples measuring health status in primary care an observational study
topic EQ‐5D
patient‐reported outcomes
population health
primary care
program evaluation
url https://doi.org/10.1002/hsr2.70308
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