Design and implementation of a Community Expert Group comprised of people with lived expertise of homelessness at an academic health research center: a program description and analysis of challenges
Abstract The involvement of communities with a stake in healthcare research is often limited, and attempts to increase their participation and to create shared decision-making partnerships are often hindered by structural barriers. In this paper, we describe the design and implementation of a Commun...
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| Format: | Article |
| Language: | English |
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BMC
2025-05-01
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| Series: | Research Involvement and Engagement |
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| Online Access: | https://doi.org/10.1186/s40900-025-00733-z |
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| author | Ayan A. Yusuf Victoria Hatfield Katherine Francombe Pridham George Da Silva Rene Adams Daniela Mergarten Veronica Snooks Frank Crichlow Stephen W. Hwang |
| author_facet | Ayan A. Yusuf Victoria Hatfield Katherine Francombe Pridham George Da Silva Rene Adams Daniela Mergarten Veronica Snooks Frank Crichlow Stephen W. Hwang |
| author_sort | Ayan A. Yusuf |
| collection | DOAJ |
| description | Abstract The involvement of communities with a stake in healthcare research is often limited, and attempts to increase their participation and to create shared decision-making partnerships are often hindered by structural barriers. In this paper, we describe the design and implementation of a Community Expert Group comprised of people with lived expertise of homelessness at an academic health research center. We detail the group’s model, guiding principles, governance structure, and activities, and discuss institutional challenges encountered over the course of this partnership. We report that the lack of policies and practices in academic research institutions to support long-term collaboration with community experts makes it challenging to define their scope and role, often requiring individual research teams to fill this gap. |
| format | Article |
| id | doaj-art-5dfb00a0ac9944f69128fb6325f6d838 |
| institution | DOAJ |
| issn | 2056-7529 |
| language | English |
| publishDate | 2025-05-01 |
| publisher | BMC |
| record_format | Article |
| series | Research Involvement and Engagement |
| spelling | doaj-art-5dfb00a0ac9944f69128fb6325f6d8382025-08-20T03:07:57ZengBMCResearch Involvement and Engagement2056-75292025-05-0111111110.1186/s40900-025-00733-zDesign and implementation of a Community Expert Group comprised of people with lived expertise of homelessness at an academic health research center: a program description and analysis of challengesAyan A. Yusuf0Victoria Hatfield1Katherine Francombe Pridham2George Da Silva3Rene Adams4Daniela Mergarten5Veronica Snooks6Frank Crichlow7Stephen W. Hwang8MAP Centre for Urban Health Solutions, St. Michael’s HospitalMAP Centre for Urban Health Solutions, St. Michael’s HospitalMAP Centre for Urban Health Solutions, St. Michael’s HospitalMAP Centre for Urban Health Solutions, St. Michael’s HospitalMAP Centre for Urban Health Solutions, St. Michael’s HospitalMAP Centre for Urban Health Solutions, St. Michael’s HospitalMAP Centre for Urban Health Solutions, St. Michael’s HospitalMAP Centre for Urban Health Solutions, St. Michael’s HospitalMAP Centre for Urban Health Solutions, St. Michael’s HospitalAbstract The involvement of communities with a stake in healthcare research is often limited, and attempts to increase their participation and to create shared decision-making partnerships are often hindered by structural barriers. In this paper, we describe the design and implementation of a Community Expert Group comprised of people with lived expertise of homelessness at an academic health research center. We detail the group’s model, guiding principles, governance structure, and activities, and discuss institutional challenges encountered over the course of this partnership. We report that the lack of policies and practices in academic research institutions to support long-term collaboration with community experts makes it challenging to define their scope and role, often requiring individual research teams to fill this gap.https://doi.org/10.1186/s40900-025-00733-zCommunityCommunity ExpertsHomelessnessResearch Engagement |
| spellingShingle | Ayan A. Yusuf Victoria Hatfield Katherine Francombe Pridham George Da Silva Rene Adams Daniela Mergarten Veronica Snooks Frank Crichlow Stephen W. Hwang Design and implementation of a Community Expert Group comprised of people with lived expertise of homelessness at an academic health research center: a program description and analysis of challenges Research Involvement and Engagement Community Community Experts Homelessness Research Engagement |
| title | Design and implementation of a Community Expert Group comprised of people with lived expertise of homelessness at an academic health research center: a program description and analysis of challenges |
| title_full | Design and implementation of a Community Expert Group comprised of people with lived expertise of homelessness at an academic health research center: a program description and analysis of challenges |
| title_fullStr | Design and implementation of a Community Expert Group comprised of people with lived expertise of homelessness at an academic health research center: a program description and analysis of challenges |
| title_full_unstemmed | Design and implementation of a Community Expert Group comprised of people with lived expertise of homelessness at an academic health research center: a program description and analysis of challenges |
| title_short | Design and implementation of a Community Expert Group comprised of people with lived expertise of homelessness at an academic health research center: a program description and analysis of challenges |
| title_sort | design and implementation of a community expert group comprised of people with lived expertise of homelessness at an academic health research center a program description and analysis of challenges |
| topic | Community Community Experts Homelessness Research Engagement |
| url | https://doi.org/10.1186/s40900-025-00733-z |
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