The Burden of Adult X-Linked Hypophosphatemia on Carers and Family Members: A Mixed-Methods Study
# Introduction X-linked hypophosphatemia (XLH) is a rare, genetic disorder that severely impacts the health-related quality of life (HRQoL) of people living with the condition. This impact can also extend to carers and family members, described as a “spillover effect.” Measurement of spillover effec...
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| Main Authors: | , , , , , , |
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| Format: | Article |
| Language: | English |
| Published: |
Columbia Data Analytics, LLC
2025-04-01
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| Series: | Journal of Health Economics and Outcomes Research |
| Online Access: | https://doi.org/10.36469/001c.133860 |
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