Comparison of specialist ataxia centres with non-specialist services in terms of care access and organisation, health services resource utilisation and costs in Germany using patient-reported data

Comparison of specialist ataxia centres with non-specialist services in terms of care access and organisation, health services resource utilisation and costs in Germany using patient-reported data

Background: The ataxias are rare complex neurological disorders challenging to diagnose and manage. We explored the patient pathways, health care use and costs of individuals attending a specialist ataxia centre (SAC) compared with non–specialist settings in Germany. Methods: We distributed a survey...

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Bibliographic Details
Main Authors: Julie Vallortigara, Julie Greenfield, Barry Hunt, Holm Graessner, Carola Reinhard, Andreas Nadke, Bart-Jan Schuman, Deborah Hoffman, Steve Morris, Paola Giunti
Format: Article
Language:English
Published: Elsevier 2025-02-01
Series:Heliyon
Subjects:
Ataxia
Specialist centre
Care pathway
Health service use
Costs
Online Access:http://www.sciencedirect.com/science/article/pii/S2405844025005018
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