Assessment of Stroke Case-fatality, Disability, Perceived Needs and Barriers for Care among First-ever Stroke Patients Attending a Tertiary Care Neuro-specialty Center in India: A Cross-sectional Study
Background: Stroke is a major public health and clinical challenge that results in significant mortality and disability. Stroke survivors require care and support, particularly during the crucial 3 months post-stroke when 95% of functional neurological recovery occurs. To estimate case-fatality and...
Saved in:
| Main Authors: | , , , , , |
|---|---|
| Format: | Article |
| Language: | English |
| Published: |
Wolters Kluwer Medknow Publications
2025-01-01
|
| Series: | Indian Journal of Community Medicine |
| Subjects: | |
| Online Access: | https://journals.lww.com/10.4103/ijcm.ijcm_713_23 |
| Tags: |
Add Tag
No Tags, Be the first to tag this record!
|
| _version_ | 1832087221615722496 |
|---|---|
| author | Azad Devyani Pradeep S. Banandur Gautham Melur Sukumar Girish Baburao Kulkarni S. Mythirayee Himani Rathore |
| author_facet | Azad Devyani Pradeep S. Banandur Gautham Melur Sukumar Girish Baburao Kulkarni S. Mythirayee Himani Rathore |
| author_sort | Azad Devyani |
| collection | DOAJ |
| description | Background:
Stroke is a major public health and clinical challenge that results in significant mortality and disability. Stroke survivors require care and support, particularly during the crucial 3 months post-stroke when 95% of functional neurological recovery occurs. To estimate case-fatality and extent of disability, assess perceived needs, barriers, and unmet needs for care, and ascertain pathways to care post-discharge (at 3 months) among first-ever stroke patients attending a tertiary care neuro-specialty center in India.
Material and Methods:
A cross-sectional descriptive study was conducted among patients receiving care within [NIMHANS]. Patients with confirmed computed tomography (CT) scans experiencing their first-ever stroke between September 1 and October 31, 2022, were contacted between November 1, 2022, and March 31, 2023. A pre-tested semi-structured questionnaire was used to collect information. Descriptive statistics were performed using STATA version 16.
Results:
Stroke fatality among study subjects was 13.8%. Almost half (49.09%) had some form of disability, with 40% having moderate to severe disability. The majority perceived the need for follow-up visits (87%) and compliance with stroke medication (84%). Distance and transportation (60%) were cited as the main barriers to care. After discharge, the majority preferred healthcare facilities close to their homes (60%).
Conclusions:
This study emphasizes the need for stroke survivors to have follow-up and compliance with medication, along with various unmet needs such as de-addiction services, vocational training, and emotional support. A network-based multi-disciplinary approach, along with a comprehensive hub and spoke model of stroke management services, could help address these challenges and improve patient outcomes. |
| format | Article |
| id | doaj-art-58376dbb28984a0b9d92bad638de70b5 |
| institution | Kabale University |
| issn | 0970-0218 1998-3581 |
| language | English |
| publishDate | 2025-01-01 |
| publisher | Wolters Kluwer Medknow Publications |
| record_format | Article |
| series | Indian Journal of Community Medicine |
| spelling | doaj-art-58376dbb28984a0b9d92bad638de70b52025-02-06T05:32:49ZengWolters Kluwer Medknow PublicationsIndian Journal of Community Medicine0970-02181998-35812025-01-01501253310.4103/ijcm.ijcm_713_23Assessment of Stroke Case-fatality, Disability, Perceived Needs and Barriers for Care among First-ever Stroke Patients Attending a Tertiary Care Neuro-specialty Center in India: A Cross-sectional StudyAzad DevyaniPradeep S. BanandurGautham Melur SukumarGirish Baburao KulkarniS. MythirayeeHimani RathoreBackground: Stroke is a major public health and clinical challenge that results in significant mortality and disability. Stroke survivors require care and support, particularly during the crucial 3 months post-stroke when 95% of functional neurological recovery occurs. To estimate case-fatality and extent of disability, assess perceived needs, barriers, and unmet needs for care, and ascertain pathways to care post-discharge (at 3 months) among first-ever stroke patients attending a tertiary care neuro-specialty center in India. Material and Methods: A cross-sectional descriptive study was conducted among patients receiving care within [NIMHANS]. Patients with confirmed computed tomography (CT) scans experiencing their first-ever stroke between September 1 and October 31, 2022, were contacted between November 1, 2022, and March 31, 2023. A pre-tested semi-structured questionnaire was used to collect information. Descriptive statistics were performed using STATA version 16. Results: Stroke fatality among study subjects was 13.8%. Almost half (49.09%) had some form of disability, with 40% having moderate to severe disability. The majority perceived the need for follow-up visits (87%) and compliance with stroke medication (84%). Distance and transportation (60%) were cited as the main barriers to care. After discharge, the majority preferred healthcare facilities close to their homes (60%). Conclusions: This study emphasizes the need for stroke survivors to have follow-up and compliance with medication, along with various unmet needs such as de-addiction services, vocational training, and emotional support. A network-based multi-disciplinary approach, along with a comprehensive hub and spoke model of stroke management services, could help address these challenges and improve patient outcomes.https://journals.lww.com/10.4103/ijcm.ijcm_713_23barrierscase-fatalitydisabilityperceived needsstroke |
| spellingShingle | Azad Devyani Pradeep S. Banandur Gautham Melur Sukumar Girish Baburao Kulkarni S. Mythirayee Himani Rathore Assessment of Stroke Case-fatality, Disability, Perceived Needs and Barriers for Care among First-ever Stroke Patients Attending a Tertiary Care Neuro-specialty Center in India: A Cross-sectional Study Indian Journal of Community Medicine barriers case-fatality disability perceived needs stroke |
| title | Assessment of Stroke Case-fatality, Disability, Perceived Needs and Barriers for Care among First-ever Stroke Patients Attending a Tertiary Care Neuro-specialty Center in India: A Cross-sectional Study |
| title_full | Assessment of Stroke Case-fatality, Disability, Perceived Needs and Barriers for Care among First-ever Stroke Patients Attending a Tertiary Care Neuro-specialty Center in India: A Cross-sectional Study |
| title_fullStr | Assessment of Stroke Case-fatality, Disability, Perceived Needs and Barriers for Care among First-ever Stroke Patients Attending a Tertiary Care Neuro-specialty Center in India: A Cross-sectional Study |
| title_full_unstemmed | Assessment of Stroke Case-fatality, Disability, Perceived Needs and Barriers for Care among First-ever Stroke Patients Attending a Tertiary Care Neuro-specialty Center in India: A Cross-sectional Study |
| title_short | Assessment of Stroke Case-fatality, Disability, Perceived Needs and Barriers for Care among First-ever Stroke Patients Attending a Tertiary Care Neuro-specialty Center in India: A Cross-sectional Study |
| title_sort | assessment of stroke case fatality disability perceived needs and barriers for care among first ever stroke patients attending a tertiary care neuro specialty center in india a cross sectional study |
| topic | barriers case-fatality disability perceived needs stroke |
| url | https://journals.lww.com/10.4103/ijcm.ijcm_713_23 |
| work_keys_str_mv | AT azaddevyani assessmentofstrokecasefatalitydisabilityperceivedneedsandbarriersforcareamongfirsteverstrokepatientsattendingatertiarycareneurospecialtycenterinindiaacrosssectionalstudy AT pradeepsbanandur assessmentofstrokecasefatalitydisabilityperceivedneedsandbarriersforcareamongfirsteverstrokepatientsattendingatertiarycareneurospecialtycenterinindiaacrosssectionalstudy AT gauthammelursukumar assessmentofstrokecasefatalitydisabilityperceivedneedsandbarriersforcareamongfirsteverstrokepatientsattendingatertiarycareneurospecialtycenterinindiaacrosssectionalstudy AT girishbaburaokulkarni assessmentofstrokecasefatalitydisabilityperceivedneedsandbarriersforcareamongfirsteverstrokepatientsattendingatertiarycareneurospecialtycenterinindiaacrosssectionalstudy AT smythirayee assessmentofstrokecasefatalitydisabilityperceivedneedsandbarriersforcareamongfirsteverstrokepatientsattendingatertiarycareneurospecialtycenterinindiaacrosssectionalstudy AT himanirathore assessmentofstrokecasefatalitydisabilityperceivedneedsandbarriersforcareamongfirsteverstrokepatientsattendingatertiarycareneurospecialtycenterinindiaacrosssectionalstudy |