Lived experiences of patients using positive airway pressure (PAP) therapy: a nested phenomenological study within the 3DPiPPIn randomised controlled trial

Background Sleep disordered breathing is a chronic condition often requiring patient commitment to positive airway pressure (PAP) therapy. Understanding the lived experience of PAP therapy users is crucial for clinicians to support successful treatment and identify research priorities. There is a la...

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Main Authors: Stephanie K Mansell, Cherry Kilbride, Swapna Mandal, Eleanor Main, Francesca Gowing, Silvia Schievano, Stephen T. Hilton
Format: Article
Language:English
Published: BMJ Publishing Group 2025-05-01
Series:BMJ Open
Online Access:https://bmjopen.bmj.com/content/15/5/e093622.full
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author Stephanie K Mansell
Cherry Kilbride
Swapna Mandal
Eleanor Main
Francesca Gowing
Silvia Schievano
Stephen T. Hilton
author_facet Stephanie K Mansell
Cherry Kilbride
Swapna Mandal
Eleanor Main
Francesca Gowing
Silvia Schievano
Stephen T. Hilton
author_sort Stephanie K Mansell
collection DOAJ
description Background Sleep disordered breathing is a chronic condition often requiring patient commitment to positive airway pressure (PAP) therapy. Understanding the lived experience of PAP therapy users is crucial for clinicians to support successful treatment and identify research priorities. There is a lack of evidence in this area, and published data predominantly explore the negative experiences of PAP. This study aims to explore the lived experiences of patients using PAP therapy.Methods and analysis This study employs a phenomenological approach, appropriate for researching human experiences where there is little existing research. Heideggerian theory underpins the research, recognising that the researcher’s beliefs influence meaning, allowing for rich analysis of the lived experience.Participants will be recruited from a randomised controlled trial investigating the medium-term clinical impact of customised interfaces for patients requiring PAP therapy. Purposive sampling will be used to seek representation from various demographics, with a maximum of 30 participants.Data collection will be via 1:1 semistructured interviews. Data will be analysed using Braun and Clarke’s six-phase reflexive thematic analysis. Data will be analysed inductively through an interpretivism lens. Data will be managed with computer-assisted qualitative data analysis software.Ethics and dissemination This protocol has been approved by the Hampshire B Research Ethics Committee (REC reference: 22/SC/0405). Results will be disseminated to healthcare professionals and patients through conferences, open-access journals, newsletters, the study webpage, infographics, animations, social media and healthcare awards. Tracy’s eight ‘big tent’ criteria for excellent qualitative research are comprehensive and encompassing, and this protocol has aimed to meet the criteria. The Consolidated Criteria for Reporting Qualitative Research has also been used. The findings of this study will contribute to a more holistic understanding of the lived experience of PAP therapy users, informing clinical practice and future research.Trial registration number ISRCTN74082423.
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spelling doaj-art-55b97333d7cd41398c7494ba8330b2e82025-08-20T03:53:17ZengBMJ Publishing GroupBMJ Open2044-60552025-05-0115510.1136/bmjopen-2024-093622Lived experiences of patients using positive airway pressure (PAP) therapy: a nested phenomenological study within the 3DPiPPIn randomised controlled trialStephanie K Mansell0Cherry Kilbride1Swapna Mandal2Eleanor Main3Francesca Gowing4Silvia Schievano5Stephen T. Hilton6University College London Institute of Cardiovascular Science, London, UKTherapy Services, Royal Free London NHS Foundation Trust, London, UKThoracic Medicine, Royal Free London NHS Foundation Trust, London, UKPhysiotherapy, University College London Institute of Child Health, London, UKTherapy Services, Royal Free London NHS Foundation Trust, London, UKInstitute of Cardiovascular Science, University College London Institute of Cardiovascular Science, London, UKUCL School of Pharmacy, London, UKBackground Sleep disordered breathing is a chronic condition often requiring patient commitment to positive airway pressure (PAP) therapy. Understanding the lived experience of PAP therapy users is crucial for clinicians to support successful treatment and identify research priorities. There is a lack of evidence in this area, and published data predominantly explore the negative experiences of PAP. This study aims to explore the lived experiences of patients using PAP therapy.Methods and analysis This study employs a phenomenological approach, appropriate for researching human experiences where there is little existing research. Heideggerian theory underpins the research, recognising that the researcher’s beliefs influence meaning, allowing for rich analysis of the lived experience.Participants will be recruited from a randomised controlled trial investigating the medium-term clinical impact of customised interfaces for patients requiring PAP therapy. Purposive sampling will be used to seek representation from various demographics, with a maximum of 30 participants.Data collection will be via 1:1 semistructured interviews. Data will be analysed using Braun and Clarke’s six-phase reflexive thematic analysis. Data will be analysed inductively through an interpretivism lens. Data will be managed with computer-assisted qualitative data analysis software.Ethics and dissemination This protocol has been approved by the Hampshire B Research Ethics Committee (REC reference: 22/SC/0405). Results will be disseminated to healthcare professionals and patients through conferences, open-access journals, newsletters, the study webpage, infographics, animations, social media and healthcare awards. Tracy’s eight ‘big tent’ criteria for excellent qualitative research are comprehensive and encompassing, and this protocol has aimed to meet the criteria. The Consolidated Criteria for Reporting Qualitative Research has also been used. The findings of this study will contribute to a more holistic understanding of the lived experience of PAP therapy users, informing clinical practice and future research.Trial registration number ISRCTN74082423.https://bmjopen.bmj.com/content/15/5/e093622.full
spellingShingle Stephanie K Mansell
Cherry Kilbride
Swapna Mandal
Eleanor Main
Francesca Gowing
Silvia Schievano
Stephen T. Hilton
Lived experiences of patients using positive airway pressure (PAP) therapy: a nested phenomenological study within the 3DPiPPIn randomised controlled trial
BMJ Open
title Lived experiences of patients using positive airway pressure (PAP) therapy: a nested phenomenological study within the 3DPiPPIn randomised controlled trial
title_full Lived experiences of patients using positive airway pressure (PAP) therapy: a nested phenomenological study within the 3DPiPPIn randomised controlled trial
title_fullStr Lived experiences of patients using positive airway pressure (PAP) therapy: a nested phenomenological study within the 3DPiPPIn randomised controlled trial
title_full_unstemmed Lived experiences of patients using positive airway pressure (PAP) therapy: a nested phenomenological study within the 3DPiPPIn randomised controlled trial
title_short Lived experiences of patients using positive airway pressure (PAP) therapy: a nested phenomenological study within the 3DPiPPIn randomised controlled trial
title_sort lived experiences of patients using positive airway pressure pap therapy a nested phenomenological study within the 3dpippin randomised controlled trial
url https://bmjopen.bmj.com/content/15/5/e093622.full
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