The effects of literacy on health in Gypsies, Roma and Travellers (GRT): a systematic review and narrative synthesis

Introduction Gypsies, Roma and Travellers (GRT) frequently experience poorer health outcomes than the general population and represent the most socially and economically disadvantaged individuals in many countries. In general, GRT in OECD (Organisation for Economic Co-operation and Development) coun...

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Main Authors: Kathryn Charlotte Dixon, Ewen Speed, Montgomery Dunn, Eleanor J C Turner-Moss, Beverley Carpenter, Tanya Blumenfeld
Format: Article
Language:English
Published: BMJ Publishing Group 2024-11-01
Series:BMJ Global Health
Online Access:https://gh.bmj.com/content/9/11/e017277.full
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author Kathryn Charlotte Dixon
Ewen Speed
Montgomery Dunn
Eleanor J C Turner-Moss
Beverley Carpenter
Tanya Blumenfeld
author_facet Kathryn Charlotte Dixon
Ewen Speed
Montgomery Dunn
Eleanor J C Turner-Moss
Beverley Carpenter
Tanya Blumenfeld
author_sort Kathryn Charlotte Dixon
collection DOAJ
description Introduction Gypsies, Roma and Travellers (GRT) frequently experience poorer health outcomes than the general population and represent the most socially and economically disadvantaged individuals in many countries. In general, GRT in OECD (Organisation for Economic Co-operation and Development) countries have lower rates of literacy than the general population. Although ‘health literacy’ has been examined before, the link between low functional literacy and its effects on health has not yet been explored.Methods Searches were conducted on five large English-language databases for research papers since 2008. Grey literature was included as the number of eligible papers was small. This was complimented by citation ‘chaining’. Study findings of qualitative papers were extracted, codes were devised and then analysed thematically. A narrative synthesis was reported, supplemented by the quantitative findings.Results 15 studies (and two substudies) were analysed. Four strongly overlapping themes were developed: (1) The context of culturally inadequate healthcare systems, (2) psychological impact and disempowerment, (3) intersectional, contextual factors and the unique needs of GRT and (4) considerations for health information resources for GRT patients with low literacy.Conclusion Although low literacy in GRT groups is a well-recognised issue, this is the first systematic review to analyse the link between low literacy and its effects on health outcomes for GRT. The wide range of socioeconomic and cultural factors present in GRT communities, combined with low literacy, act synergistically to worsen the physical and mental health of GRT groups in different ways than that seen in members of the general population with similar low literacy levels. National intervention is required to improve the literacy of GRT children and adults. There is a clear need to develop policies and processes that facilitate a better understanding of literacy levels and how they interact with other social determinants of GRT health among healthcare professionals.Registration number CRD42023468449.
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spelling doaj-art-53a8f85a6a6244bbbd238e87b575d45d2025-08-20T02:39:13ZengBMJ Publishing GroupBMJ Global Health2059-79082024-11-0191110.1136/bmjgh-2024-017277The effects of literacy on health in Gypsies, Roma and Travellers (GRT): a systematic review and narrative synthesisKathryn Charlotte Dixon0Ewen Speed1Montgomery Dunn2Eleanor J C Turner-Moss3Beverley Carpenter4Tanya Blumenfeld55 Department of Public Health and Primary Care, University of Cambridge, Cambridge, UK4 School of Health and Social Care, University of Essex, Colchester, UK1 School of Clinical Medicine, University of Cambridge, Cambridge, Cambridgeshire, UK2 Primary Care and Population Health / Collaborative Centre for Inclusion Health, Institute of Epidemiology and Health Care, University College London, London, UK3 Oblique Arts, Cambridge, UK4 School of Health and Social Care, University of Essex, Colchester, UKIntroduction Gypsies, Roma and Travellers (GRT) frequently experience poorer health outcomes than the general population and represent the most socially and economically disadvantaged individuals in many countries. In general, GRT in OECD (Organisation for Economic Co-operation and Development) countries have lower rates of literacy than the general population. Although ‘health literacy’ has been examined before, the link between low functional literacy and its effects on health has not yet been explored.Methods Searches were conducted on five large English-language databases for research papers since 2008. Grey literature was included as the number of eligible papers was small. This was complimented by citation ‘chaining’. Study findings of qualitative papers were extracted, codes were devised and then analysed thematically. A narrative synthesis was reported, supplemented by the quantitative findings.Results 15 studies (and two substudies) were analysed. Four strongly overlapping themes were developed: (1) The context of culturally inadequate healthcare systems, (2) psychological impact and disempowerment, (3) intersectional, contextual factors and the unique needs of GRT and (4) considerations for health information resources for GRT patients with low literacy.Conclusion Although low literacy in GRT groups is a well-recognised issue, this is the first systematic review to analyse the link between low literacy and its effects on health outcomes for GRT. The wide range of socioeconomic and cultural factors present in GRT communities, combined with low literacy, act synergistically to worsen the physical and mental health of GRT groups in different ways than that seen in members of the general population with similar low literacy levels. National intervention is required to improve the literacy of GRT children and adults. There is a clear need to develop policies and processes that facilitate a better understanding of literacy levels and how they interact with other social determinants of GRT health among healthcare professionals.Registration number CRD42023468449.https://gh.bmj.com/content/9/11/e017277.full
spellingShingle Kathryn Charlotte Dixon
Ewen Speed
Montgomery Dunn
Eleanor J C Turner-Moss
Beverley Carpenter
Tanya Blumenfeld
The effects of literacy on health in Gypsies, Roma and Travellers (GRT): a systematic review and narrative synthesis
BMJ Global Health
title The effects of literacy on health in Gypsies, Roma and Travellers (GRT): a systematic review and narrative synthesis
title_full The effects of literacy on health in Gypsies, Roma and Travellers (GRT): a systematic review and narrative synthesis
title_fullStr The effects of literacy on health in Gypsies, Roma and Travellers (GRT): a systematic review and narrative synthesis
title_full_unstemmed The effects of literacy on health in Gypsies, Roma and Travellers (GRT): a systematic review and narrative synthesis
title_short The effects of literacy on health in Gypsies, Roma and Travellers (GRT): a systematic review and narrative synthesis
title_sort effects of literacy on health in gypsies roma and travellers grt a systematic review and narrative synthesis
url https://gh.bmj.com/content/9/11/e017277.full
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