Handicap (in)visible et expériences des espaces par les personnes atteintes du Syndrome de Tachycardie Orthostatique Posturale (POTS)
This article is based on a survey of people with Postural Orthostatic Tachycardia Syndrome (POTS) to assess the level of limitation experienced by patients with this condition which can be an (in)visible disability of various kinds depending on the environments frequented and occupied by the patient...
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| Format: | Article |
| Language: | English |
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Université de Reims Champagne-Ardennes
2022-11-01
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| Series: | L'Espace Politique |
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| Online Access: | https://journals.openedition.org/espacepolitique/10568 |
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| _version_ | 1850265761644281856 |
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| author | Marie Pouillès Garonzi |
| author_facet | Marie Pouillès Garonzi |
| author_sort | Marie Pouillès Garonzi |
| collection | DOAJ |
| description | This article is based on a survey of people with Postural Orthostatic Tachycardia Syndrome (POTS) to assess the level of limitation experienced by patients with this condition which can be an (in)visible disability of various kinds depending on the environments frequented and occupied by the patients. The spaces studied here are divided into three main sections: private, public and virtual spaces. The survey is conducted using a French-language questionnaire for French-speaking patients. The aim of this work is to improve knowledge of this disease in the humanities, to give a voice to people with the disease to shed light on the reality of their daily use of spaces, and finally to improve their medical and social care. The results show that many limitations shape the practices of both tangible and intangible spaces of POTS patients. This article reports on their coping strategies, obstacles, and multiple realities. |
| format | Article |
| id | doaj-art-53a554fd5ba2406a8495f0b63996a3f9 |
| institution | OA Journals |
| issn | 1958-5500 |
| language | English |
| publishDate | 2022-11-01 |
| publisher | Université de Reims Champagne-Ardennes |
| record_format | Article |
| series | L'Espace Politique |
| spelling | doaj-art-53a554fd5ba2406a8495f0b63996a3f92025-08-20T01:54:19ZengUniversité de Reims Champagne-ArdennesL'Espace Politique1958-55002022-11-014510.4000/espacepolitique.10568Handicap (in)visible et expériences des espaces par les personnes atteintes du Syndrome de Tachycardie Orthostatique Posturale (POTS)Marie Pouillès GaronziThis article is based on a survey of people with Postural Orthostatic Tachycardia Syndrome (POTS) to assess the level of limitation experienced by patients with this condition which can be an (in)visible disability of various kinds depending on the environments frequented and occupied by the patients. The spaces studied here are divided into three main sections: private, public and virtual spaces. The survey is conducted using a French-language questionnaire for French-speaking patients. The aim of this work is to improve knowledge of this disease in the humanities, to give a voice to people with the disease to shed light on the reality of their daily use of spaces, and finally to improve their medical and social care. The results show that many limitations shape the practices of both tangible and intangible spaces of POTS patients. This article reports on their coping strategies, obstacles, and multiple realities.https://journals.openedition.org/espacepolitique/10568accessibilityCovid-19postural Orthostatic Tachycardia Syndrome (POTS)invisible disabilityexperienced spacedwelling |
| spellingShingle | Marie Pouillès Garonzi Handicap (in)visible et expériences des espaces par les personnes atteintes du Syndrome de Tachycardie Orthostatique Posturale (POTS) L'Espace Politique accessibility Covid-19 postural Orthostatic Tachycardia Syndrome (POTS) invisible disability experienced space dwelling |
| title | Handicap (in)visible et expériences des espaces par les personnes atteintes du Syndrome de Tachycardie Orthostatique Posturale (POTS) |
| title_full | Handicap (in)visible et expériences des espaces par les personnes atteintes du Syndrome de Tachycardie Orthostatique Posturale (POTS) |
| title_fullStr | Handicap (in)visible et expériences des espaces par les personnes atteintes du Syndrome de Tachycardie Orthostatique Posturale (POTS) |
| title_full_unstemmed | Handicap (in)visible et expériences des espaces par les personnes atteintes du Syndrome de Tachycardie Orthostatique Posturale (POTS) |
| title_short | Handicap (in)visible et expériences des espaces par les personnes atteintes du Syndrome de Tachycardie Orthostatique Posturale (POTS) |
| title_sort | handicap in visible et experiences des espaces par les personnes atteintes du syndrome de tachycardie orthostatique posturale pots |
| topic | accessibility Covid-19 postural Orthostatic Tachycardia Syndrome (POTS) invisible disability experienced space dwelling |
| url | https://journals.openedition.org/espacepolitique/10568 |
| work_keys_str_mv | AT mariepouillesgaronzi handicapinvisibleetexperiencesdesespacesparlespersonnesatteintesdusyndromedetachycardieorthostatiqueposturalepots |