The Ebola Data Platform: A prospective, standardised, clinical dataset collected during the 2013-2016 West African Ebola outbreak [version 1; peer review: 2 approved]
The Ebola Data Platform (EDP) was developed to strengthen knowledge and capacity across health, research, and humanitarian communities to reduce the impact of Ebola through responsible data use. This collaborative initiative was established by West African governments, NGOs, academic organisations,...
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Wellcome
2024-09-01
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| Series: | Wellcome Open Research |
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| Online Access: | https://wellcomeopenresearch.org/articles/9-548/v1 |
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| author | Laura Merson Samantha Strudwick Trokon Omarley Yeabah Jennifer H. Lee Kalynn Kennon Tamba Fayiah Gemma Buck Musa Martin Feika Mahamoud Sama Cherif Kwame Oneill |
| author_facet | Laura Merson Samantha Strudwick Trokon Omarley Yeabah Jennifer H. Lee Kalynn Kennon Tamba Fayiah Gemma Buck Musa Martin Feika Mahamoud Sama Cherif Kwame Oneill |
| author_sort | Laura Merson |
| collection | DOAJ |
| description | The Ebola Data Platform (EDP) was developed to strengthen knowledge and capacity across health, research, and humanitarian communities to reduce the impact of Ebola through responsible data use. This collaborative initiative was established by West African governments, NGOs, academic organisations, and intra-governmental health organisations directly involved in the 2013–2016 West African Ebola outbreak. The platform was established to provide a centralised, standardised dataset of individual patient data collected during the outbreak for the purpose of research to improve Ebola treatment and control, and includes over 13,600 patient records of individuals infected and treated from 22 different Ebola treatment centres across Guinea, Sierra Leone, Liberia, and Nigeria. Patient data are available from treatment centre triage and admission, inpatient clinical observations, and outcomes, with outpatient follow-up available for some datasets. Data include signs and symptoms, pre-existing comorbidities, vital signs, laboratory testing, treatments, complications, dates of admission and discharge, mortality, viral strains, and other data. This publication describes characteristics of the EDP dataset, its architecture, methods for data access and tools for utilising the dataset. |
| format | Article |
| id | doaj-art-533738a31ece4ddbaa1ec10ea61527ba |
| institution | OA Journals |
| issn | 2398-502X |
| language | English |
| publishDate | 2024-09-01 |
| publisher | Wellcome |
| record_format | Article |
| series | Wellcome Open Research |
| spelling | doaj-art-533738a31ece4ddbaa1ec10ea61527ba2025-08-20T01:54:22ZengWellcomeWellcome Open Research2398-502X2024-09-01910.12688/wellcomeopenres.22483.124772The Ebola Data Platform: A prospective, standardised, clinical dataset collected during the 2013-2016 West African Ebola outbreak [version 1; peer review: 2 approved]Laura Merson0https://orcid.org/0000-0002-4168-1960Samantha Strudwick1https://orcid.org/0000-0002-2946-8366Trokon Omarley Yeabah2Jennifer H. Lee3https://orcid.org/0000-0002-0391-4575Kalynn Kennon4Tamba Fayiah5Gemma Buck6Musa Martin Feika7Mahamoud Sama Cherif8Kwame Oneill9ISARIC, Pandemic Sciences Institute, University of Oxford, Oxford, England, UKInfectious Diseases Data Observatory (IDDO), University of Oxford, Oxford, England, UKNational Public Health Institute Liberia, Monrovia, LiberiaInfectious Diseases Data Observatory (IDDO), University of Oxford, Oxford, England, UKInfectious Diseases Data Observatory (IDDO), University of Oxford, Oxford, England, UKPartnership for Research on Vaccines and Infectious Diseases in Liberia, Monrovia, LiberiaInfectious Diseases Data Observatory (IDDO), University of Oxford, Oxford, England, UKDirectorate of Health Security and Emergency, Ministry of Health and Sanitation, Freetown, Sierra LeoneFaculty of Sciences and Health Technics, Gamal Abdel Nasser University of Conakry, Conakry, GuineaCollege of Medicine and Allied Health Sciences, University of Sierra Leone, Freetown, Sierra LeoneThe Ebola Data Platform (EDP) was developed to strengthen knowledge and capacity across health, research, and humanitarian communities to reduce the impact of Ebola through responsible data use. This collaborative initiative was established by West African governments, NGOs, academic organisations, and intra-governmental health organisations directly involved in the 2013–2016 West African Ebola outbreak. The platform was established to provide a centralised, standardised dataset of individual patient data collected during the outbreak for the purpose of research to improve Ebola treatment and control, and includes over 13,600 patient records of individuals infected and treated from 22 different Ebola treatment centres across Guinea, Sierra Leone, Liberia, and Nigeria. Patient data are available from treatment centre triage and admission, inpatient clinical observations, and outcomes, with outpatient follow-up available for some datasets. Data include signs and symptoms, pre-existing comorbidities, vital signs, laboratory testing, treatments, complications, dates of admission and discharge, mortality, viral strains, and other data. This publication describes characteristics of the EDP dataset, its architecture, methods for data access and tools for utilising the dataset.https://wellcomeopenresearch.org/articles/9-548/v1Ebola virus disease data data sharing outbreak viral haemorrhagic fever eng |
| spellingShingle | Laura Merson Samantha Strudwick Trokon Omarley Yeabah Jennifer H. Lee Kalynn Kennon Tamba Fayiah Gemma Buck Musa Martin Feika Mahamoud Sama Cherif Kwame Oneill The Ebola Data Platform: A prospective, standardised, clinical dataset collected during the 2013-2016 West African Ebola outbreak [version 1; peer review: 2 approved] Wellcome Open Research Ebola virus disease data data sharing outbreak viral haemorrhagic fever eng |
| title | The Ebola Data Platform: A prospective, standardised, clinical dataset collected during the 2013-2016 West African Ebola outbreak [version 1; peer review: 2 approved] |
| title_full | The Ebola Data Platform: A prospective, standardised, clinical dataset collected during the 2013-2016 West African Ebola outbreak [version 1; peer review: 2 approved] |
| title_fullStr | The Ebola Data Platform: A prospective, standardised, clinical dataset collected during the 2013-2016 West African Ebola outbreak [version 1; peer review: 2 approved] |
| title_full_unstemmed | The Ebola Data Platform: A prospective, standardised, clinical dataset collected during the 2013-2016 West African Ebola outbreak [version 1; peer review: 2 approved] |
| title_short | The Ebola Data Platform: A prospective, standardised, clinical dataset collected during the 2013-2016 West African Ebola outbreak [version 1; peer review: 2 approved] |
| title_sort | ebola data platform a prospective standardised clinical dataset collected during the 2013 2016 west african ebola outbreak version 1 peer review 2 approved |
| topic | Ebola virus disease data data sharing outbreak viral haemorrhagic fever eng |
| url | https://wellcomeopenresearch.org/articles/9-548/v1 |
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