Waiver of informed consent in clinical research: a summary of contemporary guidelines and a resource for researchers

Objective Low-risk pragmatic clinical research such as learning health system research, quality assurance activities and comparative effectiveness studies are approaches to embedding clinical research within routine practice to generate generalisable evidence. Individual written informed consent may...

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Main Authors: Christoph Wanner, Brendan Smyth, Carmel Hawley, Vlado Perkovic, Michael Walsh, Patrick Rossignol, Sunita Bavanandan, David Wheeler, Vivekanand Jha, Meg Jardine, Rathika Krishnasamy, Grace Balicki, Abhinav Bassi, Amanda Siriwardana, Erika Dempsey, James Kauffman, Behram Khan, Zuo Li, Jule Pinter
Format: Article
Language:English
Published: BMJ Publishing Group 2025-03-01
Series:BMJ Open
Online Access:https://bmjopen.bmj.com/content/15/3/e091896.full
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author Christoph Wanner
Brendan Smyth
Carmel Hawley
Vlado Perkovic
Michael Walsh
Patrick Rossignol
Sunita Bavanandan
David Wheeler
Vivekanand Jha
Meg Jardine
Rathika Krishnasamy
Grace Balicki
Abhinav Bassi
Amanda Siriwardana
Erika Dempsey
James Kauffman
Behram Khan
Zuo Li
Jule Pinter
author_facet Christoph Wanner
Brendan Smyth
Carmel Hawley
Vlado Perkovic
Michael Walsh
Patrick Rossignol
Sunita Bavanandan
David Wheeler
Vivekanand Jha
Meg Jardine
Rathika Krishnasamy
Grace Balicki
Abhinav Bassi
Amanda Siriwardana
Erika Dempsey
James Kauffman
Behram Khan
Zuo Li
Jule Pinter
author_sort Christoph Wanner
collection DOAJ
description Objective Low-risk pragmatic clinical research such as learning health system research, quality assurance activities and comparative effectiveness studies are approaches to embedding clinical research within routine practice to generate generalisable evidence. Individual written informed consent may present a barrier to the feasibility and inclusiveness of such low-risk clinical research. Within an overarching moral and ethical framework, the form and requirements of consent vary in both clinical practice and research settings according to the context and level of risk. Within some low-risk research settings, waiver of consent may be appropriate.Analysis We sought to describe contemporary national and international English-language guidelines pertaining to the use and oversight of waiver of consent in clinical research. We identify 14 guidelines including 1 international, 1 regional and 12 national statements, and summarise the principles in each for circumstances in which a waiver of consent is appropriate.Conclusion While complete international harmonisation of policy may be neither realistic nor necessary, there are numerous unifying concordances suggesting a broad consensus on the approach to waiver of consent research.
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spelling doaj-art-53219e9074de45fca3beaccb75deae272025-08-20T03:40:41ZengBMJ Publishing GroupBMJ Open2044-60552025-03-0115310.1136/bmjopen-2024-091896Waiver of informed consent in clinical research: a summary of contemporary guidelines and a resource for researchersChristoph Wanner0Brendan Smyth1Carmel Hawley2Vlado Perkovic3Michael Walsh4Patrick Rossignol5Sunita Bavanandan6David Wheeler7Vivekanand Jha8Meg Jardine9Rathika Krishnasamy10Grace Balicki11Abhinav Bassi12Amanda Siriwardana13Erika DempseyJames KauffmanBehram KhanZuo LiJule PinterDepartment of Internal Medicine I, Universitätsklinikum Würzburg, Würzburg, BY, Germany3 Department of Renal Medicine, St George Hospital, Sydney, New South Wales, AustraliaThe University of Queensland School of Medicine, Herston, Queensland, Australiaexecutive director, George clinicalDepartment of Clinical Epidemiology and Biostatistics, McMaster University Hamilton, CanadaInstitut Lorrain Du Coeur Et Des Vaisseaux Louis Mathieu, Université de Lorraine, Inserm, Centre d’Investigations Cliniques- Plurithématique 14-33, and Inserm U1116, CHRU, F-CRIN INI-CRCT (Cardiovascular and Renal Clinical Trialists), Vandoeuvre-les-nancy, France3 Department of Nephrology, Hospital Kuala Lumpur, Kuala Lumpur, MalaysiaDepartment of Renal Medicine, University College London, London, UKnephrologistDepartment of Renal Medicine, Concord Repatriation General Hospital, Sydney, New South Wales, AustraliaFaculty of Medicine, The University of Queensland, Brisbane, Queensland, AustraliaThe George Institute for Global Health, Newtown, New South Wales, AustraliaThe George Institute for Global Health India, New Delhi, Delhi, IndiaSydney Medical School, The University of Sydney, Sydney, New South Wales, AustraliaObjective Low-risk pragmatic clinical research such as learning health system research, quality assurance activities and comparative effectiveness studies are approaches to embedding clinical research within routine practice to generate generalisable evidence. Individual written informed consent may present a barrier to the feasibility and inclusiveness of such low-risk clinical research. Within an overarching moral and ethical framework, the form and requirements of consent vary in both clinical practice and research settings according to the context and level of risk. Within some low-risk research settings, waiver of consent may be appropriate.Analysis We sought to describe contemporary national and international English-language guidelines pertaining to the use and oversight of waiver of consent in clinical research. We identify 14 guidelines including 1 international, 1 regional and 12 national statements, and summarise the principles in each for circumstances in which a waiver of consent is appropriate.Conclusion While complete international harmonisation of policy may be neither realistic nor necessary, there are numerous unifying concordances suggesting a broad consensus on the approach to waiver of consent research.https://bmjopen.bmj.com/content/15/3/e091896.full
spellingShingle Christoph Wanner
Brendan Smyth
Carmel Hawley
Vlado Perkovic
Michael Walsh
Patrick Rossignol
Sunita Bavanandan
David Wheeler
Vivekanand Jha
Meg Jardine
Rathika Krishnasamy
Grace Balicki
Abhinav Bassi
Amanda Siriwardana
Erika Dempsey
James Kauffman
Behram Khan
Zuo Li
Jule Pinter
Waiver of informed consent in clinical research: a summary of contemporary guidelines and a resource for researchers
BMJ Open
title Waiver of informed consent in clinical research: a summary of contemporary guidelines and a resource for researchers
title_full Waiver of informed consent in clinical research: a summary of contemporary guidelines and a resource for researchers
title_fullStr Waiver of informed consent in clinical research: a summary of contemporary guidelines and a resource for researchers
title_full_unstemmed Waiver of informed consent in clinical research: a summary of contemporary guidelines and a resource for researchers
title_short Waiver of informed consent in clinical research: a summary of contemporary guidelines and a resource for researchers
title_sort waiver of informed consent in clinical research a summary of contemporary guidelines and a resource for researchers
url https://bmjopen.bmj.com/content/15/3/e091896.full
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