Exploring perspectives regarding death cafés for people experiencing homelessness: a qualitative study
Background People experiencing homelessness (PEH) often die at a younger age than the general population. Advanced ill-health often occurs late in its trajectory (if at all), leaving many PEH to die without adequate support from hospital-based, hospice-based or community-based palliative care servic...
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| Format: | Article |
| Language: | English |
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BMJ Publishing Group
2025-06-01
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| Series: | BMJ Open |
| Online Access: | https://bmjopen.bmj.com/content/15/6/e096990.full |
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| author | Kate Flemming Briony Hudson Caroline Shulman Emma Casey Jodie Crooks Mandy Pattinson Gareth Davis |
| author_facet | Kate Flemming Briony Hudson Caroline Shulman Emma Casey Jodie Crooks Mandy Pattinson Gareth Davis |
| author_sort | Kate Flemming |
| collection | DOAJ |
| description | Background People experiencing homelessness (PEH) often die at a younger age than the general population. Advanced ill-health often occurs late in its trajectory (if at all), leaving many PEH to die without adequate support from hospital-based, hospice-based or community-based palliative care services. Despite the high rate of bereavement and exposure to death among PEH, there are rarely opportunities for them to reflect on their experiences, thoughts and preferences around death or receive bereavement support. Death cafés are a global social franchise, providing a space for people to participate in an open group discussion about death, dying and bereavement. They are free to attend and unstructured but facilitated.Objectives To explore the perspectives of PEH and the professionals that support them with regards to the potential acceptability, benefits and challenges of death cafes.Methods A qualitative study comprising of interviews with nine homelessness and/or palliative care professionals with experience of running death cafés for, or supporting PEH in other ways, and two focus groups with nine people with lived experience of homelessness. The research was co-produced with a lived experience co-researcher forming a core part of the research team. Reflexive thematic analysis was utilised to develop themes.Results Five themes were developed to highlight the perspectives and experiences of death cafés for PEH: choice; expertise in facilitation: recognising risk and the unstructured nature; promoting safety against potential risk; potential benefits and potential practical considerations. Themes highlight the need for a trauma-informed approach. Death cafés could be impactful, where done well, but they are not without risk.Conclusions Death cafés for PEH pose risks that require comprehensive consideration and trauma-informed, expert facilitation. However, this research highlighted that a low-pressure space to explore thoughts around death, dying and bereavement is currently an unmet need within this population. |
| format | Article |
| id | doaj-art-512bdbb9476a42d9ba744981a5c6f779 |
| institution | OA Journals |
| issn | 2044-6055 |
| language | English |
| publishDate | 2025-06-01 |
| publisher | BMJ Publishing Group |
| record_format | Article |
| series | BMJ Open |
| spelling | doaj-art-512bdbb9476a42d9ba744981a5c6f7792025-08-20T02:30:50ZengBMJ Publishing GroupBMJ Open2044-60552025-06-0115610.1136/bmjopen-2024-096990Exploring perspectives regarding death cafés for people experiencing homelessness: a qualitative studyKate Flemming0Briony Hudson1Caroline Shulman2Emma Casey3Jodie Crooks4Mandy Pattinson5Gareth Davis6University of York, York, UKMarie Curie, London, UKPathway, London, UKGroundswell, London, UKMarie Curie, London, UKPathway, London, UKPathway, London, UKBackground People experiencing homelessness (PEH) often die at a younger age than the general population. Advanced ill-health often occurs late in its trajectory (if at all), leaving many PEH to die without adequate support from hospital-based, hospice-based or community-based palliative care services. Despite the high rate of bereavement and exposure to death among PEH, there are rarely opportunities for them to reflect on their experiences, thoughts and preferences around death or receive bereavement support. Death cafés are a global social franchise, providing a space for people to participate in an open group discussion about death, dying and bereavement. They are free to attend and unstructured but facilitated.Objectives To explore the perspectives of PEH and the professionals that support them with regards to the potential acceptability, benefits and challenges of death cafes.Methods A qualitative study comprising of interviews with nine homelessness and/or palliative care professionals with experience of running death cafés for, or supporting PEH in other ways, and two focus groups with nine people with lived experience of homelessness. The research was co-produced with a lived experience co-researcher forming a core part of the research team. Reflexive thematic analysis was utilised to develop themes.Results Five themes were developed to highlight the perspectives and experiences of death cafés for PEH: choice; expertise in facilitation: recognising risk and the unstructured nature; promoting safety against potential risk; potential benefits and potential practical considerations. Themes highlight the need for a trauma-informed approach. Death cafés could be impactful, where done well, but they are not without risk.Conclusions Death cafés for PEH pose risks that require comprehensive consideration and trauma-informed, expert facilitation. However, this research highlighted that a low-pressure space to explore thoughts around death, dying and bereavement is currently an unmet need within this population.https://bmjopen.bmj.com/content/15/6/e096990.full |
| spellingShingle | Kate Flemming Briony Hudson Caroline Shulman Emma Casey Jodie Crooks Mandy Pattinson Gareth Davis Exploring perspectives regarding death cafés for people experiencing homelessness: a qualitative study BMJ Open |
| title | Exploring perspectives regarding death cafés for people experiencing homelessness: a qualitative study |
| title_full | Exploring perspectives regarding death cafés for people experiencing homelessness: a qualitative study |
| title_fullStr | Exploring perspectives regarding death cafés for people experiencing homelessness: a qualitative study |
| title_full_unstemmed | Exploring perspectives regarding death cafés for people experiencing homelessness: a qualitative study |
| title_short | Exploring perspectives regarding death cafés for people experiencing homelessness: a qualitative study |
| title_sort | exploring perspectives regarding death cafes for people experiencing homelessness a qualitative study |
| url | https://bmjopen.bmj.com/content/15/6/e096990.full |
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