Prophylaxis in von Willebrand disease with von Willebrand factor concentrate and nonfactor therapies

This manuscript summarizes the current status of prophylaxis and novel potential therapies to prevent bleeding in patients with von Willebrand disease (VWD). VWD is the most common inherited bleeding disorder, which is associated mainly with mucocutaneous bleeding and bleeding during surgical and de...

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Main Authors: Calvin B. van Kwawegen, Frank W.G. Leebeek
Format: Article
Language:English
Published: Elsevier 2024-11-01
Series:Research and Practice in Thrombosis and Haemostasis
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Online Access:http://www.sciencedirect.com/science/article/pii/S2475037924002942
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author Calvin B. van Kwawegen
Frank W.G. Leebeek
author_facet Calvin B. van Kwawegen
Frank W.G. Leebeek
author_sort Calvin B. van Kwawegen
collection DOAJ
description This manuscript summarizes the current status of prophylaxis and novel potential therapies to prevent bleeding in patients with von Willebrand disease (VWD). VWD is the most common inherited bleeding disorder, which is associated mainly with mucocutaneous bleeding and bleeding during surgical and dental interventions. More severely affected VWD patients, mostly those with type 2 and type 3, can also suffer from joint, muscle, and gastrointestinal bleeds. Most patients with mild and moderate VWD are treated with desmopressin. The majority of patients with type 2 and 3 are treated with von Willebrand factor concentrates, with or without factor VIII. These patients suffer from severe and frequent bleeds and may require regular infusions of von Willebrand factor concentrate to prevent bleeding, so-called prophylaxis, 1 to 3 times per week. In this article, we review the current status of prophylaxis in VWD. We will also discuss emerging treatments that may be used as long-term prophylaxis in patients with severe VWD. We include relevant new data on this topic that were presented during the 2024 International Society on Thrombosis and Haemostasis (ISTH) Congress.
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spelling doaj-art-50afd696152e4585a4f8145c37f6ebdf2025-08-20T01:56:57ZengElsevierResearch and Practice in Thrombosis and Haemostasis2475-03792024-11-018810259910.1016/j.rpth.2024.102599Prophylaxis in von Willebrand disease with von Willebrand factor concentrate and nonfactor therapiesCalvin B. van Kwawegen0Frank W.G. Leebeek1Department of Hematology, Erasmus University Medical Center, Rotterdam, The NetherlandsCorrespondence Frank W. G. Leebeek, Department of Hematology, Erasmus University Medical Center, PO Box 2040, 3000 CA Rotterdam, The Netherlands.; Department of Hematology, Erasmus University Medical Center, Rotterdam, The NetherlandsThis manuscript summarizes the current status of prophylaxis and novel potential therapies to prevent bleeding in patients with von Willebrand disease (VWD). VWD is the most common inherited bleeding disorder, which is associated mainly with mucocutaneous bleeding and bleeding during surgical and dental interventions. More severely affected VWD patients, mostly those with type 2 and type 3, can also suffer from joint, muscle, and gastrointestinal bleeds. Most patients with mild and moderate VWD are treated with desmopressin. The majority of patients with type 2 and 3 are treated with von Willebrand factor concentrates, with or without factor VIII. These patients suffer from severe and frequent bleeds and may require regular infusions of von Willebrand factor concentrate to prevent bleeding, so-called prophylaxis, 1 to 3 times per week. In this article, we review the current status of prophylaxis in VWD. We will also discuss emerging treatments that may be used as long-term prophylaxis in patients with severe VWD. We include relevant new data on this topic that were presented during the 2024 International Society on Thrombosis and Haemostasis (ISTH) Congress.http://www.sciencedirect.com/science/article/pii/S2475037924002942bleedingnonfactor therapiesprophylaxistreatment strategyvon Willebrand disease
spellingShingle Calvin B. van Kwawegen
Frank W.G. Leebeek
Prophylaxis in von Willebrand disease with von Willebrand factor concentrate and nonfactor therapies
Research and Practice in Thrombosis and Haemostasis
bleeding
nonfactor therapies
prophylaxis
treatment strategy
von Willebrand disease
title Prophylaxis in von Willebrand disease with von Willebrand factor concentrate and nonfactor therapies
title_full Prophylaxis in von Willebrand disease with von Willebrand factor concentrate and nonfactor therapies
title_fullStr Prophylaxis in von Willebrand disease with von Willebrand factor concentrate and nonfactor therapies
title_full_unstemmed Prophylaxis in von Willebrand disease with von Willebrand factor concentrate and nonfactor therapies
title_short Prophylaxis in von Willebrand disease with von Willebrand factor concentrate and nonfactor therapies
title_sort prophylaxis in von willebrand disease with von willebrand factor concentrate and nonfactor therapies
topic bleeding
nonfactor therapies
prophylaxis
treatment strategy
von Willebrand disease
url http://www.sciencedirect.com/science/article/pii/S2475037924002942
work_keys_str_mv AT calvinbvankwawegen prophylaxisinvonwillebranddiseasewithvonwillebrandfactorconcentrateandnonfactortherapies
AT frankwgleebeek prophylaxisinvonwillebranddiseasewithvonwillebrandfactorconcentrateandnonfactortherapies