A case of SHORT syndrome with a novel genetic mutation diagnosed 19 years after the onset of diabetes

ABSTRACT A 33‐year‐old man presented with short stature, thin build, hearing impairment, Rieger anomaly, and a history of inguinal hernia. He also exhibited characteristic facies, including a triangular face with a small chin, deeply set eyes, and low‐set ears. He was born with intrauterine growth r...

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Main Authors: Kumiko Tajima, Yushi Hirota, Tomofumi Takayoshi, Wataru Ogawa
Format: Article
Language:English
Published: Wiley 2025-08-01
Series:Journal of Diabetes Investigation
Subjects:
Online Access:https://doi.org/10.1111/jdi.70088
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author Kumiko Tajima
Yushi Hirota
Tomofumi Takayoshi
Wataru Ogawa
author_facet Kumiko Tajima
Yushi Hirota
Tomofumi Takayoshi
Wataru Ogawa
author_sort Kumiko Tajima
collection DOAJ
description ABSTRACT A 33‐year‐old man presented with short stature, thin build, hearing impairment, Rieger anomaly, and a history of inguinal hernia. He also exhibited characteristic facies, including a triangular face with a small chin, deeply set eyes, and low‐set ears. He was born with intrauterine growth restriction and developed diabetes during adolescence, requiring high‐dose insulin therapy. For 19 years, an accurate diagnosis was not made. We performed direct sequencing of the insulin receptor gene and exons 11–16 of the PIK3R1 gene, identifying a c.1957A>T mutation (p.Lys653*) in the PIK3R1 gene, which confirmed a diagnosis of SHORT syndrome. Suspecting SHORT syndrome in individuals who exhibit some of its typical symptoms may facilitate an accurate diagnosis and enable effective management of this condition.
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publishDate 2025-08-01
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series Journal of Diabetes Investigation
spelling doaj-art-4f57d03e1fd440c9a6f3e65840fc009c2025-08-20T03:16:22ZengWileyJournal of Diabetes Investigation2040-11162040-11242025-08-011681561156510.1111/jdi.70088A case of SHORT syndrome with a novel genetic mutation diagnosed 19 years after the onset of diabetesKumiko Tajima0Yushi Hirota1Tomofumi Takayoshi2Wataru Ogawa3Department of Internal Medicine Japan Community Health Care Organization Gunma Central Hospital Maebashi JapanDivision of Diabetes and Endocrinology, Department of Internal Medicine Kobe University Graduate School of Medicine Kobe JapanDivision of Diabetes and Endocrinology, Department of Internal Medicine Kobe University Graduate School of Medicine Kobe JapanDivision of Diabetes and Endocrinology, Department of Internal Medicine Kobe University Graduate School of Medicine Kobe JapanABSTRACT A 33‐year‐old man presented with short stature, thin build, hearing impairment, Rieger anomaly, and a history of inguinal hernia. He also exhibited characteristic facies, including a triangular face with a small chin, deeply set eyes, and low‐set ears. He was born with intrauterine growth restriction and developed diabetes during adolescence, requiring high‐dose insulin therapy. For 19 years, an accurate diagnosis was not made. We performed direct sequencing of the insulin receptor gene and exons 11–16 of the PIK3R1 gene, identifying a c.1957A>T mutation (p.Lys653*) in the PIK3R1 gene, which confirmed a diagnosis of SHORT syndrome. Suspecting SHORT syndrome in individuals who exhibit some of its typical symptoms may facilitate an accurate diagnosis and enable effective management of this condition.https://doi.org/10.1111/jdi.70088AdolescentInsulin resistanceIntrauterine growth restriction
spellingShingle Kumiko Tajima
Yushi Hirota
Tomofumi Takayoshi
Wataru Ogawa
A case of SHORT syndrome with a novel genetic mutation diagnosed 19 years after the onset of diabetes
Journal of Diabetes Investigation
Adolescent
Insulin resistance
Intrauterine growth restriction
title A case of SHORT syndrome with a novel genetic mutation diagnosed 19 years after the onset of diabetes
title_full A case of SHORT syndrome with a novel genetic mutation diagnosed 19 years after the onset of diabetes
title_fullStr A case of SHORT syndrome with a novel genetic mutation diagnosed 19 years after the onset of diabetes
title_full_unstemmed A case of SHORT syndrome with a novel genetic mutation diagnosed 19 years after the onset of diabetes
title_short A case of SHORT syndrome with a novel genetic mutation diagnosed 19 years after the onset of diabetes
title_sort case of short syndrome with a novel genetic mutation diagnosed 19 years after the onset of diabetes
topic Adolescent
Insulin resistance
Intrauterine growth restriction
url https://doi.org/10.1111/jdi.70088
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