Expert advice from ResearchMatch volunteers: Recruitment Innovation Center use cases and innovation
Involving participants in the design of clinical trials should improve the overall success of a study. For this to occur, streamlined mechanisms are needed to connect the populations potentially impacted by a given study or health topic with research teams in order to inform trial design in a meanin...
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| Format: | Article |
| Language: | English |
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Cambridge University Press
2025-01-01
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| Series: | Journal of Clinical and Translational Science |
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| Online Access: | https://www.cambridge.org/core/product/identifier/S2059866124006599/type/journal_article |
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| _version_ | 1841526341834375168 |
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| author | Maeve Tischbein Sarah K. Cook Cathy Shyr Katelyn Benhoff Amna Baig Kaysi Quarles Leslie R. Boone Loretta M. Byrne Mariela Rodriguez Terri Edwards Consuelo H. Wilkins Paul A. Harris |
| author_facet | Maeve Tischbein Sarah K. Cook Cathy Shyr Katelyn Benhoff Amna Baig Kaysi Quarles Leslie R. Boone Loretta M. Byrne Mariela Rodriguez Terri Edwards Consuelo H. Wilkins Paul A. Harris |
| author_sort | Maeve Tischbein |
| collection | DOAJ |
| description | Involving participants in the design of clinical trials should improve the overall success of a study. For this to occur, streamlined mechanisms are needed to connect the populations potentially impacted by a given study or health topic with research teams in order to inform trial design in a meaningful and timely manner. To address this need, we developed an innovative mechanism called the “ResearchMatch Expert Advice Tool” that quickly obtains volunteer perspectives from populations with specific health conditions or lived experiences using the national recruitment registry, ResearchMatch. This tool does not ask volunteers to participate in the trial but allows for wider community feedback to be gathered and translated into actionable recommendations used to inform the study’s design. We describe early use cases that shaped the current Expert Advice Tool workflow, how results from this tool were incorporated and implemented by studies, and feedback from volunteers and study teams regarding the tool’s usefulness. Additionally, we present a set of lessons learned during the development of the Expert Advice Tool that can be used by other recruitment registries seeking to obtain volunteer feedback on study design and operations. |
| format | Article |
| id | doaj-art-4ec31bc8fd03492396e14a3d6158fa7b |
| institution | Kabale University |
| issn | 2059-8661 |
| language | English |
| publishDate | 2025-01-01 |
| publisher | Cambridge University Press |
| record_format | Article |
| series | Journal of Clinical and Translational Science |
| spelling | doaj-art-4ec31bc8fd03492396e14a3d6158fa7b2025-01-16T21:53:23ZengCambridge University PressJournal of Clinical and Translational Science2059-86612025-01-01810.1017/cts.2024.659Expert advice from ResearchMatch volunteers: Recruitment Innovation Center use cases and innovationMaeve Tischbein0https://orcid.org/0000-0003-1192-0673Sarah K. Cook1https://orcid.org/0000-0002-4906-7084Cathy Shyr2Katelyn Benhoff3Amna Baig4Kaysi Quarles5Leslie R. Boone6Loretta M. Byrne7https://orcid.org/0000-0003-0009-1144Mariela Rodriguez8Terri Edwards9Consuelo H. Wilkins10Paul A. Harris11https://orcid.org/0000-0002-1744-2011Vanderbilt Institute for Clinical and Translational Research, Vanderbilt University Medical Center, Nashville, TN, USAVanderbilt Institute for Clinical and Translational Research, Vanderbilt University Medical Center, Nashville, TN, USADepartment of Biomedical Informatics, Vanderbilt University Medical Center, Nashville, TN, USAVanderbilt Institute for Clinical and Translational Research, Vanderbilt University Medical Center, Nashville, TN, USAVanderbilt Institute for Clinical and Translational Research, Vanderbilt University Medical Center, Nashville, TN, USAVanderbilt Institute for Clinical and Translational Research, Vanderbilt University Medical Center, Nashville, TN, USAVanderbilt Institute for Clinical and Translational Research, Vanderbilt University Medical Center, Nashville, TN, USAVanderbilt Institute for Clinical and Translational Research, Vanderbilt University Medical Center, Nashville, TN, USAVanderbilt Institute for Clinical and Translational Research, Vanderbilt University Medical Center, Nashville, TN, USAVanderbilt Institute for Clinical and Translational Research, Vanderbilt University Medical Center, Nashville, TN, USAVanderbilt Institute for Clinical and Translational Research, Vanderbilt University Medical Center, Nashville, TN, USA Department of Medicine, Vanderbilt University Medical Center, Nashville, TN, USA Department of Internal Medicine, Meharry Medical College, Nashville, TN, USAVanderbilt Institute for Clinical and Translational Research, Vanderbilt University Medical Center, Nashville, TN, USA Department of Biomedical Informatics, Vanderbilt University Medical Center, Nashville, TN, USAInvolving participants in the design of clinical trials should improve the overall success of a study. For this to occur, streamlined mechanisms are needed to connect the populations potentially impacted by a given study or health topic with research teams in order to inform trial design in a meaningful and timely manner. To address this need, we developed an innovative mechanism called the “ResearchMatch Expert Advice Tool” that quickly obtains volunteer perspectives from populations with specific health conditions or lived experiences using the national recruitment registry, ResearchMatch. This tool does not ask volunteers to participate in the trial but allows for wider community feedback to be gathered and translated into actionable recommendations used to inform the study’s design. We describe early use cases that shaped the current Expert Advice Tool workflow, how results from this tool were incorporated and implemented by studies, and feedback from volunteers and study teams regarding the tool’s usefulness. Additionally, we present a set of lessons learned during the development of the Expert Advice Tool that can be used by other recruitment registries seeking to obtain volunteer feedback on study design and operations.https://www.cambridge.org/core/product/identifier/S2059866124006599/type/journal_articleParticipant engagementpatient engagementpatient and public involvementparticipant-centered researchstudy design |
| spellingShingle | Maeve Tischbein Sarah K. Cook Cathy Shyr Katelyn Benhoff Amna Baig Kaysi Quarles Leslie R. Boone Loretta M. Byrne Mariela Rodriguez Terri Edwards Consuelo H. Wilkins Paul A. Harris Expert advice from ResearchMatch volunteers: Recruitment Innovation Center use cases and innovation Journal of Clinical and Translational Science Participant engagement patient engagement patient and public involvement participant-centered research study design |
| title | Expert advice from ResearchMatch volunteers: Recruitment Innovation Center use cases and innovation |
| title_full | Expert advice from ResearchMatch volunteers: Recruitment Innovation Center use cases and innovation |
| title_fullStr | Expert advice from ResearchMatch volunteers: Recruitment Innovation Center use cases and innovation |
| title_full_unstemmed | Expert advice from ResearchMatch volunteers: Recruitment Innovation Center use cases and innovation |
| title_short | Expert advice from ResearchMatch volunteers: Recruitment Innovation Center use cases and innovation |
| title_sort | expert advice from researchmatch volunteers recruitment innovation center use cases and innovation |
| topic | Participant engagement patient engagement patient and public involvement participant-centered research study design |
| url | https://www.cambridge.org/core/product/identifier/S2059866124006599/type/journal_article |
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