Cystic and emphysematous lung disease in neurofibromatosis type 1 – A case report

Neurofibromatosis type 1 (NF1) is a genetic disorder associated with an elevated risk of both benign and malignant tumors. In rare cases, it involves the lungs in a condition known as neurofibromatosis-associated diffuse lung disease (NF-DLD), marked by cystic and emphysematous changes even in nonsm...

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Main Authors: Nouman Aziz, MD, Waseem Nabi, MD, Sukhrob Makhkamov, DO, Ali Usama, MD, Yasmine Elsherif, MD, Sonu Sahni, MD
Format: Article
Language:English
Published: Elsevier 2025-09-01
Series:Radiology Case Reports
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Online Access:http://www.sciencedirect.com/science/article/pii/S1930043325005886
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author Nouman Aziz, MD
Waseem Nabi, MD
Sukhrob Makhkamov, DO
Ali Usama, MD
Yasmine Elsherif, MD
Sonu Sahni, MD
author_facet Nouman Aziz, MD
Waseem Nabi, MD
Sukhrob Makhkamov, DO
Ali Usama, MD
Yasmine Elsherif, MD
Sonu Sahni, MD
author_sort Nouman Aziz, MD
collection DOAJ
description Neurofibromatosis type 1 (NF1) is a genetic disorder associated with an elevated risk of both benign and malignant tumors. In rare cases, it involves the lungs in a condition known as neurofibromatosis-associated diffuse lung disease (NF-DLD), marked by cystic and emphysematous changes even in nonsmokers. We report a case of a 53-year-old female with NF1 who presented with progressive chest pain and dyspnea. Imaging revealed a 6.0 × 3.1 cm left posterior chest wall mass with osseous erosion and emphysematous lung changes consistent with NF-DLD. Multidisciplinary management, including surgical resection of the chest wall mass, led to symptom relief and an uneventful recovery. This case underscores the importance of recognizing NF-DLD in NF1 patients with respiratory symptoms and the need for ongoing surveillance for malignancies to ensure early diagnosis and appropriate intervention.
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spelling doaj-art-4dd34f820a014092bd49fc203f2efbb62025-08-20T03:17:02ZengElsevierRadiology Case Reports1930-04332025-09-012094860486410.1016/j.radcr.2025.06.044Cystic and emphysematous lung disease in neurofibromatosis type 1 – A case reportNouman Aziz, MD0Waseem Nabi, MD1Sukhrob Makhkamov, DO2Ali Usama, MD3Yasmine Elsherif, MD4Sonu Sahni, MD5Department of Medicine, Wyckoff Heights Medical Center, Brooklyn, NY, USA; Corresponding author.Department of Medicine, Wyckoff Heights Medical Center, Brooklyn, NY, USARocky Vista University College of Osteopathic Medicine, 8401 S Chambers Rd, Englewood, CO, 80112 USARocky Vista University College of Osteopathic Medicine, 8401 S Chambers Rd, Englewood, CO, 80112 USADepartment of Medicine, Zayed Military Hospital, Abu Dhabi, UAEDepartment of Medicine, Wyckoff Heights Medical Center, Brooklyn, NY, USANeurofibromatosis type 1 (NF1) is a genetic disorder associated with an elevated risk of both benign and malignant tumors. In rare cases, it involves the lungs in a condition known as neurofibromatosis-associated diffuse lung disease (NF-DLD), marked by cystic and emphysematous changes even in nonsmokers. We report a case of a 53-year-old female with NF1 who presented with progressive chest pain and dyspnea. Imaging revealed a 6.0 × 3.1 cm left posterior chest wall mass with osseous erosion and emphysematous lung changes consistent with NF-DLD. Multidisciplinary management, including surgical resection of the chest wall mass, led to symptom relief and an uneventful recovery. This case underscores the importance of recognizing NF-DLD in NF1 patients with respiratory symptoms and the need for ongoing surveillance for malignancies to ensure early diagnosis and appropriate intervention.http://www.sciencedirect.com/science/article/pii/S1930043325005886Neurofibromatosis type 1NF-DLDCystic lung diseaseEmphysemaAdenocarcinomaCase report
spellingShingle Nouman Aziz, MD
Waseem Nabi, MD
Sukhrob Makhkamov, DO
Ali Usama, MD
Yasmine Elsherif, MD
Sonu Sahni, MD
Cystic and emphysematous lung disease in neurofibromatosis type 1 – A case report
Radiology Case Reports
Neurofibromatosis type 1
NF-DLD
Cystic lung disease
Emphysema
Adenocarcinoma
Case report
title Cystic and emphysematous lung disease in neurofibromatosis type 1 – A case report
title_full Cystic and emphysematous lung disease in neurofibromatosis type 1 – A case report
title_fullStr Cystic and emphysematous lung disease in neurofibromatosis type 1 – A case report
title_full_unstemmed Cystic and emphysematous lung disease in neurofibromatosis type 1 – A case report
title_short Cystic and emphysematous lung disease in neurofibromatosis type 1 – A case report
title_sort cystic and emphysematous lung disease in neurofibromatosis type 1 a case report
topic Neurofibromatosis type 1
NF-DLD
Cystic lung disease
Emphysema
Adenocarcinoma
Case report
url http://www.sciencedirect.com/science/article/pii/S1930043325005886
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