Development of a standard set of key work-related outcomes for use in practice for patients with cardiovascular disease: a modified Delphi study
Abstract Background To facilitate the maintenance or resumption of participation in work for patients with cardiovascular disease (CVD), there is a need for high-quality work-focused healthcare. According to the concept of value-based healthcare, quality of care can be enhanced by understanding the...
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| Format: | Article |
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SpringerOpen
2024-12-01
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| Series: | Journal of Patient-Reported Outcomes |
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| Online Access: | https://doi.org/10.1186/s41687-024-00825-6 |
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| author | Marije E. Hagendijk Nina Zipfel Jan L. Hoving Marijke Melles Philip J. van der Wees Sylvia J. van der Burg-Vermeulen |
| author_facet | Marije E. Hagendijk Nina Zipfel Jan L. Hoving Marijke Melles Philip J. van der Wees Sylvia J. van der Burg-Vermeulen |
| author_sort | Marije E. Hagendijk |
| collection | DOAJ |
| description | Abstract Background To facilitate the maintenance or resumption of participation in work for patients with cardiovascular disease (CVD), there is a need for high-quality work-focused healthcare. According to the concept of value-based healthcare, quality of care can be enhanced by understanding the outcomes that matter most to patients. However, a major challenge in assessing quality of work-focused healthcare in practice is the lack of consensus on which work-related outcomes should be measured. Objective The objective of this study was to identify a standard set of key work-related outcomes for patients with CVD to be used in practice of work-focused healthcare in the Netherlands, including standardised outcome measures and associated case mix factors. This standard set is intended to assist occupational and other health professionals in delivering work-focused healthcare that meets a patient’s individual needs regarding work participation, and to enhance patients’ engagement in their own work-focused care process. Methods A 2-round RAND-modified Delphi process was conducted. The process included literature searches, consecutive research team meetings, and several meetings and rounds of voting by a working group. The working group consisted of patients with CVD (n = 6) and health professionals representing different stakeholders (n = 11) involved in work-focused healthcare for this patient population in the Netherlands. Consensus was reached over four phases: (1) establishing the scope of the standard set and defining the population, (2) prioritising and defining the outcome domains, (3) selecting the outcome measures for the most important domains, including clinical data and patient-reported data, and (4) selecting and defining case mix factors. Results A 23-item patient-reported questionnaire was developed, called the Value@WORK-Q23, including questions on nine work-related outcome domains considered most important for patients with CVD: (1) work participation, (2) physical work ability, (3) mental work ability, (4) suitable work, (5) support from the work environment, (6) flexibility of the work environment, (7) communication with the patient, (8) person-centredness, and (9) interdisciplinary communication. In addition, nine case mix variables was selected, comprising demographic-, disease-, and work factors. Conclusions The Value@WORK-Q23 provides guidance on measuring the most important work-related outcomes for patients with CVD. Using this work-related set in practice, in addition to existing disease-specific standard sets for CVD may facilitate the provision of high-value work-focused healthcare for this patient population. |
| format | Article |
| id | doaj-art-4db04398ba5d43f2b08403d75da20b2a |
| institution | OA Journals |
| issn | 2509-8020 |
| language | English |
| publishDate | 2024-12-01 |
| publisher | SpringerOpen |
| record_format | Article |
| series | Journal of Patient-Reported Outcomes |
| spelling | doaj-art-4db04398ba5d43f2b08403d75da20b2a2025-08-20T02:31:38ZengSpringerOpenJournal of Patient-Reported Outcomes2509-80202024-12-018111410.1186/s41687-024-00825-6Development of a standard set of key work-related outcomes for use in practice for patients with cardiovascular disease: a modified Delphi studyMarije E. Hagendijk0Nina Zipfel1Jan L. Hoving2Marijke Melles3Philip J. van der Wees4Sylvia J. van der Burg-Vermeulen5Department of Public and Occupational Health, Coronel Institute of Occupational Health, Amsterdam Public Health Research Institute, Amsterdam UMC Location University of AmsterdamDepartment of Public and Occupational Health, Coronel Institute of Occupational Health, Amsterdam Public Health Research Institute, Amsterdam UMC Location University of AmsterdamDepartment of Public and Occupational Health, Coronel Institute of Occupational Health, Amsterdam Public Health Research Institute, Amsterdam UMC Location University of AmsterdamFaculty of Industrial Design Engineering, Delft University of TechnologyScientific Institute for Quality of Healthcare (IQ Healthcare), Radboud University Medical CentreDepartment of Public and Occupational Health, Coronel Institute of Occupational Health, Amsterdam Public Health Research Institute, Amsterdam UMC Location University of AmsterdamAbstract Background To facilitate the maintenance or resumption of participation in work for patients with cardiovascular disease (CVD), there is a need for high-quality work-focused healthcare. According to the concept of value-based healthcare, quality of care can be enhanced by understanding the outcomes that matter most to patients. However, a major challenge in assessing quality of work-focused healthcare in practice is the lack of consensus on which work-related outcomes should be measured. Objective The objective of this study was to identify a standard set of key work-related outcomes for patients with CVD to be used in practice of work-focused healthcare in the Netherlands, including standardised outcome measures and associated case mix factors. This standard set is intended to assist occupational and other health professionals in delivering work-focused healthcare that meets a patient’s individual needs regarding work participation, and to enhance patients’ engagement in their own work-focused care process. Methods A 2-round RAND-modified Delphi process was conducted. The process included literature searches, consecutive research team meetings, and several meetings and rounds of voting by a working group. The working group consisted of patients with CVD (n = 6) and health professionals representing different stakeholders (n = 11) involved in work-focused healthcare for this patient population in the Netherlands. Consensus was reached over four phases: (1) establishing the scope of the standard set and defining the population, (2) prioritising and defining the outcome domains, (3) selecting the outcome measures for the most important domains, including clinical data and patient-reported data, and (4) selecting and defining case mix factors. Results A 23-item patient-reported questionnaire was developed, called the Value@WORK-Q23, including questions on nine work-related outcome domains considered most important for patients with CVD: (1) work participation, (2) physical work ability, (3) mental work ability, (4) suitable work, (5) support from the work environment, (6) flexibility of the work environment, (7) communication with the patient, (8) person-centredness, and (9) interdisciplinary communication. In addition, nine case mix variables was selected, comprising demographic-, disease-, and work factors. Conclusions The Value@WORK-Q23 provides guidance on measuring the most important work-related outcomes for patients with CVD. Using this work-related set in practice, in addition to existing disease-specific standard sets for CVD may facilitate the provision of high-value work-focused healthcare for this patient population.https://doi.org/10.1186/s41687-024-00825-6Patient-reported outcome measuresValue-based healthcareCardiovascular diseasesOccupational healthWork engagementPatient-centred care |
| spellingShingle | Marije E. Hagendijk Nina Zipfel Jan L. Hoving Marijke Melles Philip J. van der Wees Sylvia J. van der Burg-Vermeulen Development of a standard set of key work-related outcomes for use in practice for patients with cardiovascular disease: a modified Delphi study Journal of Patient-Reported Outcomes Patient-reported outcome measures Value-based healthcare Cardiovascular diseases Occupational health Work engagement Patient-centred care |
| title | Development of a standard set of key work-related outcomes for use in practice for patients with cardiovascular disease: a modified Delphi study |
| title_full | Development of a standard set of key work-related outcomes for use in practice for patients with cardiovascular disease: a modified Delphi study |
| title_fullStr | Development of a standard set of key work-related outcomes for use in practice for patients with cardiovascular disease: a modified Delphi study |
| title_full_unstemmed | Development of a standard set of key work-related outcomes for use in practice for patients with cardiovascular disease: a modified Delphi study |
| title_short | Development of a standard set of key work-related outcomes for use in practice for patients with cardiovascular disease: a modified Delphi study |
| title_sort | development of a standard set of key work related outcomes for use in practice for patients with cardiovascular disease a modified delphi study |
| topic | Patient-reported outcome measures Value-based healthcare Cardiovascular diseases Occupational health Work engagement Patient-centred care |
| url | https://doi.org/10.1186/s41687-024-00825-6 |
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