Global and regional disparities in access to specialist sarcoma services

Aims: Cancer care guidelines have been developed in many subspecialities, usually in advanced health systems. However, there are notable global disparities in healthcare access, which can impact sarcoma care. Unfortunately, there is a lack of global data on this subject. Our aim was to describe acc...

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Main Authors: Tomas Zamora, Eduardo Botello, Thomas Jenkins, Charlotte Jeys, Minna Laitinen, Ajay Puri, Lee Jeys, On behalf of the BOOM consensus meeting participants
Format: Article
Language:English
Published: The British Editorial Society of Bone & Joint Surgery 2025-04-01
Series:Bone & Joint Open
Subjects:
Online Access:https://online.boneandjoint.org.uk/doi/epdf/10.1302/2633-1462.64.BJO-2024-0208.R1
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author Tomas Zamora
Eduardo Botello
Thomas Jenkins
Charlotte Jeys
Minna Laitinen
Ajay Puri
Lee Jeys
On behalf of the BOOM consensus meeting participants
author_facet Tomas Zamora
Eduardo Botello
Thomas Jenkins
Charlotte Jeys
Minna Laitinen
Ajay Puri
Lee Jeys
On behalf of the BOOM consensus meeting participants
author_sort Tomas Zamora
collection DOAJ
description Aims: Cancer care guidelines have been developed in many subspecialities, usually in advanced health systems. However, there are notable global disparities in healthcare access, which can impact sarcoma care. Unfortunately, there is a lack of global data on this subject. Our aim was to describe access to sarcoma care based on a comprehensive global survey among orthopaedic oncologists, and assess for global as well as regional differences. Methods: A 25-question survey was emailed to the attendees of the 2024 Birmingham Orthopaedic Oncology Meeting and included questions about the respondents’ training and practice, access to sarcoma centres, and specific items for sarcoma diagnosis and treatment. For data analysis and comparison, countries were grouped geographically and per the World Bank’s income classification. Results: A total of 192 specialists from 47 countries completed the survey (67%). Overall, 40% declared that most patients in their country were treated in a specialized sarcoma centre. Declared access to specific diagnostic technology ranged from 69% (translocation studies) to 86% (various immunohistochemistry). Only 31% stated having access to proton therapy and 82% to all possible reconstruction methods. Compromise of ideal surgical management because of prior treatments and financial constraints was declared to have happened regularly in 40% and 17% of practices, respectively. Regions with better-developed healthcare systems had improved access to all aspects surveyed. Similar results were observed when comparing high-income countries against low- to middle-income countries. Conclusion: Our study highlights substantial global and regional disparities in access to sarcoma services, which could potentially impact clinical outcomes. Further studies are needed to clarify this reality. Cite this article: Bone Jt Open 2025;6(4):425–431.
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spelling doaj-art-4b8b45a9f5cf41a7a12984195b41eb6d2025-08-20T02:19:57ZengThe British Editorial Society of Bone & Joint SurgeryBone & Joint Open2633-14622025-04-016442543110.1302/2633-1462.64.BJO-2024-0208.R1Global and regional disparities in access to specialist sarcoma servicesTomas Zamora0Eduardo Botello1Thomas Jenkins2Charlotte Jeys3Minna Laitinen4Ajay Puri5Lee Jeys6On behalf of the BOOM consensus meeting participantsPontificia Universidad Catolica de Chile, Santiago, ChilePontificia Universidad Catolica de Chile, Santiago, ChileUniversity of Bristol, Bristol, UKUniversity of Bristol, Bristol, UKDepartment of Orthopedics and Traumatology, Helsinki University Central Hospital, University of Helsinki, Helsinki, FinlandHomi Bhabha National Institute, Tata Memorial Hospital, Mumbai, IndiaRoyal Orthopaedic Hospital, Birmingham, UKAims: Cancer care guidelines have been developed in many subspecialities, usually in advanced health systems. However, there are notable global disparities in healthcare access, which can impact sarcoma care. Unfortunately, there is a lack of global data on this subject. Our aim was to describe access to sarcoma care based on a comprehensive global survey among orthopaedic oncologists, and assess for global as well as regional differences. Methods: A 25-question survey was emailed to the attendees of the 2024 Birmingham Orthopaedic Oncology Meeting and included questions about the respondents’ training and practice, access to sarcoma centres, and specific items for sarcoma diagnosis and treatment. For data analysis and comparison, countries were grouped geographically and per the World Bank’s income classification. Results: A total of 192 specialists from 47 countries completed the survey (67%). Overall, 40% declared that most patients in their country were treated in a specialized sarcoma centre. Declared access to specific diagnostic technology ranged from 69% (translocation studies) to 86% (various immunohistochemistry). Only 31% stated having access to proton therapy and 82% to all possible reconstruction methods. Compromise of ideal surgical management because of prior treatments and financial constraints was declared to have happened regularly in 40% and 17% of practices, respectively. Regions with better-developed healthcare systems had improved access to all aspects surveyed. Similar results were observed when comparing high-income countries against low- to middle-income countries. Conclusion: Our study highlights substantial global and regional disparities in access to sarcoma services, which could potentially impact clinical outcomes. Further studies are needed to clarify this reality. Cite this article: Bone Jt Open 2025;6(4):425–431.https://online.boneandjoint.org.uk/doi/epdf/10.1302/2633-1462.64.BJO-2024-0208.R1sarcomabone neoplasmssoft-tissue neoplasmshealth inequitiessarcomasoncologyorthopaedic oncologistsproton therapyimmunohistochemistryclinical outcomescancerspositron emission tomographymalignant tumoursphysicians
spellingShingle Tomas Zamora
Eduardo Botello
Thomas Jenkins
Charlotte Jeys
Minna Laitinen
Ajay Puri
Lee Jeys
On behalf of the BOOM consensus meeting participants
Global and regional disparities in access to specialist sarcoma services
Bone & Joint Open
sarcoma
bone neoplasms
soft-tissue neoplasms
health inequities
sarcomas
oncology
orthopaedic oncologists
proton therapy
immunohistochemistry
clinical outcomes
cancers
positron emission tomography
malignant tumours
physicians
title Global and regional disparities in access to specialist sarcoma services
title_full Global and regional disparities in access to specialist sarcoma services
title_fullStr Global and regional disparities in access to specialist sarcoma services
title_full_unstemmed Global and regional disparities in access to specialist sarcoma services
title_short Global and regional disparities in access to specialist sarcoma services
title_sort global and regional disparities in access to specialist sarcoma services
topic sarcoma
bone neoplasms
soft-tissue neoplasms
health inequities
sarcomas
oncology
orthopaedic oncologists
proton therapy
immunohistochemistry
clinical outcomes
cancers
positron emission tomography
malignant tumours
physicians
url https://online.boneandjoint.org.uk/doi/epdf/10.1302/2633-1462.64.BJO-2024-0208.R1
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