Care coordination for people living with serious mental illness: understanding the caregiver's perspective

Care coordination for people living with serious mental illness: understanding the caregiver's perspective

IntroductionFamily caregivers of people living with serious mental illness such as bipolar disorder, psychosis and schizophrenia, are continuously burdened with caregiving, following the complexities of navigating the mental health system for their loved ones. The aim of the study was to understand...

Full description

Saved in:

Bibliographic Details
Main Authors:	Pamela Obegu, Kayla Nicholls, Mary Alberti
Format:	Article
Language:	English
Published:	Frontiers Media S.A. 2025-01-01
Series:	Frontiers in Health Services
Subjects:	family caregivers caregivers' support serious mental illness care coordination system navigation collaborative care
Online Access:	https://www.frontiersin.org/articles/10.3389/frhs.2024.1473235/full
Tags:	Add Tag No Tags, Be the first to tag this record!

Similar Items

Factors Associated with Caregiver Burden in Families of Patients with Palliative and Chronic Illness: A Cross-Sectional Study
by: Haroen H, et al.
Published: (2025-07-01)

Effectiveness of transitional care interventions in patients with serious illness and their caregivers: a systematic review and metanalysis of randomized controlled trial
by: Marco Di Nitto, et al.
Published: (2025-05-01)

Time to Develop Guidelines for Spiritual Care in Serious Illness
by: Shelley E. Varner-Perez, et al.
Published: (2024-10-01)

Healthcare providers’ experiences of community-based collaborative care for serious mental illness: a qualitative study in two integrated clinics in South Africa
by: Saira Abdulla, et al.
Published: (2025-01-01)

Family caregivers coping with terminality during home care
by: Stefanie Griebeler Oliveira, et al.
Published: (2013-06-01)

Caregivers’ understanding of mental illness and their experience in caring for mentally ill individuals: A qualitative study among caregivers in Tanzania
by: Olav Johannes Hovland, et al.
Published: (2025-01-01)

Life transition stages of family caregivers for patients with chronic illness: A grounded theory study
by: Norfaezah Md Khalid, et al.
Published: (2025-08-01)

Mapping the Gaps: A Scoping Review of Virtual Care Solutions for Caregivers of Children with Chronic Illnesses
by: Nicole Pope, et al.
Published: (2025-01-01)

Analysis of the concept of caregiver role strain in informal caregivers: an approach according to Meleis
by: Bárbara Ebilizarda Coutinho Borges, et al.
Published: (2025-04-01)

Assessment of caregiving burden among caregivers of older adults with stroke in Saudi Arabia: analytical cross-sectional study
by: Ala’a Alahmadi, et al.
Published: (2025-08-01)

Caregiver and care team perspectives of caregiver psychological distress and well-being during critical care hospitalization: a qualitative study
by: Amanda C. Blok, et al.
Published: (2025-03-01)

Effect of Continuous Care Model-based Intervention on the Care Burden of the Caregivers of Patients With Spinal Cord Injury
by: Ziba Sarcami, et al.
Published: (2024-04-01)

Caregiver Contribution to Self-Care of Chronic Illness Inventory: Evaluation of Measurement Properties in a Middle-Income Country
by: Sajmira Adëraj, et al.
Published: (2025-01-01)

Home Caregivers of Elderly People: Perceptions and Quality of Life
by: Luís Eduardo Genaro, et al.
Published: (2025-04-01)

“Blood is thicker than water” - experiences and perspectives of family caregivers of people living with severe mental illness at Holy Water traditional healing sites, Addis Ababa, Ethiopia
by: Yonas Baheretibeb, et al.
Published: (2025-02-01)

Exploring peer education for migrant informal caregivers of mentally ill loved ones: a realist evaluation protocol
by: Malin Hollaar, et al.
Published: (2025-08-01)

The needs of family members caring for people living with mental illness: An integrated review
by: Keletwaetse Sakwape, et al.
Published: (2025-04-01)

Developing the <i>Understanding Palliative Care</i> Module: A Quality Improvement Initiative Incorporating Public, Patient, and Family Caregiver Perspectives
by: Patricia Biondo, et al.
Published: (2025-04-01)

Hospital-to-home transitional care as support for older adult’s caregivers: a scoping review
by: Lélia Mendes Sobrinho de Oliveira, et al.
Published: (2025-04-01)

Strengthening the Delivery of Physical Healthcare for Adults Living With Serious Mental Illness – A Qualitative Description of Patient and Family Member Perspectives
by: Munazzah Ambreen, et al.
Published: (2025-04-01)

Enhancing care service utilization and reducing burden: the role of needs assessments for dementia caregivers in long-term care
by: Yung-Yu Su, et al.
Published: (2025-08-01)

Improving the oncology care pathway through the experience of patients and their caregiver
by: Stéphanie Gentile, et al.
Published: (2025-07-01)

Net worth of adults approaching retirement age: Personal health, presence of a chronically ill or disabled household member, and out of home caregiving
by: Patricia Patty Stoddard Dare, et al.
Published: (2023-04-01)

Impact of dual caregiving on well-being and loneliness among ever-married women in Japan: A pre- and post-COVID-19 pandemic comparison
by: Makiko Kawabe, et al.
Published: (2024-12-01)

Caregiving burdens of task time and task difficulty among paid and unpaid caregivers of persons living with dementia
by: Matthew Lee Smith, et al.
Published: (2025-07-01)

Use of Nursing Support Among Nurses for Caregiver Burden in Family Caregivers of Terminally Ill Patients with Cancer in Palliative Care Units in Japan: Multisite Cross-Sectional Study
by: Kohei Kajiwara, et al.
Published: (2024-10-01)

Queer caregiving with older adults: A scoping review of the lived experiences of LGBTQ+ family and friend caregivers
by: Steven Hall, et al.
Published: (2025-01-01)

How digital health risks recreating the isolation it aims to solve for people with serious mental illness
by: Waseem Jerjes, et al.
Published: (2025-08-01)

Care-related quality of life and care burden among caregivers of elderly trauma patients
by: Minoo Arjmand, et al.
Published: (2025-08-01)

Development and validation of an index system for caregiving capacity of family caregivers in caring for older adults with disabilities at home: a Delphi and Analytic Hierarchy Process
by: Shujing Suo, et al.
Published: (2025-07-01)

Development of Home Care Guidelines for the Caregivers of the Patients Being Discharged with Spinal Cord Injury
by: Navdeep Kaur, et al.
Published: (2015-12-01)

Association Between Caregiver Strain and Self‐Care Among Caregivers With Hypertension: Findings From the REGARDS Study
by: Asia Gobourne, et al.
Published: (2024-08-01)

Comfort of formal and informal caregivers to palliative care patients in primary health care
by: Silmara Meneguin, et al.
Published: (2016-12-01)

Comfort of formal and informal caregivers to palliative care patients in primary health care
by: Silmara Meneguin, et al.
Published: (2016-12-01)

Psychometric properties of Psychosocial Inventory for Caregivers (PIC) scale
by: Abhijeet Singh, et al.
Published: (2023-03-01)

Understanding the Unmet Needs, Experiences, and Perspectives of COPD Caregivers: A Scoping Review
by: Saba Gholami, et al.
Published: (2025-12-01)

Family Caregiving as Health Work
by: Mary Rita Holland
Published: (2025-07-01)

Perceptions and needs of patients, caregivers and health professionals regarding an oncology community center: a qualitative study
by: Inbal Mitnik, et al.
Published: (2025-06-01)

Characteristics of child development in the context of serious illness: a scoping review
by: Anne van Driessche, et al.
Published: (2025-05-01)

Validation and reliability assessment of the Persian Adaptation of the Interprofessional Team Collaboration Scale II (P-AITCS-II) for Iranian healthcare providers
by: Roohangiz Norouzinia, et al.
Published: (2025-01-01)