Engaging Patients with Headache in the Veterans Health Administration (VHA): ACTIvated Veterans Engagement Group (ACTIVE) to Improve Delivery of Patient-Centered Headache Services

In 2018, the Veterans Health Administration (VHA) established the original 19 Headache Centers of Excellence (HCoE) program, and an evaluation center. This study utilized a Veteran engagement group method to elicit input from Veteran patients living with chronic headache on daily needs, social deter...

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Main Authors: Olivia M. Datre BA, Sean A. Baird MA, Hayley M. Lindsey BA, Roberta E. Goldman PhD, Jason J. Sico MD, Teresa M. Damush PhD
Format: Article
Language:English
Published: SAGE Publishing 2025-01-01
Series:Journal of Patient Experience
Online Access:https://doi.org/10.1177/23743735251314621
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author Olivia M. Datre BA
Sean A. Baird MA
Hayley M. Lindsey BA
Roberta E. Goldman PhD
Jason J. Sico MD
Teresa M. Damush PhD
author_facet Olivia M. Datre BA
Sean A. Baird MA
Hayley M. Lindsey BA
Roberta E. Goldman PhD
Jason J. Sico MD
Teresa M. Damush PhD
author_sort Olivia M. Datre BA
collection DOAJ
description In 2018, the Veterans Health Administration (VHA) established the original 19 Headache Centers of Excellence (HCoE) program, and an evaluation center. This study utilized a Veteran engagement group method to elicit input from Veteran patients living with chronic headache on daily needs, social determinants of health, and preferences and suggestions for headache programs, services, and research priorities. Four engagement groups were conducted between July 13 th and August 22 nd of 2022 with Veterans who experience headache and received care at a VHA HCoE. Engagement groups were audio-recorded, de-identified, transcribed, and analyzed using rapid qualitative content matrix analysis. Participants also completed a baseline survey on demographics, technology use, headache history, and health. Patients perceived care coordination, social support, gender specific preferences and access to complementary and integrative therapies to be important aspects of headache care delivered by HCoEs. Participants expressed strong interest in effective, interactive peer support groups to share and learn from each other's experiences with headaches and treatments. Findings underscore the demand for coordinated, interdisciplinary headache care integrating complementary health approaches and addressing gender-specific needs.
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institution Kabale University
issn 2374-3743
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publishDate 2025-01-01
publisher SAGE Publishing
record_format Article
series Journal of Patient Experience
spelling doaj-art-48e725b2974841059309044ab22d67b92025-01-23T15:04:11ZengSAGE PublishingJournal of Patient Experience2374-37432025-01-011210.1177/23743735251314621Engaging Patients with Headache in the Veterans Health Administration (VHA): ACTIvated Veterans Engagement Group (ACTIVE) to Improve Delivery of Patient-Centered Headache ServicesOlivia M. Datre BA0Sean A. Baird MA1 Hayley M. Lindsey BA2Roberta E. Goldman PhD3Jason J. Sico MD4Teresa M. Damush PhD5 Department of Neurology, , New Haven, CT, USA VA Health Services Center for Health Information and Communications, , Indianapolis, IN, USA Department of Neurology, , New Haven, CT, USA , Boston, MA USA Clinical Epidemiology Research Center (CERC), , West Haven, CT, USA , Indianapolis, IN, USAIn 2018, the Veterans Health Administration (VHA) established the original 19 Headache Centers of Excellence (HCoE) program, and an evaluation center. This study utilized a Veteran engagement group method to elicit input from Veteran patients living with chronic headache on daily needs, social determinants of health, and preferences and suggestions for headache programs, services, and research priorities. Four engagement groups were conducted between July 13 th and August 22 nd of 2022 with Veterans who experience headache and received care at a VHA HCoE. Engagement groups were audio-recorded, de-identified, transcribed, and analyzed using rapid qualitative content matrix analysis. Participants also completed a baseline survey on demographics, technology use, headache history, and health. Patients perceived care coordination, social support, gender specific preferences and access to complementary and integrative therapies to be important aspects of headache care delivered by HCoEs. Participants expressed strong interest in effective, interactive peer support groups to share and learn from each other's experiences with headaches and treatments. Findings underscore the demand for coordinated, interdisciplinary headache care integrating complementary health approaches and addressing gender-specific needs.https://doi.org/10.1177/23743735251314621
spellingShingle Olivia M. Datre BA
Sean A. Baird MA
Hayley M. Lindsey BA
Roberta E. Goldman PhD
Jason J. Sico MD
Teresa M. Damush PhD
Engaging Patients with Headache in the Veterans Health Administration (VHA): ACTIvated Veterans Engagement Group (ACTIVE) to Improve Delivery of Patient-Centered Headache Services
Journal of Patient Experience
title Engaging Patients with Headache in the Veterans Health Administration (VHA): ACTIvated Veterans Engagement Group (ACTIVE) to Improve Delivery of Patient-Centered Headache Services
title_full Engaging Patients with Headache in the Veterans Health Administration (VHA): ACTIvated Veterans Engagement Group (ACTIVE) to Improve Delivery of Patient-Centered Headache Services
title_fullStr Engaging Patients with Headache in the Veterans Health Administration (VHA): ACTIvated Veterans Engagement Group (ACTIVE) to Improve Delivery of Patient-Centered Headache Services
title_full_unstemmed Engaging Patients with Headache in the Veterans Health Administration (VHA): ACTIvated Veterans Engagement Group (ACTIVE) to Improve Delivery of Patient-Centered Headache Services
title_short Engaging Patients with Headache in the Veterans Health Administration (VHA): ACTIvated Veterans Engagement Group (ACTIVE) to Improve Delivery of Patient-Centered Headache Services
title_sort engaging patients with headache in the veterans health administration vha activated veterans engagement group active to improve delivery of patient centered headache services
url https://doi.org/10.1177/23743735251314621
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