PARENTAL PERCEPTION OF QUALITY OF LIFE IN CHILDREN WITH NEURODEVELOPMENTAL DISORDERS – ALBANIAN EXPERIENCE
Objectives. The aim of this study is to investigate the Quality of Life in children with neurodevelopmental disorders aged 3-6 years old through the perspective of their parents. Material and methods. A cross-sectional descriptive study was conducted. The Kiddy-KINDLR parents’ version questionnaire...
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| Main Authors: | , , |
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| Format: | Article |
| Language: | English |
| Published: |
“Francisc I. Rainer” Anthropology Institute of the Romanian Academy.
2025-04-01
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| Series: | Anthropological Researches and Studies |
| Subjects: | |
| Online Access: | https://www.journalstudiesanthropology.ro/en/parental-perception-of-quality-of-life-in-children-with-neurodevelopmental-disorders-albanian-experience/ |
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| Summary: | Objectives. The aim of this study is to investigate the Quality of Life in children with neurodevelopmental disorders aged 3-6 years old through the perspective of their parents.
Material and methods. A cross-sectional descriptive study was conducted. The Kiddy-KINDLR parents’ version questionnaire was administered to 80 parents of children with neurodevelopmental disorders for 3 months from January to March 2024 and also to a control group of 72 parents of children with typical development. The Kiddy-KINDLR questionnaire is divided into 6 main sub-scales, each investigating different dimensions of the global well-being during the past week: Physical well-being, Emotional Well-being, Self-esteem, Family, Friends, School, and an additional sub-scale with important questions regarding the general functioning. Statistical analysis of the data was carried out using the SPSS 22.
Results. Children were diagnosed with different neurodevelopmental disorders, most of them being (43%) diagnosed with autism spectrum disorder, 15% with ADHD, 19% with speech and language disorder, 21% with intellectual disability, and 3% with Spastic Cerebral Palsy. Data analysis showed a slightly statistically significant relationship between the children diagnosed with autism spectrum disorder and low levels of emotional well-being (p = 0.047), struggling at school, and facing difficulties with their peers (p = 0.048). Almost all of the children with neurodevelopmental disorders faced significant challenges in family interactions.
Conclusions. Assessment of Quality of Life in children with neurodevelopmental disorders can identify what is important to them and to their families and provide the initial information for the policymakers to assess their needs. |
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| ISSN: | 2360-3445 |