Developing peer-led recovery groups (PRIZE) for people with psychosis and their caregivers in a low resource South African setting
Aim: In South Africa and other low- and middle-income countries (LMIC), personal recovery for people with a severe mental health condition (SMHC) is hampered by lack of community-based support. This paper describes the development of a non-specialist and peer-facilitated recovery intervention (PRIZE...
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| Format: | Article |
| Language: | English |
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Elsevier
2024-12-01
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| Series: | SSM - Mental Health |
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| Online Access: | http://www.sciencedirect.com/science/article/pii/S2666560324000756 |
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| author | Carrie Brooke-Sumner Julie Repper Inge Petersen Charlotte Hanlon Bronwyn Myers Gill Faris Bongwekazi Rapiya Laura Asher |
| author_facet | Carrie Brooke-Sumner Julie Repper Inge Petersen Charlotte Hanlon Bronwyn Myers Gill Faris Bongwekazi Rapiya Laura Asher |
| author_sort | Carrie Brooke-Sumner |
| collection | DOAJ |
| description | Aim: In South Africa and other low- and middle-income countries (LMIC), personal recovery for people with a severe mental health condition (SMHC) is hampered by lack of community-based support. This paper describes the development of a non-specialist and peer-facilitated recovery intervention (PRIZE) intended as an adjunct to psychiatric care. Methods: Intervention development was guided by the MRC framework for complex interventions. Evidence review was followed by 43 in-depth interviews exploring desired recovery outcomes of people with lived experience and caregivers, and 15 interviews with service providers. Thematic analysis guided development of a theory of change and evaluation framework. District stakeholder mapping, engagement and feedback was undertaken to explore acceptability and feasibility of recovery groups facilitated by trained peers (people with lived experience of SMHC or carers). Results: Intervention components are described in line with the GUIDED framework. Formative work identified expressed recovery needs and led to a theory of change based on building self-esteem, reducing social isolation, and improving responses to financial instability, substance use and medication difficulties. The intervention was based on sharing experiences and coping strategies. It incorporated two phases of mutual support groups comprising people with SMHC and caregivers. An auxiliary social worker-led phase (9 weekly sessions) was followed by a supported peer-led phase (12 weekly sessions). The planned didactic psychosocial rehabilitation intervention evolved into an intervention designed to support individuals’ recovery journeys, grounded in values of building hope, opportunity and control, and harnessing strengths. This required training to realign the practice of auxiliary social workers accustomed to a traditional helping role towards an empowering role. Particular attention was given to processes for supportive supervision and mentorship. Conclusion: The involvement of district stakeholders and potential participants resulted in a tailored, context-specific intervention with potential to contribute to evidence for community-based, task-shared, peer-led and recovery-focused interventions in LMIC. |
| format | Article |
| id | doaj-art-489a2de071b34375837581aa5db7c68e |
| institution | OA Journals |
| issn | 2666-5603 |
| language | English |
| publishDate | 2024-12-01 |
| publisher | Elsevier |
| record_format | Article |
| series | SSM - Mental Health |
| spelling | doaj-art-489a2de071b34375837581aa5db7c68e2025-08-20T02:38:06ZengElsevierSSM - Mental Health2666-56032024-12-01610037010.1016/j.ssmmh.2024.100370Developing peer-led recovery groups (PRIZE) for people with psychosis and their caregivers in a low resource South African settingCarrie Brooke-Sumner0Julie Repper1Inge Petersen2Charlotte Hanlon3Bronwyn Myers4Gill Faris5Bongwekazi Rapiya6Laura Asher7Mental Health, Alcohol, Tobacco and Substance Use Research Unit, South African Medical Research Council, Francie Van Zijl Drive, Parow Valley, Cape Town, South Africa; Corresponding author.West London and St George's Mental Health NHS Trust, London, UK; Implementing Recovery through Organisational Change (ImROC), Nottingham, UKCentre for Rural Health, College of Health Sciences, University of KwaZulu-Natal, Durban, South AfricaCentre for Global Mental Health, Health Service and Population Research Department, Institute of Psychiatry, Psychology and Neuroscience, King's College London, London, UK; Addis Ababa University, College of Health Sciences, School of Medicine, Department of Psychiatry, Addis Ababa, EthiopiaMental Health, Alcohol, Tobacco and Substance Use Research Unit, South African Medical Research Council, Francie Van Zijl Drive, Parow Valley, Cape Town, South Africa; Curtin Enable Institute, Curtin University, Western Australia, 6151, Australia; Department of Psychiatry and Mental Health, University of Cape Town, J-Block, Groote Schuur Hospital, Observatory, Cape Town, South AfricaCape Town, South AfricaMental Health, Alcohol, Tobacco and Substance Use Research Unit, South African Medical Research Council, Francie Van Zijl Drive, Parow Valley, Cape Town, South AfricaNottingham Centre for Public Health and Epidemiology, School of Medicine, University of Nottingham, Nottingham, UK; Institute of Mental Health, University of Nottingham, Nottingham, UKAim: In South Africa and other low- and middle-income countries (LMIC), personal recovery for people with a severe mental health condition (SMHC) is hampered by lack of community-based support. This paper describes the development of a non-specialist and peer-facilitated recovery intervention (PRIZE) intended as an adjunct to psychiatric care. Methods: Intervention development was guided by the MRC framework for complex interventions. Evidence review was followed by 43 in-depth interviews exploring desired recovery outcomes of people with lived experience and caregivers, and 15 interviews with service providers. Thematic analysis guided development of a theory of change and evaluation framework. District stakeholder mapping, engagement and feedback was undertaken to explore acceptability and feasibility of recovery groups facilitated by trained peers (people with lived experience of SMHC or carers). Results: Intervention components are described in line with the GUIDED framework. Formative work identified expressed recovery needs and led to a theory of change based on building self-esteem, reducing social isolation, and improving responses to financial instability, substance use and medication difficulties. The intervention was based on sharing experiences and coping strategies. It incorporated two phases of mutual support groups comprising people with SMHC and caregivers. An auxiliary social worker-led phase (9 weekly sessions) was followed by a supported peer-led phase (12 weekly sessions). The planned didactic psychosocial rehabilitation intervention evolved into an intervention designed to support individuals’ recovery journeys, grounded in values of building hope, opportunity and control, and harnessing strengths. This required training to realign the practice of auxiliary social workers accustomed to a traditional helping role towards an empowering role. Particular attention was given to processes for supportive supervision and mentorship. Conclusion: The involvement of district stakeholders and potential participants resulted in a tailored, context-specific intervention with potential to contribute to evidence for community-based, task-shared, peer-led and recovery-focused interventions in LMIC.http://www.sciencedirect.com/science/article/pii/S2666560324000756RecoveryPeerSevere mental health conditionCaregiverService userSocial worker |
| spellingShingle | Carrie Brooke-Sumner Julie Repper Inge Petersen Charlotte Hanlon Bronwyn Myers Gill Faris Bongwekazi Rapiya Laura Asher Developing peer-led recovery groups (PRIZE) for people with psychosis and their caregivers in a low resource South African setting SSM - Mental Health Recovery Peer Severe mental health condition Caregiver Service user Social worker |
| title | Developing peer-led recovery groups (PRIZE) for people with psychosis and their caregivers in a low resource South African setting |
| title_full | Developing peer-led recovery groups (PRIZE) for people with psychosis and their caregivers in a low resource South African setting |
| title_fullStr | Developing peer-led recovery groups (PRIZE) for people with psychosis and their caregivers in a low resource South African setting |
| title_full_unstemmed | Developing peer-led recovery groups (PRIZE) for people with psychosis and their caregivers in a low resource South African setting |
| title_short | Developing peer-led recovery groups (PRIZE) for people with psychosis and their caregivers in a low resource South African setting |
| title_sort | developing peer led recovery groups prize for people with psychosis and their caregivers in a low resource south african setting |
| topic | Recovery Peer Severe mental health condition Caregiver Service user Social worker |
| url | http://www.sciencedirect.com/science/article/pii/S2666560324000756 |
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