Development of a PROM to measure patient-centredness in chronic care consultations in primary care
Abstract Introduction Validated patient-reported outcome measures (PROMs) are crucial for assessing patients’ experiences in the healthcare system. Both clinically and theoretically, patient-centered consultations are essential in patient-care, and are often suggested as the optimal strategy in cari...
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BMC
2025-01-01
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| Series: | Health and Quality of Life Outcomes |
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| Online Access: | https://doi.org/10.1186/s12955-024-02327-x |
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| author | Anne Holm Anna Bernhardt Lyhnebeck Sussi Friis Buhl Kristine Bissenbakker Jette Kolding Kristensen Anne Møller Anders Prior Zaza Kamper-Jørgensen Sidsel Böcher Mads Aage Toft Kristensen Asger Waagepetersen Anders Hye Dalsgaard Volkert Siersma Ann Dorrit Guassora John Brandt Brodersen on behalf MM600 trial group |
| author_facet | Anne Holm Anna Bernhardt Lyhnebeck Sussi Friis Buhl Kristine Bissenbakker Jette Kolding Kristensen Anne Møller Anders Prior Zaza Kamper-Jørgensen Sidsel Böcher Mads Aage Toft Kristensen Asger Waagepetersen Anders Hye Dalsgaard Volkert Siersma Ann Dorrit Guassora John Brandt Brodersen on behalf MM600 trial group |
| author_sort | Anne Holm |
| collection | DOAJ |
| description | Abstract Introduction Validated patient-reported outcome measures (PROMs) are crucial for assessing patients’ experiences in the healthcare system. Both clinically and theoretically, patient-centered consultations are essential in patient-care, and are often suggested as the optimal strategy in caring for patients with multimorbidity. Aim To either identify or develop and validate a patient-reported outcome measure (PROM) to assess patient-centredness in consultations for patients with multimorbidity in general practice. Methods We attempted to identify an existing PROM through a systematic literature review. If a suitable PROM was not identified, we planned to (1) construct a draft PROM based on items from existing PROMs, (2) conduct group and individual interviews among members of the target population to ensure comprehensibility, comprehensiveness and relevance, and (3) perform a psychometric validation in a broad sample of patients from primary care. Results We did not identify an eligible PROM in the literature review. The item extraction and face validity meetings resulted in a new PROM consisting of 47 items divided into five domains: biopsychosocial perspective; `patient-as-person’; sharing power and responsibility; therapeutic alliance; and coordinated care. The interviews resulted in a number of changes to the layout and phrasing as well as the deletion of items. The PROM used in the psychometric validation consisted of 28 items. Psychometric validation showed high internal consistency, overall high reliability, and moderate fit indices in the confirmatory factor analysis for all five domains. Few items demonstrated differential item functioning concerning variables such as age, sex, and education. Conclusions This study successfully developed and validated a PROM to measure patient-centredness in consultations for patients with multimorbidity. The five domains demonstrated high reliability and validity, making it a valuable tool for measuring patient-centredness of consultations in general practice. Trial registration Trial registration number (data for psychometric validation): https://clinicaltrials.gov : NCT05676541 Registration Date: 2022-12-16. |
| format | Article |
| id | doaj-art-4651788c9e21406a930c72ee975024a7 |
| institution | Kabale University |
| issn | 1477-7525 |
| language | English |
| publishDate | 2025-01-01 |
| publisher | BMC |
| record_format | Article |
| series | Health and Quality of Life Outcomes |
| spelling | doaj-art-4651788c9e21406a930c72ee975024a72025-01-12T12:40:45ZengBMCHealth and Quality of Life Outcomes1477-75252025-01-0123111210.1186/s12955-024-02327-xDevelopment of a PROM to measure patient-centredness in chronic care consultations in primary careAnne Holm0Anna Bernhardt Lyhnebeck1Sussi Friis Buhl2Kristine Bissenbakker3Jette Kolding Kristensen4Anne Møller5Anders Prior6Zaza Kamper-Jørgensen7Sidsel Böcher8Mads Aage Toft Kristensen9Asger Waagepetersen10Anders Hye Dalsgaard11Volkert Siersma12Ann Dorrit Guassora13John Brandt Brodersen14on behalf MM600 trial groupDepartment of Public Health, Research Unit for General Practice and Section of General Practice, University of CopenhagenDepartment of Public Health, Research Unit for General Practice and Section of General Practice, University of CopenhagenDepartment of Public Health, Research Unit of General Practice, University of Southern DenmarkDepartment of Public Health, Research Unit for General Practice and Section of General Practice, University of CopenhagenCenter for General Practice, Aalborg UniversityDepartment of Public Health, Research Unit for General Practice and Section of General Practice, University of CopenhagenResearch Unit for General Practice, Aarhus UniversityDepartment of Public Health, Research Unit for General Practice and Section of General Practice, University of CopenhagenDepartment of Public Health, Research Unit for General Practice and Section of General Practice, University of CopenhagenDepartment of Public Health, Research Unit for General Practice and Section of General Practice, University of CopenhagenDepartment of Public Health, Research Unit for General Practice and Section of General Practice, University of CopenhagenDepartment of Public Health, Research Unit for General Practice and Section of General Practice, University of CopenhagenDepartment of Public Health, Research Unit for General Practice and Section of General Practice, University of CopenhagenDepartment of Public Health, Research Unit for General Practice and Section of General Practice, University of CopenhagenDepartment of Public Health, Research Unit for General Practice and Section of General Practice, University of CopenhagenAbstract Introduction Validated patient-reported outcome measures (PROMs) are crucial for assessing patients’ experiences in the healthcare system. Both clinically and theoretically, patient-centered consultations are essential in patient-care, and are often suggested as the optimal strategy in caring for patients with multimorbidity. Aim To either identify or develop and validate a patient-reported outcome measure (PROM) to assess patient-centredness in consultations for patients with multimorbidity in general practice. Methods We attempted to identify an existing PROM through a systematic literature review. If a suitable PROM was not identified, we planned to (1) construct a draft PROM based on items from existing PROMs, (2) conduct group and individual interviews among members of the target population to ensure comprehensibility, comprehensiveness and relevance, and (3) perform a psychometric validation in a broad sample of patients from primary care. Results We did not identify an eligible PROM in the literature review. The item extraction and face validity meetings resulted in a new PROM consisting of 47 items divided into five domains: biopsychosocial perspective; `patient-as-person’; sharing power and responsibility; therapeutic alliance; and coordinated care. The interviews resulted in a number of changes to the layout and phrasing as well as the deletion of items. The PROM used in the psychometric validation consisted of 28 items. Psychometric validation showed high internal consistency, overall high reliability, and moderate fit indices in the confirmatory factor analysis for all five domains. Few items demonstrated differential item functioning concerning variables such as age, sex, and education. Conclusions This study successfully developed and validated a PROM to measure patient-centredness in consultations for patients with multimorbidity. The five domains demonstrated high reliability and validity, making it a valuable tool for measuring patient-centredness of consultations in general practice. Trial registration Trial registration number (data for psychometric validation): https://clinicaltrials.gov : NCT05676541 Registration Date: 2022-12-16.https://doi.org/10.1186/s12955-024-02327-xPatient-reported outcome measuresPatient-centrednessGeneral practiceChronic diseaseMultimorbidityPrimary care |
| spellingShingle | Anne Holm Anna Bernhardt Lyhnebeck Sussi Friis Buhl Kristine Bissenbakker Jette Kolding Kristensen Anne Møller Anders Prior Zaza Kamper-Jørgensen Sidsel Böcher Mads Aage Toft Kristensen Asger Waagepetersen Anders Hye Dalsgaard Volkert Siersma Ann Dorrit Guassora John Brandt Brodersen on behalf MM600 trial group Development of a PROM to measure patient-centredness in chronic care consultations in primary care Health and Quality of Life Outcomes Patient-reported outcome measures Patient-centredness General practice Chronic disease Multimorbidity Primary care |
| title | Development of a PROM to measure patient-centredness in chronic care consultations in primary care |
| title_full | Development of a PROM to measure patient-centredness in chronic care consultations in primary care |
| title_fullStr | Development of a PROM to measure patient-centredness in chronic care consultations in primary care |
| title_full_unstemmed | Development of a PROM to measure patient-centredness in chronic care consultations in primary care |
| title_short | Development of a PROM to measure patient-centredness in chronic care consultations in primary care |
| title_sort | development of a prom to measure patient centredness in chronic care consultations in primary care |
| topic | Patient-reported outcome measures Patient-centredness General practice Chronic disease Multimorbidity Primary care |
| url | https://doi.org/10.1186/s12955-024-02327-x |
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