Reliability and validity of the pediatric feeding and swallowing disorders family impact scale for Turkish children with cerebral palsy by endoscopic evaluation

The caregivers of children with cerebral palsy (CP) have high mood disorders and stress levels. This study was aimed to conduct validity and reliability of Turkish version of The Pediatric Feeding and Swallowing Disorders Family Impact Scale (PFSDFIS) by using an objective method. This study was pe...

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Main Authors: Ebru Umay, İbrahim Gündoğdu, Erhan Arif Öztürk
Format: Article
Language:English
Published: Hacettepe University Institute of Child Health 2019-10-01
Series:The Turkish Journal of Pediatrics
Subjects:
Online Access:https://turkjpediatr.org/article/view/762
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author Ebru Umay
İbrahim Gündoğdu
Erhan Arif Öztürk
author_facet Ebru Umay
İbrahim Gündoğdu
Erhan Arif Öztürk
author_sort Ebru Umay
collection DOAJ
description The caregivers of children with cerebral palsy (CP) have high mood disorders and stress levels. This study was aimed to conduct validity and reliability of Turkish version of The Pediatric Feeding and Swallowing Disorders Family Impact Scale (PFSDFIS) by using an objective method. This study was performed in our physical medicine and rehabilitation (PMR) clinic between July 2016 and July 2018. This study was performed with 251 children with CP who had complaint of swallowing and/or feeding problems, and their primer caregivers. Cronbach`s alpha and corrected item-total correlations were used to assess internal consistency. Test and retest reliability studies were also conducted. The construct validity was assessed using the dysphagia level defined with flexible fiberoptic endoscopic evaluation of swallowing and Impact on Family Scale (IFS). Total score of T-PFSDFIS was correlated to the dysphagia level by using FEES. Results showed, Cronbach's alpha value of the scale to be 0.821. Corrected item-to-total correlations ranged from 0.729 to 0.911. Test-retest reliability coefficients was calculated with intra-class correlation coefficient (ICC), the total score was 0.989. A negative significant good level correlation was found between the dysphagia level by using endoscopic evaluation and the T- PFSDFIS total score as well as between total scores of IFS and T-PFSDFIS. In subgroup analysis; the lowest value was in normal swallowing and significantly different from all dysphagia levels. In conclusion; this scale is effective in reflecting the influence of caregivers on the severity of dysphagia measured objectively and T-PFSDFIS is a valid and reliable scale for Turkish children with CP.
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spelling doaj-art-46199c7c9673434c8b2d6eb96d32ec642025-08-20T02:01:54ZengHacettepe University Institute of Child HealthThe Turkish Journal of Pediatrics0041-43012791-64212019-10-0161510.24953/turkjped.2019.05.013Reliability and validity of the pediatric feeding and swallowing disorders family impact scale for Turkish children with cerebral palsy by endoscopic evaluationEbru Umay0İbrahim Gündoğdu1Erhan Arif Öztürk2University of Health Sciences, Ankara Diskapi Yildirim Beyazit Education and Research Hospital, Physical Medicine and Rehabilitation Clinic, Ankara, Turkey.University of Health Sciences, Ankara Diskapi Yildirim Beyazit Education and Research Hospital, Physical Medicine and Rehabilitation Clinic, Ankara, Turkey.University of Health Sciences, Ankara Diskapi Yildirim Beyazit Education and Research Hospital, Physical Medicine and Rehabilitation Clinic, Ankara, Turkey. The caregivers of children with cerebral palsy (CP) have high mood disorders and stress levels. This study was aimed to conduct validity and reliability of Turkish version of The Pediatric Feeding and Swallowing Disorders Family Impact Scale (PFSDFIS) by using an objective method. This study was performed in our physical medicine and rehabilitation (PMR) clinic between July 2016 and July 2018. This study was performed with 251 children with CP who had complaint of swallowing and/or feeding problems, and their primer caregivers. Cronbach`s alpha and corrected item-total correlations were used to assess internal consistency. Test and retest reliability studies were also conducted. The construct validity was assessed using the dysphagia level defined with flexible fiberoptic endoscopic evaluation of swallowing and Impact on Family Scale (IFS). Total score of T-PFSDFIS was correlated to the dysphagia level by using FEES. Results showed, Cronbach's alpha value of the scale to be 0.821. Corrected item-to-total correlations ranged from 0.729 to 0.911. Test-retest reliability coefficients was calculated with intra-class correlation coefficient (ICC), the total score was 0.989. A negative significant good level correlation was found between the dysphagia level by using endoscopic evaluation and the T- PFSDFIS total score as well as between total scores of IFS and T-PFSDFIS. In subgroup analysis; the lowest value was in normal swallowing and significantly different from all dysphagia levels. In conclusion; this scale is effective in reflecting the influence of caregivers on the severity of dysphagia measured objectively and T-PFSDFIS is a valid and reliable scale for Turkish children with CP. https://turkjpediatr.org/article/view/762caregivercerebral palsyreliabilitythe Pediatric Feeding and Swallowing Disorders Family Impact Scalevalidity
spellingShingle Ebru Umay
İbrahim Gündoğdu
Erhan Arif Öztürk
Reliability and validity of the pediatric feeding and swallowing disorders family impact scale for Turkish children with cerebral palsy by endoscopic evaluation
The Turkish Journal of Pediatrics
caregiver
cerebral palsy
reliability
the Pediatric Feeding and Swallowing Disorders Family Impact Scale
validity
title Reliability and validity of the pediatric feeding and swallowing disorders family impact scale for Turkish children with cerebral palsy by endoscopic evaluation
title_full Reliability and validity of the pediatric feeding and swallowing disorders family impact scale for Turkish children with cerebral palsy by endoscopic evaluation
title_fullStr Reliability and validity of the pediatric feeding and swallowing disorders family impact scale for Turkish children with cerebral palsy by endoscopic evaluation
title_full_unstemmed Reliability and validity of the pediatric feeding and swallowing disorders family impact scale for Turkish children with cerebral palsy by endoscopic evaluation
title_short Reliability and validity of the pediatric feeding and swallowing disorders family impact scale for Turkish children with cerebral palsy by endoscopic evaluation
title_sort reliability and validity of the pediatric feeding and swallowing disorders family impact scale for turkish children with cerebral palsy by endoscopic evaluation
topic caregiver
cerebral palsy
reliability
the Pediatric Feeding and Swallowing Disorders Family Impact Scale
validity
url https://turkjpediatr.org/article/view/762
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AT ibrahimgundogdu reliabilityandvalidityofthepediatricfeedingandswallowingdisordersfamilyimpactscaleforturkishchildrenwithcerebralpalsybyendoscopicevaluation
AT erhanarifozturk reliabilityandvalidityofthepediatricfeedingandswallowingdisordersfamilyimpactscaleforturkishchildrenwithcerebralpalsybyendoscopicevaluation