Case Report: A novel likely pathogenetic variant of the MEN1 gene in multiple endocrine neoplasia type 1

BackgroundMultiple endocrine neoplasia type 1 (MEN1) is a rare disease caused by mutations in the oncosuppressor gene MEN1 and characterized by co-occurrence of tumors of the parathyroid gland, pancreas, and pituitary gland. The clinical manifestations of MEN1 are varied, and misdiagnosis is common....

Full description

Saved in:
Bibliographic Details
Main Authors: Mengli Sun, Xinxia Chang, Xianen Huang, Liangmiao Chen, Mengmeng Peng, Xiqiang Zhong
Format: Article
Language:English
Published: Frontiers Media S.A. 2025-05-01
Series:Frontiers in Endocrinology
Subjects:
Online Access:https://www.frontiersin.org/articles/10.3389/fendo.2025.1551087/full
Tags: Add Tag
No Tags, Be the first to tag this record!
_version_ 1850189872869933056
author Mengli Sun
Xinxia Chang
Xianen Huang
Liangmiao Chen
Mengmeng Peng
Xiqiang Zhong
author_facet Mengli Sun
Xinxia Chang
Xianen Huang
Liangmiao Chen
Mengmeng Peng
Xiqiang Zhong
author_sort Mengli Sun
collection DOAJ
description BackgroundMultiple endocrine neoplasia type 1 (MEN1) is a rare disease caused by mutations in the oncosuppressor gene MEN1 and characterized by co-occurrence of tumors of the parathyroid gland, pancreas, and pituitary gland. The clinical manifestations of MEN1 are varied, and misdiagnosis is common. The life expectancy of patients with untreated MEN1 is short. Here, we report a case of a 50-year-old patient with recurrent urinary calculi for more than 10 years who had a pancreatic neuroendocrine tumor and parathyroid adenoma. The patient received a definitive diagnosis of MEN1. We analyze his clinical characteristics and describe our approach to management.Case PresentationLaboratory tests showed high parathyroid hormone (PTH), high blood calcium, and low blood phosphorus levels and increased excretion of urinary calcium. Immunohistochemical analysis showed loss of menin expression in pancreatic tumor tissues. Testing of the MEN1 gene revealed a variant in exon 9 (c.1257_1268del, p.lle420_Trp423del).ConclusionThe patient’s clinical characteristics combined with the testing of the MEN1 gene, it implied the variant was a novel likely pathogenetic variant. For patients with recurrent urinary stones, we recommend measuring blood calcium and PTH, and if there are abnormalities, screening other endocrine glands to exclude the possibility of MEN1.
format Article
id doaj-art-460f0d43bfdb41209dcb95067e036f21
institution OA Journals
issn 1664-2392
language English
publishDate 2025-05-01
publisher Frontiers Media S.A.
record_format Article
series Frontiers in Endocrinology
spelling doaj-art-460f0d43bfdb41209dcb95067e036f212025-08-20T02:15:29ZengFrontiers Media S.A.Frontiers in Endocrinology1664-23922025-05-011610.3389/fendo.2025.15510871551087Case Report: A novel likely pathogenetic variant of the MEN1 gene in multiple endocrine neoplasia type 1Mengli Sun0Xinxia Chang1Xianen Huang2Liangmiao Chen3Mengmeng Peng4Xiqiang Zhong5Department of Endocrinology, Third Affiliated Hospital of Wenzhou Medical University, Wenzhou, Zhejiang, ChinaDepartment of Endocrinology, Zhongshan Hospital, Fudan University, Shanghai, ChinaDepartment of Endocrinology, Third Affiliated Hospital of Wenzhou Medical University, Wenzhou, Zhejiang, ChinaDepartment of Endocrinology, Third Affiliated Hospital of Wenzhou Medical University, Wenzhou, Zhejiang, ChinaDepartment of Endocrinology, Third Affiliated Hospital of Wenzhou Medical University, Wenzhou, Zhejiang, ChinaDepartment of Endocrinology, Third Affiliated Hospital of Wenzhou Medical University, Wenzhou, Zhejiang, ChinaBackgroundMultiple endocrine neoplasia type 1 (MEN1) is a rare disease caused by mutations in the oncosuppressor gene MEN1 and characterized by co-occurrence of tumors of the parathyroid gland, pancreas, and pituitary gland. The clinical manifestations of MEN1 are varied, and misdiagnosis is common. The life expectancy of patients with untreated MEN1 is short. Here, we report a case of a 50-year-old patient with recurrent urinary calculi for more than 10 years who had a pancreatic neuroendocrine tumor and parathyroid adenoma. The patient received a definitive diagnosis of MEN1. We analyze his clinical characteristics and describe our approach to management.Case PresentationLaboratory tests showed high parathyroid hormone (PTH), high blood calcium, and low blood phosphorus levels and increased excretion of urinary calcium. Immunohistochemical analysis showed loss of menin expression in pancreatic tumor tissues. Testing of the MEN1 gene revealed a variant in exon 9 (c.1257_1268del, p.lle420_Trp423del).ConclusionThe patient’s clinical characteristics combined with the testing of the MEN1 gene, it implied the variant was a novel likely pathogenetic variant. For patients with recurrent urinary stones, we recommend measuring blood calcium and PTH, and if there are abnormalities, screening other endocrine glands to exclude the possibility of MEN1.https://www.frontiersin.org/articles/10.3389/fendo.2025.1551087/fullmultiple endocrine neoplasia type 1variant of uncertain significancemutationpancreatic neuroendocrine tumorparathyroid adenoma
spellingShingle Mengli Sun
Xinxia Chang
Xianen Huang
Liangmiao Chen
Mengmeng Peng
Xiqiang Zhong
Case Report: A novel likely pathogenetic variant of the MEN1 gene in multiple endocrine neoplasia type 1
Frontiers in Endocrinology
multiple endocrine neoplasia type 1
variant of uncertain significance
mutation
pancreatic neuroendocrine tumor
parathyroid adenoma
title Case Report: A novel likely pathogenetic variant of the MEN1 gene in multiple endocrine neoplasia type 1
title_full Case Report: A novel likely pathogenetic variant of the MEN1 gene in multiple endocrine neoplasia type 1
title_fullStr Case Report: A novel likely pathogenetic variant of the MEN1 gene in multiple endocrine neoplasia type 1
title_full_unstemmed Case Report: A novel likely pathogenetic variant of the MEN1 gene in multiple endocrine neoplasia type 1
title_short Case Report: A novel likely pathogenetic variant of the MEN1 gene in multiple endocrine neoplasia type 1
title_sort case report a novel likely pathogenetic variant of the men1 gene in multiple endocrine neoplasia type 1
topic multiple endocrine neoplasia type 1
variant of uncertain significance
mutation
pancreatic neuroendocrine tumor
parathyroid adenoma
url https://www.frontiersin.org/articles/10.3389/fendo.2025.1551087/full
work_keys_str_mv AT menglisun casereportanovellikelypathogeneticvariantofthemen1geneinmultipleendocrineneoplasiatype1
AT xinxiachang casereportanovellikelypathogeneticvariantofthemen1geneinmultipleendocrineneoplasiatype1
AT xianenhuang casereportanovellikelypathogeneticvariantofthemen1geneinmultipleendocrineneoplasiatype1
AT liangmiaochen casereportanovellikelypathogeneticvariantofthemen1geneinmultipleendocrineneoplasiatype1
AT mengmengpeng casereportanovellikelypathogeneticvariantofthemen1geneinmultipleendocrineneoplasiatype1
AT xiqiangzhong casereportanovellikelypathogeneticvariantofthemen1geneinmultipleendocrineneoplasiatype1