Late-onset Pompe disease: first clinical description in Russia

Late-onset Pompe-disease (LOPD) is an adult form of the glycogenosis type II. The age of onset ranges from 1 till 75 y.o. and older. The diagnosis of LOPD is based on the presence of trunk and limb-girdle muscle weakness with hyperlordosis, respiratory failure, ocasionally accompanied by cardiomyopa...

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Main Authors: S. S. Nikitin, M. O. Kovalchuk, E. U. Zaharova, V. V. Tsivileva
Format: Article
Language:Russian
Published: ABV-press 2015-02-01
Series:Нервно-мышечные болезни
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Online Access:https://nmb.abvpress.ru/jour/article/view/13
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author S. S. Nikitin
M. O. Kovalchuk
E. U. Zaharova
V. V. Tsivileva
author_facet S. S. Nikitin
M. O. Kovalchuk
E. U. Zaharova
V. V. Tsivileva
author_sort S. S. Nikitin
collection DOAJ
description Late-onset Pompe-disease (LOPD) is an adult form of the glycogenosis type II. The age of onset ranges from 1 till 75 y.o. and older. The diagnosis of LOPD is based on the presence of trunk and limb-girdle muscle weakness with hyperlordosis, respiratory failure, ocasionally accompanied by cardiomyopathy, persistent mild elevation of creatine kinase, dry blood spot test of the enzyme activity and DNA-analysis of GAA-gene. Early recognition of the LOPD and beginning of the enzyme replacement therapy is important in preventing severe motor and respiratory deficit, the patient disability and in increasing the survival in those patients.
format Article
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institution Kabale University
issn 2222-8721
2413-0443
language Russian
publishDate 2015-02-01
publisher ABV-press
record_format Article
series Нервно-мышечные болезни
spelling doaj-art-4575c1767e0844fabca76c6d2933d8b02025-08-20T04:00:20ZrusABV-pressНервно-мышечные болезни2222-87212413-04432015-02-0101626810.17650/2222-8721-2014-0-1-62-687Late-onset Pompe disease: first clinical description in RussiaS. S. Nikitin0M. O. Kovalchuk1E. U. Zaharova2V. V. Tsivileva3Scientific Research Institute of Pathology and Pathophysiology, Russian Academy of Medical SciencesFederal Research Clinical Center of Federal Medico-Biological CenterLabarotary of Inherited Metabolic Diseases of Medical Genetic Scientific Center, Russian Academy of Medical Sciences, MoscowFederal Research Clinical Center of Federal Medico-Biological CenterLate-onset Pompe-disease (LOPD) is an adult form of the glycogenosis type II. The age of onset ranges from 1 till 75 y.o. and older. The diagnosis of LOPD is based on the presence of trunk and limb-girdle muscle weakness with hyperlordosis, respiratory failure, ocasionally accompanied by cardiomyopathy, persistent mild elevation of creatine kinase, dry blood spot test of the enzyme activity and DNA-analysis of GAA-gene. Early recognition of the LOPD and beginning of the enzyme replacement therapy is important in preventing severe motor and respiratory deficit, the patient disability and in increasing the survival in those patients.https://nmb.abvpress.ru/jour/article/view/13storage diseaseglycogenosis type iiautosomal-recessive inheritancepompe diseaselate-onset pompe diseaseinfantile formautophagylimb-girdle myopathyhyperlordosismyotonic dischargesckacid α-glucosidaselysosomedry blood spot test
spellingShingle S. S. Nikitin
M. O. Kovalchuk
E. U. Zaharova
V. V. Tsivileva
Late-onset Pompe disease: first clinical description in Russia
Нервно-мышечные болезни
storage disease
glycogenosis type ii
autosomal-recessive inheritance
pompe disease
late-onset pompe disease
infantile form
autophagy
limb-girdle myopathy
hyperlordosis
myotonic discharges
ck
acid α-glucosidase
lysosome
dry blood spot test
title Late-onset Pompe disease: first clinical description in Russia
title_full Late-onset Pompe disease: first clinical description in Russia
title_fullStr Late-onset Pompe disease: first clinical description in Russia
title_full_unstemmed Late-onset Pompe disease: first clinical description in Russia
title_short Late-onset Pompe disease: first clinical description in Russia
title_sort late onset pompe disease first clinical description in russia
topic storage disease
glycogenosis type ii
autosomal-recessive inheritance
pompe disease
late-onset pompe disease
infantile form
autophagy
limb-girdle myopathy
hyperlordosis
myotonic discharges
ck
acid α-glucosidase
lysosome
dry blood spot test
url https://nmb.abvpress.ru/jour/article/view/13
work_keys_str_mv AT ssnikitin lateonsetpompediseasefirstclinicaldescriptioninrussia
AT mokovalchuk lateonsetpompediseasefirstclinicaldescriptioninrussia
AT euzaharova lateonsetpompediseasefirstclinicaldescriptioninrussia
AT vvtsivileva lateonsetpompediseasefirstclinicaldescriptioninrussia