Recoding the gift relationship: views on introducing genomic testing to blood donation
This study examines how the institutional context informs the ways in which healthy recipients relate to genomic information. Through focus group data, it considers the trend of blood collection agencies (BCA) moving to extend donor genotyping. We investigated how receipt of genomic information is v...
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| Format: | Article |
| Language: | English |
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Taylor & Francis Group
2024-12-01
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| Series: | New Genetics and Society |
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| Online Access: | https://www.tandfonline.com/doi/10.1080/14636778.2024.2317709 |
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| author | Rachel Thorpe Vera Raivola Barbara Masser |
| author_facet | Rachel Thorpe Vera Raivola Barbara Masser |
| author_sort | Rachel Thorpe |
| collection | DOAJ |
| description | This study examines how the institutional context informs the ways in which healthy recipients relate to genomic information. Through focus group data, it considers the trend of blood collection agencies (BCA) moving to extend donor genotyping. We investigated how receipt of genomic information is viewed as fitting into the contract of altruistic, voluntary blood donation by donors and non-donors. Our findings suggest that receipt of genomic health information is viewed as fitting the principles of this exchange with some limits. Participants considered the practical value of receiving different kinds of genetic information for individual and collective health from the perspectives of a healthy, altruistic donor, an “entrepreneurial self” and a potential patient. Findings identify the importance of considering the ethics of providing information on genomic markers to blood donors without current clinical value, as well as the impact of providing this information on the donor – BCA relationship. |
| format | Article |
| id | doaj-art-43b4174649d1460ea27bca9c3e4ff282 |
| institution | OA Journals |
| issn | 1463-6778 1469-9915 |
| language | English |
| publishDate | 2024-12-01 |
| publisher | Taylor & Francis Group |
| record_format | Article |
| series | New Genetics and Society |
| spelling | doaj-art-43b4174649d1460ea27bca9c3e4ff2822025-08-20T01:59:10ZengTaylor & Francis GroupNew Genetics and Society1463-67781469-99152024-12-0143110.1080/14636778.2024.2317709Recoding the gift relationship: views on introducing genomic testing to blood donationRachel Thorpe0Vera Raivola1Barbara Masser2Research and Development, Australian Red Cross Lifeblood, West Melbourne, AustraliaFaculty of Social Sciences and Business Studies, University of Eastern Finland, Helsinki, FinlandResearch and Development, Australian Red Cross Lifeblood, West Melbourne, AustraliaThis study examines how the institutional context informs the ways in which healthy recipients relate to genomic information. Through focus group data, it considers the trend of blood collection agencies (BCA) moving to extend donor genotyping. We investigated how receipt of genomic information is viewed as fitting into the contract of altruistic, voluntary blood donation by donors and non-donors. Our findings suggest that receipt of genomic health information is viewed as fitting the principles of this exchange with some limits. Participants considered the practical value of receiving different kinds of genetic information for individual and collective health from the perspectives of a healthy, altruistic donor, an “entrepreneurial self” and a potential patient. Findings identify the importance of considering the ethics of providing information on genomic markers to blood donors without current clinical value, as well as the impact of providing this information on the donor – BCA relationship.https://www.tandfonline.com/doi/10.1080/14636778.2024.2317709Blood donorsgenomicsgiftinstitutional contextaltruism |
| spellingShingle | Rachel Thorpe Vera Raivola Barbara Masser Recoding the gift relationship: views on introducing genomic testing to blood donation New Genetics and Society Blood donors genomics gift institutional context altruism |
| title | Recoding the gift relationship: views on introducing genomic testing to blood donation |
| title_full | Recoding the gift relationship: views on introducing genomic testing to blood donation |
| title_fullStr | Recoding the gift relationship: views on introducing genomic testing to blood donation |
| title_full_unstemmed | Recoding the gift relationship: views on introducing genomic testing to blood donation |
| title_short | Recoding the gift relationship: views on introducing genomic testing to blood donation |
| title_sort | recoding the gift relationship views on introducing genomic testing to blood donation |
| topic | Blood donors genomics gift institutional context altruism |
| url | https://www.tandfonline.com/doi/10.1080/14636778.2024.2317709 |
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