Comprehensive Needs Assessment for Enhancing Self-Management in People with Lipoedema and the Support Provided by Their Healthcare Professionals
Lise Maren Kloosterman,1– 4 Harriët Jager-Wittenaar,1,2,4,5 Francine Schneider,6 Ad Hendrickx,1,3 Rienk Dekker,7 Aldo Scafoglieri4,8 1Research Group Healthy Ageing, Allied Health Care and Nursing, Hanze University of Applied Sciences, Groningen, 9714 CA, the Netherlands; 2FAITH Research, Groningen,...
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| Main Authors: | , , , , , |
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| Format: | Article |
| Language: | English |
| Published: |
Dove Medical Press
2025-02-01
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| Series: | Journal of Multidisciplinary Healthcare |
| Subjects: | |
| Online Access: | https://www.dovepress.com/comprehensive-needs-assessment-for-enhancing-self-management-in-people-peer-reviewed-fulltext-article-JMDH |
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| Summary: | Lise Maren Kloosterman,1– 4 Harriët Jager-Wittenaar,1,2,4,5 Francine Schneider,6 Ad Hendrickx,1,3 Rienk Dekker,7 Aldo Scafoglieri4,8 1Research Group Healthy Ageing, Allied Health Care and Nursing, Hanze University of Applied Sciences, Groningen, 9714 CA, the Netherlands; 2FAITH Research, Groningen, 9714 CA, the Netherlands; 3Center of Expertise for Lymphovascular Medicine, Nij Smellinghe Hospital, Drachten, 9202 NN, the Netherlands; 4Experimental Anatomy Research Group, Department of Physiotherapy, Human Physiology and Anatomy, Faculty of Physical Education and Physiotherapy, Vrije Universiteit Brussel, Jette, Brussels, 1090, Belgium; 5Department of Gastroenterology and Hepatology, Dietetics, Radboud university medical center, Nijmegen, 6500 HB the Netherlands; 6Department of Health Promotion, Care and Public Health Research Institute CAPHRI, Maastricht University, Maastricht, 6200 MD, the Netherlands; 7Department of Rehabilitation Medicine, University of Groningen, University Medical Center Groningen, Groningen, 9700 RB, the Netherlands; 8Frailty in Aging Research Group, Faculty of Medicine and Pharmacy, Vrije Universiteit Brussel, Jette, Brussels, 1090, BelgiumCorrespondence: Lise Maren Kloosterman, Research Group Healthy Ageing, Allied Health Care and Nursing, Hanze University of Applied Sciences, Petrus Driessenstraat 3, Groningen, 9714 CA, the Netherlands, Email l.m.kloosterman@pl.hanze.nlBackground: The cause of lipoedema remains unclear, and the condition is currently incurable. Effective self-management is therefore essential for coping with its physical and psychological impacts and the necessary lifestyle adjustments. This study aimed to assess the needs, barriers, and facilitators for enhancing self-management and self-management support from the perspectives of people with lipoedema and the healthcare professionals (HCPs) involved in their care.Methods: The study used a mixed-methods approach, incorporating a narrative review focused on people with chronic conditions and their HCPs, along with focus groups involving people diagnosed with lipoedema and the HCPs involved in their care. The Core Processes of the Intervention Mapping method guided a systematic approach to address the study’s objectives. Qualitative data were analyzed using a grounded theory approach.Results: Findings revealed unique self-management barriers for people with lipoedema, including limited awareness and expertise among HCPs, as well as stigmatization from both HCPs and society. Participants identified a need for tailored lifestyle plans, guidance, and support for monitoring progress. Key facilitators included self-management skills, supportive networks, and role models. HCPs noted barriers in communication and collaboration due to a lack of specialized professionals and negative attitudes toward lipoedema. They expressed a need for multidisciplinary/interprofessional teams, accurate diagnosis, patient openness, and reliable information resources. Facilitators included fostering trust, encouraging patient participation, and setting achievable goals.Conclusion: This study underscores the need for tailored self-management interventions for people with lipoedema. The adaptation of existing self-management strategies from other chronic conditions should take into account the specific needs, barriers, and facilitators of people with lipoedema and their HCPs.Keywords: lipoedema, self-management, needs, barriers, facilitators |
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| ISSN: | 1178-2390 |