Impact on the family of a child’s rare disease: A large cross-sectional study
Introduction: Children living with rare diseases (RD) require considerable support from their families. Aim: To assess the impact of children’s RD on family functioning and evaluate predictors of the level of impact. Methods: Families of Australian children aged < 19 years and living with a RD we...
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| Main Authors: | Judith M. Jobling, Suzy M. Teutsch, Guy D. Eslick, Elizabeth J. Elliott |
|---|---|
| Format: | Article |
| Language: | English |
| Published: |
Elsevier
2025-01-01
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| Series: | Rare |
| Subjects: | |
| Online Access: | http://www.sciencedirect.com/science/article/pii/S2950008725000109 |
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