Impact on the family of a child’s rare disease: A large cross-sectional study

Introduction: Children living with rare diseases (RD) require considerable support from their families. Aim: To assess the impact of children’s RD on family functioning and evaluate predictors of the level of impact. Methods: Families of Australian children aged < 19 years and living with a RD we...

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Bibliographic Details
Main Authors: Judith M. Jobling, Suzy M. Teutsch, Guy D. Eslick, Elizabeth J. Elliott
Format: Article
Language:English
Published: Elsevier 2025-01-01
Series:Rare
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Online Access:http://www.sciencedirect.com/science/article/pii/S2950008725000109
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