Language and Culture in Health Literacy for People Living with HIV: Perspectives of Health Care Providers and Professional Care Team Members

Low health literacy has been linked to inadequate engagement in care and may serve as a contributor to poor health outcomes among people living with HIV and AIDS. The purpose of this paper was to examine the perspectives of health care providers and professional care team members regarding health li...

Full description

Saved in:
Bibliographic Details
Main Authors: Keitshokile Dintle Mogobe, Sheila Shaibu, Ellah Matshediso, Motshedisi Sabone, Esther Ntsayagae, Patrice K. Nicholas, Carmen J. Portillo, Inge B. Corless, Carol Dawson Rose, Mallory O. Johnson, Allison Webel, Yvette Cuca, Marta Rivero-Méndez, Solymar S. Solís Báez, Kathleen Nokes, Darcel Reyes, Jeanne Kemppainen, Paula Reid, Lucille Sanzero Eller, Teri Lindgren, William L. Holzemer, Dean Wantland
Format: Article
Language:English
Published: Wiley 2016-01-01
Series:AIDS Research and Treatment
Online Access:http://dx.doi.org/10.1155/2016/5015707
Tags: Add Tag
No Tags, Be the first to tag this record!
_version_ 1832566887308853248
author Keitshokile Dintle Mogobe
Sheila Shaibu
Ellah Matshediso
Motshedisi Sabone
Esther Ntsayagae
Patrice K. Nicholas
Carmen J. Portillo
Inge B. Corless
Carol Dawson Rose
Mallory O. Johnson
Allison Webel
Yvette Cuca
Marta Rivero-Méndez
Solymar S. Solís Báez
Kathleen Nokes
Darcel Reyes
Jeanne Kemppainen
Paula Reid
Lucille Sanzero Eller
Teri Lindgren
William L. Holzemer
Dean Wantland
author_facet Keitshokile Dintle Mogobe
Sheila Shaibu
Ellah Matshediso
Motshedisi Sabone
Esther Ntsayagae
Patrice K. Nicholas
Carmen J. Portillo
Inge B. Corless
Carol Dawson Rose
Mallory O. Johnson
Allison Webel
Yvette Cuca
Marta Rivero-Méndez
Solymar S. Solís Báez
Kathleen Nokes
Darcel Reyes
Jeanne Kemppainen
Paula Reid
Lucille Sanzero Eller
Teri Lindgren
William L. Holzemer
Dean Wantland
author_sort Keitshokile Dintle Mogobe
collection DOAJ
description Low health literacy has been linked to inadequate engagement in care and may serve as a contributor to poor health outcomes among people living with HIV and AIDS. The purpose of this paper was to examine the perspectives of health care providers and professional care team members regarding health literacy in HIV disease. A secondary data analysis was conducted from a qualitative study aimed at understanding factors that help an HIV positive person to manage their HIV disease. Data were collected from sites in Botswana, the US, and Puerto Rico. In the parent study, data were collected through focus group discussions with 135 people living with HIV, 32 HIV health care providers (HCPs), and 39 HIV professional care team members (PCTMs). SPSS was used to analyze quantitative data while ATLAS.ti was used to analyze qualitative data. The findings from analyses of the perspectives of HCPs/PCTMs suggested that linguistic and cultural factors were important themes in the exchange of HIV information between health care providers and PLHIV. These themes included ineffective communication, health seeking behavior, cultural facilitators, and complementary and alternative/traditional healing methods. Thus, this study suggests that language and culture have a major role in health literacy for PLHIV.
format Article
id doaj-art-3e8b9a831c6044a1b848ffd071474e9d
institution Kabale University
issn 2090-1240
2090-1259
language English
publishDate 2016-01-01
publisher Wiley
record_format Article
series AIDS Research and Treatment
spelling doaj-art-3e8b9a831c6044a1b848ffd071474e9d2025-02-03T01:02:49ZengWileyAIDS Research and Treatment2090-12402090-12592016-01-01201610.1155/2016/50157075015707Language and Culture in Health Literacy for People Living with HIV: Perspectives of Health Care Providers and Professional Care Team MembersKeitshokile Dintle Mogobe0Sheila Shaibu1Ellah Matshediso2Motshedisi Sabone3Esther Ntsayagae4Patrice K. Nicholas5Carmen J. Portillo6Inge B. Corless7Carol Dawson Rose8Mallory O. Johnson9Allison Webel10Yvette Cuca11Marta Rivero-Méndez12Solymar S. Solís Báez13Kathleen Nokes14Darcel Reyes15Jeanne Kemppainen16Paula Reid17Lucille Sanzero Eller18Teri Lindgren19William L. Holzemer20Dean Wantland21Faculty of Health Sciences, University of Botswana, Gaborone, BotswanaSchool of Nursing, University of Botswana, Gaborone, BotswanaHIV and AIDS Coordination Office, University of Botswana, Gaborone, BotswanaSchool of Nursing, University of Botswana, Gaborone, BotswanaSchool of Nursing, University of Botswana, Gaborone, BotswanaGlobal Health and Academic Partnerships, Brigham and Women’s Hospital and MGH Institute of Health Professions, Boston, MA 02120, USAUCSF School of Nursing, San Francisco, CA 94143-0608, USAMGH Institute of Health Professions, Boston, MA 02129, USAUCSF School of Nursing, San Francisco, CA 94143-0608, USAUCSF, San Francisco, CA 94105, USABolton School of Nursing, Case Western Reserve University, Cleveland, OH 44122, USAUCSF, San Francisco, CA 94105, USAUniversity of Puerto Rico, San Juan, PR, USACenter for Nursing Research, University of Puerto Rico-Recinto de Ciencias Medicas, San Juan, PR, USAHunter College, CUNY, New York, NY 10010, USAHELP/PSI, Yonkers, NY 10701, USAUniversity of North Carolina Wilmington, Wilmington, NC 28403, USASchool of Nursing, University of North Carolina Wilmington, Wilmington, NC 28403-5995, USARutgers University School of Nursing, Newark, NJ 07102, USARutgers University School of Nursing, Newark, NJ 07102, USARutgers University School of Nursing, Newark, NJ 07102, USARutgers University School of Nursing, Newark, NJ 07102, USALow health literacy has been linked to inadequate engagement in care and may serve as a contributor to poor health outcomes among people living with HIV and AIDS. The purpose of this paper was to examine the perspectives of health care providers and professional care team members regarding health literacy in HIV disease. A secondary data analysis was conducted from a qualitative study aimed at understanding factors that help an HIV positive person to manage their HIV disease. Data were collected from sites in Botswana, the US, and Puerto Rico. In the parent study, data were collected through focus group discussions with 135 people living with HIV, 32 HIV health care providers (HCPs), and 39 HIV professional care team members (PCTMs). SPSS was used to analyze quantitative data while ATLAS.ti was used to analyze qualitative data. The findings from analyses of the perspectives of HCPs/PCTMs suggested that linguistic and cultural factors were important themes in the exchange of HIV information between health care providers and PLHIV. These themes included ineffective communication, health seeking behavior, cultural facilitators, and complementary and alternative/traditional healing methods. Thus, this study suggests that language and culture have a major role in health literacy for PLHIV.http://dx.doi.org/10.1155/2016/5015707
spellingShingle Keitshokile Dintle Mogobe
Sheila Shaibu
Ellah Matshediso
Motshedisi Sabone
Esther Ntsayagae
Patrice K. Nicholas
Carmen J. Portillo
Inge B. Corless
Carol Dawson Rose
Mallory O. Johnson
Allison Webel
Yvette Cuca
Marta Rivero-Méndez
Solymar S. Solís Báez
Kathleen Nokes
Darcel Reyes
Jeanne Kemppainen
Paula Reid
Lucille Sanzero Eller
Teri Lindgren
William L. Holzemer
Dean Wantland
Language and Culture in Health Literacy for People Living with HIV: Perspectives of Health Care Providers and Professional Care Team Members
AIDS Research and Treatment
title Language and Culture in Health Literacy for People Living with HIV: Perspectives of Health Care Providers and Professional Care Team Members
title_full Language and Culture in Health Literacy for People Living with HIV: Perspectives of Health Care Providers and Professional Care Team Members
title_fullStr Language and Culture in Health Literacy for People Living with HIV: Perspectives of Health Care Providers and Professional Care Team Members
title_full_unstemmed Language and Culture in Health Literacy for People Living with HIV: Perspectives of Health Care Providers and Professional Care Team Members
title_short Language and Culture in Health Literacy for People Living with HIV: Perspectives of Health Care Providers and Professional Care Team Members
title_sort language and culture in health literacy for people living with hiv perspectives of health care providers and professional care team members
url http://dx.doi.org/10.1155/2016/5015707
work_keys_str_mv AT keitshokiledintlemogobe languageandcultureinhealthliteracyforpeoplelivingwithhivperspectivesofhealthcareprovidersandprofessionalcareteammembers
AT sheilashaibu languageandcultureinhealthliteracyforpeoplelivingwithhivperspectivesofhealthcareprovidersandprofessionalcareteammembers
AT ellahmatshediso languageandcultureinhealthliteracyforpeoplelivingwithhivperspectivesofhealthcareprovidersandprofessionalcareteammembers
AT motshedisisabone languageandcultureinhealthliteracyforpeoplelivingwithhivperspectivesofhealthcareprovidersandprofessionalcareteammembers
AT estherntsayagae languageandcultureinhealthliteracyforpeoplelivingwithhivperspectivesofhealthcareprovidersandprofessionalcareteammembers
AT patriceknicholas languageandcultureinhealthliteracyforpeoplelivingwithhivperspectivesofhealthcareprovidersandprofessionalcareteammembers
AT carmenjportillo languageandcultureinhealthliteracyforpeoplelivingwithhivperspectivesofhealthcareprovidersandprofessionalcareteammembers
AT ingebcorless languageandcultureinhealthliteracyforpeoplelivingwithhivperspectivesofhealthcareprovidersandprofessionalcareteammembers
AT caroldawsonrose languageandcultureinhealthliteracyforpeoplelivingwithhivperspectivesofhealthcareprovidersandprofessionalcareteammembers
AT malloryojohnson languageandcultureinhealthliteracyforpeoplelivingwithhivperspectivesofhealthcareprovidersandprofessionalcareteammembers
AT allisonwebel languageandcultureinhealthliteracyforpeoplelivingwithhivperspectivesofhealthcareprovidersandprofessionalcareteammembers
AT yvettecuca languageandcultureinhealthliteracyforpeoplelivingwithhivperspectivesofhealthcareprovidersandprofessionalcareteammembers
AT martariveromendez languageandcultureinhealthliteracyforpeoplelivingwithhivperspectivesofhealthcareprovidersandprofessionalcareteammembers
AT solymarssolisbaez languageandcultureinhealthliteracyforpeoplelivingwithhivperspectivesofhealthcareprovidersandprofessionalcareteammembers
AT kathleennokes languageandcultureinhealthliteracyforpeoplelivingwithhivperspectivesofhealthcareprovidersandprofessionalcareteammembers
AT darcelreyes languageandcultureinhealthliteracyforpeoplelivingwithhivperspectivesofhealthcareprovidersandprofessionalcareteammembers
AT jeannekemppainen languageandcultureinhealthliteracyforpeoplelivingwithhivperspectivesofhealthcareprovidersandprofessionalcareteammembers
AT paulareid languageandcultureinhealthliteracyforpeoplelivingwithhivperspectivesofhealthcareprovidersandprofessionalcareteammembers
AT lucillesanzeroeller languageandcultureinhealthliteracyforpeoplelivingwithhivperspectivesofhealthcareprovidersandprofessionalcareteammembers
AT terilindgren languageandcultureinhealthliteracyforpeoplelivingwithhivperspectivesofhealthcareprovidersandprofessionalcareteammembers
AT williamlholzemer languageandcultureinhealthliteracyforpeoplelivingwithhivperspectivesofhealthcareprovidersandprofessionalcareteammembers
AT deanwantland languageandcultureinhealthliteracyforpeoplelivingwithhivperspectivesofhealthcareprovidersandprofessionalcareteammembers