It’s not that I'm "abnormal". Social and emotional experiences of women with autism spectrum (AS) related to the diagnosis in adulthood
The paper is part of a research project related to the preparation of the master’s thesis of Magdalena Wala, a fifth-year student of Special Education, prepared under the scientific supervision of Dr. Sabina Pawlik. The research concerns the social and emotional experiences of women diagnosed as la...
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| Format: | Article |
| Language: | English |
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Jan Długosz University in Częstochowa
2024-12-01
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| Series: | Edukacyjna Analiza Transakcyjna |
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| Online Access: | https://czasopisma.ujd.edu.pl/index.php/EAT/article/view/2326 |
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| author | Sabina Pawlik Magdalena Wala |
| author_facet | Sabina Pawlik Magdalena Wala |
| author_sort | Sabina Pawlik |
| collection | DOAJ |
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The paper is part of a research project related to the preparation of the master’s thesis of Magdalena Wala, a fifth-year student of Special Education, prepared under the scientific supervision of Dr. Sabina Pawlik. The research concerns the social and emotional experiences of women diagnosed as late as in adulthood. Compared to men, women are more likely to remain undiagnosed in childhood, thus belonging to the so-called “lost generation”, i.e. people who are deprived of the opportunity to be diagnosed in childhood. One of the reasons is that women with autism spectrum (AS) have a different behavioral pattern (female autism phenotype) than men and the established diagnostic practices are focused on the basic characteristics of AS that were historically established based on the symptoms in men. The aim of the research was to learn about the social and emotional experiences of women with AS who were diagnosed in adulthood. It was associated with women’s experiences before the diagnosis (related to the diagnostic process itself) and experiences after the diagnosis. The research found that women with AS in adulthood saw the value of the diagnosis in the form of increased self-knowledge, liberation from stigmatizing labels, finding their “tribe” and the possibility of receiving forms of support adequate to their condition.
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| format | Article |
| id | doaj-art-3db315293807458da3ed798c330a5944 |
| institution | Kabale University |
| issn | 2299-7466 2658-1825 |
| language | English |
| publishDate | 2024-12-01 |
| publisher | Jan Długosz University in Częstochowa |
| record_format | Article |
| series | Edukacyjna Analiza Transakcyjna |
| spelling | doaj-art-3db315293807458da3ed798c330a59442025-02-02T04:04:53ZengJan Długosz University in CzęstochowaEdukacyjna Analiza Transakcyjna2299-74662658-18252024-12-011310.16926/eat.2024.13.20It’s not that I'm "abnormal". Social and emotional experiences of women with autism spectrum (AS) related to the diagnosis in adulthoodSabina Pawlik0https://orcid.org/0000-0002-9775-7856Magdalena Wala1Silesian UniversityUniwersytet Śląski w Katowicach The paper is part of a research project related to the preparation of the master’s thesis of Magdalena Wala, a fifth-year student of Special Education, prepared under the scientific supervision of Dr. Sabina Pawlik. The research concerns the social and emotional experiences of women diagnosed as late as in adulthood. Compared to men, women are more likely to remain undiagnosed in childhood, thus belonging to the so-called “lost generation”, i.e. people who are deprived of the opportunity to be diagnosed in childhood. One of the reasons is that women with autism spectrum (AS) have a different behavioral pattern (female autism phenotype) than men and the established diagnostic practices are focused on the basic characteristics of AS that were historically established based on the symptoms in men. The aim of the research was to learn about the social and emotional experiences of women with AS who were diagnosed in adulthood. It was associated with women’s experiences before the diagnosis (related to the diagnostic process itself) and experiences after the diagnosis. The research found that women with AS in adulthood saw the value of the diagnosis in the form of increased self-knowledge, liberation from stigmatizing labels, finding their “tribe” and the possibility of receiving forms of support adequate to their condition. https://czasopisma.ujd.edu.pl/index.php/EAT/article/view/2326autism spectrumfemale autism phenotypediagnosisbiographical narrative interview |
| spellingShingle | Sabina Pawlik Magdalena Wala It’s not that I'm "abnormal". Social and emotional experiences of women with autism spectrum (AS) related to the diagnosis in adulthood Edukacyjna Analiza Transakcyjna autism spectrum female autism phenotype diagnosis biographical narrative interview |
| title | It’s not that I'm "abnormal". Social and emotional experiences of women with autism spectrum (AS) related to the diagnosis in adulthood |
| title_full | It’s not that I'm "abnormal". Social and emotional experiences of women with autism spectrum (AS) related to the diagnosis in adulthood |
| title_fullStr | It’s not that I'm "abnormal". Social and emotional experiences of women with autism spectrum (AS) related to the diagnosis in adulthood |
| title_full_unstemmed | It’s not that I'm "abnormal". Social and emotional experiences of women with autism spectrum (AS) related to the diagnosis in adulthood |
| title_short | It’s not that I'm "abnormal". Social and emotional experiences of women with autism spectrum (AS) related to the diagnosis in adulthood |
| title_sort | it s not that i m abnormal social and emotional experiences of women with autism spectrum as related to the diagnosis in adulthood |
| topic | autism spectrum female autism phenotype diagnosis biographical narrative interview |
| url | https://czasopisma.ujd.edu.pl/index.php/EAT/article/view/2326 |
| work_keys_str_mv | AT sabinapawlik itsnotthatimabnormalsocialandemotionalexperiencesofwomenwithautismspectrumasrelatedtothediagnosisinadulthood AT magdalenawala itsnotthatimabnormalsocialandemotionalexperiencesofwomenwithautismspectrumasrelatedtothediagnosisinadulthood |