Unveiling lives: A glimpse into the daily routines of individuals affected by leprosy in Malaysia using the walk-and-talk technique
Leprosy, though curable, continues to present physical and psychosocial challenges for those affected. This study explored how individuals affected by leprosy in Malaysia navigated daily life, societal expectations, and personal challenges through the walk-and-talk technique, a participant-led quali...
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| Format: | Article |
| Language: | English |
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Taylor & Francis Group
2025-12-01
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| Series: | Global Public Health |
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| Online Access: | https://www.tandfonline.com/doi/10.1080/17441692.2025.2488889 |
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| author | Norana Abdul Rahman Vaikunthan Rajaratnam Ruth M. H. Peters Mohamed Rusli Abdullah Karen Morgan |
| author_facet | Norana Abdul Rahman Vaikunthan Rajaratnam Ruth M. H. Peters Mohamed Rusli Abdullah Karen Morgan |
| author_sort | Norana Abdul Rahman |
| collection | DOAJ |
| description | Leprosy, though curable, continues to present physical and psychosocial challenges for those affected. This study explored how individuals affected by leprosy in Malaysia navigated daily life, societal expectations, and personal challenges through the walk-and-talk technique, a participant-led qualitative approach that fostered spontaneous storytelling and reflexivity. By guiding researchers through their environments, participants shaped the narrative, shifting power dynamics and enabling authentic dialogue. Six participants from Kelantan and Selangor shared their everyday activities, aspirations, and coping strategies. Video documentation was used as a supplementary tool to capture non-verbal cues and contextual interactions. Visual, auditory, and field data were transcribed and thematically analysed using NVivo 12, revealing key themes, including resilience and perseverance, employment and economic sustenance, stigma, family support, and community engagement. Work emerged as central to their well-being, fostering dignity and providing financial stability. However, self-imposed stigma limited social inclusion, while strong familial and community bonds provided crucial support. These findings highlighted the effectiveness of the walk-and-talk technique in capturing rich qualitative data and emphasised the need for tailored interventions to address stigma, enhance social inclusion, and support the well-being and economic stability of individuals affected by leprosy. |
| format | Article |
| id | doaj-art-3d5efa03101f4f63a44e2ed67e7860f6 |
| institution | OA Journals |
| issn | 1744-1692 1744-1706 |
| language | English |
| publishDate | 2025-12-01 |
| publisher | Taylor & Francis Group |
| record_format | Article |
| series | Global Public Health |
| spelling | doaj-art-3d5efa03101f4f63a44e2ed67e7860f62025-08-20T01:57:05ZengTaylor & Francis GroupGlobal Public Health1744-16921744-17062025-12-0120110.1080/17441692.2025.2488889Unveiling lives: A glimpse into the daily routines of individuals affected by leprosy in Malaysia using the walk-and-talk techniqueNorana Abdul Rahman0Vaikunthan Rajaratnam1Ruth M. H. Peters2Mohamed Rusli Abdullah3Karen Morgan4Athena Institute, Faculty of Science, Vrije University, Amsterdam, NetherlandsDepartment of Orthopaedic Surgery, Khoo Teck Puat Hospital, Singapore, SingaporeAthena Institute, Faculty of Science, Vrije University, Amsterdam, NetherlandsSchool of Medical Sciences, Universiti Sains Malaysia, Kota Bharu, MalaysiaSchool of Medicine, RCSI-UCD Malaysia Campus, Penang, MalaysiaLeprosy, though curable, continues to present physical and psychosocial challenges for those affected. This study explored how individuals affected by leprosy in Malaysia navigated daily life, societal expectations, and personal challenges through the walk-and-talk technique, a participant-led qualitative approach that fostered spontaneous storytelling and reflexivity. By guiding researchers through their environments, participants shaped the narrative, shifting power dynamics and enabling authentic dialogue. Six participants from Kelantan and Selangor shared their everyday activities, aspirations, and coping strategies. Video documentation was used as a supplementary tool to capture non-verbal cues and contextual interactions. Visual, auditory, and field data were transcribed and thematically analysed using NVivo 12, revealing key themes, including resilience and perseverance, employment and economic sustenance, stigma, family support, and community engagement. Work emerged as central to their well-being, fostering dignity and providing financial stability. However, self-imposed stigma limited social inclusion, while strong familial and community bonds provided crucial support. These findings highlighted the effectiveness of the walk-and-talk technique in capturing rich qualitative data and emphasised the need for tailored interventions to address stigma, enhance social inclusion, and support the well-being and economic stability of individuals affected by leprosy.https://www.tandfonline.com/doi/10.1080/17441692.2025.2488889Leprosywalk-and-talk techniqueparticipant-led qualitative researchvideo documentationMalaysia |
| spellingShingle | Norana Abdul Rahman Vaikunthan Rajaratnam Ruth M. H. Peters Mohamed Rusli Abdullah Karen Morgan Unveiling lives: A glimpse into the daily routines of individuals affected by leprosy in Malaysia using the walk-and-talk technique Global Public Health Leprosy walk-and-talk technique participant-led qualitative research video documentation Malaysia |
| title | Unveiling lives: A glimpse into the daily routines of individuals affected by leprosy in Malaysia using the walk-and-talk technique |
| title_full | Unveiling lives: A glimpse into the daily routines of individuals affected by leprosy in Malaysia using the walk-and-talk technique |
| title_fullStr | Unveiling lives: A glimpse into the daily routines of individuals affected by leprosy in Malaysia using the walk-and-talk technique |
| title_full_unstemmed | Unveiling lives: A glimpse into the daily routines of individuals affected by leprosy in Malaysia using the walk-and-talk technique |
| title_short | Unveiling lives: A glimpse into the daily routines of individuals affected by leprosy in Malaysia using the walk-and-talk technique |
| title_sort | unveiling lives a glimpse into the daily routines of individuals affected by leprosy in malaysia using the walk and talk technique |
| topic | Leprosy walk-and-talk technique participant-led qualitative research video documentation Malaysia |
| url | https://www.tandfonline.com/doi/10.1080/17441692.2025.2488889 |
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