Cohort profile: the Swedish National Quality Register for bipolar disorder(BipoläR)
Purpose The Swedish National Quality Register for bipolar affective disorder, BipoläR, was established in 2004 to provide nationwide indicators for quality assessment and development in the clinical care of individuals with bipolar spectrum disorder. An ancillary aim was to provide data for bipolar...
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BMJ Publishing Group
2022-12-01
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| Series: | BMJ Open |
| Online Access: | https://bmjopen.bmj.com/content/12/12/e064385.full |
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| author | Axel Nordenskjöld Mikael Landén Bo Runeson Erik Pålsson Lydia Melchior Kristina Lindwall Sundel Alina Karanti Erik Joas Mattias Agestam |
| author_facet | Axel Nordenskjöld Mikael Landén Bo Runeson Erik Pålsson Lydia Melchior Kristina Lindwall Sundel Alina Karanti Erik Joas Mattias Agestam |
| author_sort | Axel Nordenskjöld |
| collection | DOAJ |
| description | Purpose The Swedish National Quality Register for bipolar affective disorder, BipoläR, was established in 2004 to provide nationwide indicators for quality assessment and development in the clinical care of individuals with bipolar spectrum disorder. An ancillary aim was to provide data for bipolar disorder research.Participants Inclusion criteria for registration in BipoläR is a diagnosis of bipolar spectrum disorder (ICD codes: F25.0, F30.1–F30.2, F30.8–F31.9, F34.0) and treatment at an outpatient clinic in Sweden. BipoläR collects data from baseline and annual follow-up visits throughout Sweden. Data is collected using questionnaires administered by healthcare staff. The questions cover sociodemographic, diagnostic, treatment, outcomes and patient reported outcome variables. The register currently includes 39 583 individual patients with a total of 75 423 baseline and follow-up records.Findings to date Data from BipoläR has been used in several peer-reviewed publications. Studies have provided knowledge on effectiveness, side effects and use of pharmacological and psychological treatment in bipolar disorder. In addition, findings on the diagnosis of bipolar disorder, risk factors for attempted and completed suicide and health economics have been reported. The Swedish Bipolar Collection project has contributed to a large number of published studies and provides important information on the genetic architecture of bipolar disorder, the impact of genetic variation on disease characteristics and treatment outcome.Future plans Data collection is ongoing with no fixed end date. Currently, approximately 5000 new registrations are added each year. Cohort data are available via a formalised request procedure from Centre of Registers Västra Götaland (e-mail: registercentrum@vgregion.se). Data requests for research purposes require an entity responsible for the research and an ethical approval. |
| format | Article |
| id | doaj-art-3b96f9eed3324143a7436fbc2470e1f9 |
| institution | OA Journals |
| issn | 2044-6055 |
| language | English |
| publishDate | 2022-12-01 |
| publisher | BMJ Publishing Group |
| record_format | Article |
| series | BMJ Open |
| spelling | doaj-art-3b96f9eed3324143a7436fbc2470e1f92025-08-20T02:27:43ZengBMJ Publishing GroupBMJ Open2044-60552022-12-01121210.1136/bmjopen-2022-064385Cohort profile: the Swedish National Quality Register for bipolar disorder(BipoläR)Axel Nordenskjöld0Mikael Landén1Bo Runeson2Erik Pålsson3Lydia Melchior4Kristina Lindwall Sundel5Alina Karanti6Erik Joas7Mattias Agestam8University Health Care Research Centre, Faculty of Medicine and Health, Orebro Universitet, Orebro, SwedenPsychiatry and Neurochemistry, University of Gothenburg, Goteborg, Sweden5 Department of Clinical Neuroscience, Karolinska Institute, Stockholm, SwedenPsychiatry and Neurochemistry, University of Gothenburg, Goteborg, SwedenBipolarmottagning, Sahlgrenska University Hospital, Goteborg, SwedenBipolarmottagning, Sahlgrenska University Hospital, Goteborg, SwedenPsychiatry and Neurochemistry, University of Gothenburg, Goteborg, SwedenDepartment of Psychiatry and Neurochemistry, University of Gothenburg, Institute of Neuroscience and Physiology, Gothenburg, SwedenNorthern Stockholm Psychiatry, Stockholm, SwedenPurpose The Swedish National Quality Register for bipolar affective disorder, BipoläR, was established in 2004 to provide nationwide indicators for quality assessment and development in the clinical care of individuals with bipolar spectrum disorder. An ancillary aim was to provide data for bipolar disorder research.Participants Inclusion criteria for registration in BipoläR is a diagnosis of bipolar spectrum disorder (ICD codes: F25.0, F30.1–F30.2, F30.8–F31.9, F34.0) and treatment at an outpatient clinic in Sweden. BipoläR collects data from baseline and annual follow-up visits throughout Sweden. Data is collected using questionnaires administered by healthcare staff. The questions cover sociodemographic, diagnostic, treatment, outcomes and patient reported outcome variables. The register currently includes 39 583 individual patients with a total of 75 423 baseline and follow-up records.Findings to date Data from BipoläR has been used in several peer-reviewed publications. Studies have provided knowledge on effectiveness, side effects and use of pharmacological and psychological treatment in bipolar disorder. In addition, findings on the diagnosis of bipolar disorder, risk factors for attempted and completed suicide and health economics have been reported. The Swedish Bipolar Collection project has contributed to a large number of published studies and provides important information on the genetic architecture of bipolar disorder, the impact of genetic variation on disease characteristics and treatment outcome.Future plans Data collection is ongoing with no fixed end date. Currently, approximately 5000 new registrations are added each year. Cohort data are available via a formalised request procedure from Centre of Registers Västra Götaland (e-mail: registercentrum@vgregion.se). Data requests for research purposes require an entity responsible for the research and an ethical approval.https://bmjopen.bmj.com/content/12/12/e064385.full |
| spellingShingle | Axel Nordenskjöld Mikael Landén Bo Runeson Erik Pålsson Lydia Melchior Kristina Lindwall Sundel Alina Karanti Erik Joas Mattias Agestam Cohort profile: the Swedish National Quality Register for bipolar disorder(BipoläR) BMJ Open |
| title | Cohort profile: the Swedish National Quality Register for bipolar disorder(BipoläR) |
| title_full | Cohort profile: the Swedish National Quality Register for bipolar disorder(BipoläR) |
| title_fullStr | Cohort profile: the Swedish National Quality Register for bipolar disorder(BipoläR) |
| title_full_unstemmed | Cohort profile: the Swedish National Quality Register for bipolar disorder(BipoläR) |
| title_short | Cohort profile: the Swedish National Quality Register for bipolar disorder(BipoläR) |
| title_sort | cohort profile the swedish national quality register for bipolar disorder bipolar |
| url | https://bmjopen.bmj.com/content/12/12/e064385.full |
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