Exploring the similarities and differences of variables collected by burn registers globally: protocol for a data dictionary review study
Introduction Burn registers can provide high-quality clinical data that can be used for surveillance, research, planning service provision and clinical quality assessment. Many countrywide and intercountry burn registers now exist. The variables collected by burn registers are not standardised inter...
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| Format: | Article |
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BMJ Publishing Group
2023-02-01
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| Series: | BMJ Open |
| Online Access: | https://bmjopen.bmj.com/content/13/2/e066512.full |
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| author | Amber Young Ken Dunn Michael Peck Yvonne Singer Emily Bebbington Joanna Miles |
| author_facet | Amber Young Ken Dunn Michael Peck Yvonne Singer Emily Bebbington Joanna Miles |
| author_sort | Amber Young |
| collection | DOAJ |
| description | Introduction Burn registers can provide high-quality clinical data that can be used for surveillance, research, planning service provision and clinical quality assessment. Many countrywide and intercountry burn registers now exist. The variables collected by burn registers are not standardised internationally. Few international burn register data comparisons are completed beyond basic morbidity and mortality statistics. Data comparisons across registers require analysis of homogenous variables. Little work has been done to understand whether burn registers have sufficiently similar variables to enable useful comparisons. The aim of this project is to compare the variables collected in countrywide and intercountry burn registers internationally to understand their similarities and differences.Methods and analysis Burn register custodians will be invited to participate in the study and to share their register data dictionaries. Study objectives are to compare patient inclusion and exclusion criteria of each participating burn register; determine which variables are collected by each register, and if variables are required or optional, identify common variable themes; and compare a sample of variables to understand how they are defined and measured. All variable names will be extracted from each register and common themes will be identified. Detailed information will be extracted for a sample of variables to give a deeper insight into similarities and differences between registers.Ethics and dissemination No patient data will be used in this project. Permission to use each register’s data dictionary will be sought from respective register custodians. Results will be presented at international meetings and published in open access journals. These results will be of interest to register custodians and researchers wishing to explore international data comparisons, and countries wishing to establish their own burn register. |
| format | Article |
| id | doaj-art-3a51223bf82e425f9dedf3ab3e97e561 |
| institution | DOAJ |
| issn | 2044-6055 |
| language | English |
| publishDate | 2023-02-01 |
| publisher | BMJ Publishing Group |
| record_format | Article |
| series | BMJ Open |
| spelling | doaj-art-3a51223bf82e425f9dedf3ab3e97e5612025-08-20T03:01:59ZengBMJ Publishing GroupBMJ Open2044-60552023-02-0113210.1136/bmjopen-2022-066512Exploring the similarities and differences of variables collected by burn registers globally: protocol for a data dictionary review studyAmber Young0Ken Dunn1Michael Peck2Yvonne Singer3Emily Bebbington4Joanna Miles5Centre for Surgical Research, Population Health Sciences, Bristol Biomedical Research Centre, Bristol Medical School, University of Bristol, Bristol, UKBurn Care Informatics Group, NHS England, Manchester, UKArizona Burn Center, Valleywise Health Medical Center, Phoenix, Arizona, USAVictoria Adult Burn Service, The Alfred Hospital, Melbourne, Victoria, AustraliaCentre for Mental Health and Society, Bangor University, Wrexham, UKPlastic and Reconstructive Surgery Department, Norfolk and Norwich University Hospitals NHS Foundation Trust, Norwich, UKIntroduction Burn registers can provide high-quality clinical data that can be used for surveillance, research, planning service provision and clinical quality assessment. Many countrywide and intercountry burn registers now exist. The variables collected by burn registers are not standardised internationally. Few international burn register data comparisons are completed beyond basic morbidity and mortality statistics. Data comparisons across registers require analysis of homogenous variables. Little work has been done to understand whether burn registers have sufficiently similar variables to enable useful comparisons. The aim of this project is to compare the variables collected in countrywide and intercountry burn registers internationally to understand their similarities and differences.Methods and analysis Burn register custodians will be invited to participate in the study and to share their register data dictionaries. Study objectives are to compare patient inclusion and exclusion criteria of each participating burn register; determine which variables are collected by each register, and if variables are required or optional, identify common variable themes; and compare a sample of variables to understand how they are defined and measured. All variable names will be extracted from each register and common themes will be identified. Detailed information will be extracted for a sample of variables to give a deeper insight into similarities and differences between registers.Ethics and dissemination No patient data will be used in this project. Permission to use each register’s data dictionary will be sought from respective register custodians. Results will be presented at international meetings and published in open access journals. These results will be of interest to register custodians and researchers wishing to explore international data comparisons, and countries wishing to establish their own burn register.https://bmjopen.bmj.com/content/13/2/e066512.full |
| spellingShingle | Amber Young Ken Dunn Michael Peck Yvonne Singer Emily Bebbington Joanna Miles Exploring the similarities and differences of variables collected by burn registers globally: protocol for a data dictionary review study BMJ Open |
| title | Exploring the similarities and differences of variables collected by burn registers globally: protocol for a data dictionary review study |
| title_full | Exploring the similarities and differences of variables collected by burn registers globally: protocol for a data dictionary review study |
| title_fullStr | Exploring the similarities and differences of variables collected by burn registers globally: protocol for a data dictionary review study |
| title_full_unstemmed | Exploring the similarities and differences of variables collected by burn registers globally: protocol for a data dictionary review study |
| title_short | Exploring the similarities and differences of variables collected by burn registers globally: protocol for a data dictionary review study |
| title_sort | exploring the similarities and differences of variables collected by burn registers globally protocol for a data dictionary review study |
| url | https://bmjopen.bmj.com/content/13/2/e066512.full |
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