Clinical and cost evaluation of intensive support team (IST) models for adults with intellectual disabilities who display challenging behaviour: a comparative cohort study protocol
Introduction Approximately 17% of adults with intellectual disabilities (ID) living in the community display behaviours that challenge. Intensive support teams (ISTs) have been recommended to provide high-quality responsive care aimed at avoiding unnecessary admissions and reducing lengthy inpatient...
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BMJ Publishing Group
2021-03-01
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| Series: | BMJ Open |
| Online Access: | https://bmjopen.bmj.com/content/11/3/e043358.full |
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| author | Angela Hassiotis Rebecca Jones Brynmor Lloyd-Evans Renee Romeo Nicola Morant Ken Courtenay Ian Hall Athanasia Kouroupa Vicky Crossey Laurence Taggart Peter Langdon Victoria Ratti Vincent Kirchner |
| author_facet | Angela Hassiotis Rebecca Jones Brynmor Lloyd-Evans Renee Romeo Nicola Morant Ken Courtenay Ian Hall Athanasia Kouroupa Vicky Crossey Laurence Taggart Peter Langdon Victoria Ratti Vincent Kirchner |
| author_sort | Angela Hassiotis |
| collection | DOAJ |
| description | Introduction Approximately 17% of adults with intellectual disabilities (ID) living in the community display behaviours that challenge. Intensive support teams (ISTs) have been recommended to provide high-quality responsive care aimed at avoiding unnecessary admissions and reducing lengthy inpatient stays in England. We have identified two models of ISTs (model 1: enhanced provision and model 2: independent provision). This study aims to investigate the clinical and cost-effectiveness of the two models of ISTs.Methods and analysis A cohort of 226 adults with ID displaying behaviour that challenges who receive support from ISTs from each model will be recruited and assessed at baseline and 9 months later to compare the clinical and cost-effectiveness between models. The primary outcome is reduction in challenging behaviour measured by the Aberrant Behaviour Checklist-Community (ABC-C). The mean difference in change in ABC score between the two IST models will be estimated from a multilevel linear regression model. Secondary outcomes include mental health status, clinical risk, quality of life, health-related quality of life, level of functioning and service use. We will undertake a cost-effectiveness analysis taking both a health and social care and wider societal perspective. Semistructured interviews will be conducted with multiple stakeholders (ie, service users, paid/family carers, IST managers/staff) to investigate the experience of IST care as well as an online survey of referrers to capture their contact with the teams.Ethics and dissemination The study was approved by the London–Bromley Research Ethics Committee (REC reference: 18/LO/0890). Informed consent will be obtained from the person with ID, or a family/nominated consultee for those lacking capacity and from his/her caregivers. The findings of the study will be disseminated to academic audiences, professionals, experts by experience and arm’s-length bodies and policymakers via publications, seminars and digital platforms.Trial registration number ClinicalTrials.gov Registry (NCT03586375). |
| format | Article |
| id | doaj-art-3a4cdc9e440d49fc969a9d7f4571812a |
| institution | OA Journals |
| issn | 2044-6055 |
| language | English |
| publishDate | 2021-03-01 |
| publisher | BMJ Publishing Group |
| record_format | Article |
| series | BMJ Open |
| spelling | doaj-art-3a4cdc9e440d49fc969a9d7f4571812a2025-08-20T02:17:49ZengBMJ Publishing GroupBMJ Open2044-60552021-03-0111310.1136/bmjopen-2020-043358Clinical and cost evaluation of intensive support team (IST) models for adults with intellectual disabilities who display challenging behaviour: a comparative cohort study protocolAngela Hassiotis0Rebecca Jones1Brynmor Lloyd-Evans2Renee Romeo3Nicola Morant4Ken Courtenay5Ian Hall6Athanasia Kouroupa7Vicky Crossey8Laurence Taggart9Peter Langdon10Victoria Ratti11Vincent Kirchner12Division of Psychiatry, University College London, London, UKDietetics, St George`s University Hospitals NHS Foundation Trust, London, UKtopic adviser and associate professorInstitute of Psychiatry, Psychology and Neurosciences, King`s College London, London, UKDivision of Psychiatry, Faculty of Brain Sciences, University College London, London, UKFaculty of Psychiatry of Intellectual Disability, Royal College of Psychiatrists, London, UKDivision of Informatics, Imaging and Data Sciences, The University of Manchester, Manchester, UKDivision of Psychiatry, University College London, London, UKSouth West Community Learning Disability Team & Mental Health Intensive Support and Treatment Team, NHS Lothian, Edinburgh, UK1 Institute of Nursing and Health Research, Ulster University, Belfast, UKCentre for Educational Development, Appraisal and Research, University of Warwick, Coventry, UKDivision of Psychiatry, University College London, London, UKMedical Director, Camden and Islington NHS Foundation Trust, London, UKIntroduction Approximately 17% of adults with intellectual disabilities (ID) living in the community display behaviours that challenge. Intensive support teams (ISTs) have been recommended to provide high-quality responsive care aimed at avoiding unnecessary admissions and reducing lengthy inpatient stays in England. We have identified two models of ISTs (model 1: enhanced provision and model 2: independent provision). This study aims to investigate the clinical and cost-effectiveness of the two models of ISTs.Methods and analysis A cohort of 226 adults with ID displaying behaviour that challenges who receive support from ISTs from each model will be recruited and assessed at baseline and 9 months later to compare the clinical and cost-effectiveness between models. The primary outcome is reduction in challenging behaviour measured by the Aberrant Behaviour Checklist-Community (ABC-C). The mean difference in change in ABC score between the two IST models will be estimated from a multilevel linear regression model. Secondary outcomes include mental health status, clinical risk, quality of life, health-related quality of life, level of functioning and service use. We will undertake a cost-effectiveness analysis taking both a health and social care and wider societal perspective. Semistructured interviews will be conducted with multiple stakeholders (ie, service users, paid/family carers, IST managers/staff) to investigate the experience of IST care as well as an online survey of referrers to capture their contact with the teams.Ethics and dissemination The study was approved by the London–Bromley Research Ethics Committee (REC reference: 18/LO/0890). Informed consent will be obtained from the person with ID, or a family/nominated consultee for those lacking capacity and from his/her caregivers. The findings of the study will be disseminated to academic audiences, professionals, experts by experience and arm’s-length bodies and policymakers via publications, seminars and digital platforms.Trial registration number ClinicalTrials.gov Registry (NCT03586375).https://bmjopen.bmj.com/content/11/3/e043358.full |
| spellingShingle | Angela Hassiotis Rebecca Jones Brynmor Lloyd-Evans Renee Romeo Nicola Morant Ken Courtenay Ian Hall Athanasia Kouroupa Vicky Crossey Laurence Taggart Peter Langdon Victoria Ratti Vincent Kirchner Clinical and cost evaluation of intensive support team (IST) models for adults with intellectual disabilities who display challenging behaviour: a comparative cohort study protocol BMJ Open |
| title | Clinical and cost evaluation of intensive support team (IST) models for adults with intellectual disabilities who display challenging behaviour: a comparative cohort study protocol |
| title_full | Clinical and cost evaluation of intensive support team (IST) models for adults with intellectual disabilities who display challenging behaviour: a comparative cohort study protocol |
| title_fullStr | Clinical and cost evaluation of intensive support team (IST) models for adults with intellectual disabilities who display challenging behaviour: a comparative cohort study protocol |
| title_full_unstemmed | Clinical and cost evaluation of intensive support team (IST) models for adults with intellectual disabilities who display challenging behaviour: a comparative cohort study protocol |
| title_short | Clinical and cost evaluation of intensive support team (IST) models for adults with intellectual disabilities who display challenging behaviour: a comparative cohort study protocol |
| title_sort | clinical and cost evaluation of intensive support team ist models for adults with intellectual disabilities who display challenging behaviour a comparative cohort study protocol |
| url | https://bmjopen.bmj.com/content/11/3/e043358.full |
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