Real-world holistic care for adult cancer survivors and their families: improved family dynamics and positive outlook

For Pete’s Sake is a non-profit organization that provides adult cancer survivors and their families with complimentary holistic support. Families receive a 4–7-day respite experience. Post-respite, family members receive ongoing support (monthly newsletters, private Facebook groups, mont...

Full description

Saved in:
Bibliographic Details
Main Authors: Natalie Hamrick, Marcella Bossow Schankweiler, Pamela Brumbaugh, Marissa Lambrecht, Aimee Lillie, Stephanie Magoon, Samantha Sloan, Ryann Gallagher Kulak, Virginia Dunne, Robert Leonard, Eric Toppy
Format: Article
Language:English
Published: Academia.edu Journals 2025-02-01
Series:Academia Mental Health & Well-Being
Online Access:https://www.academia.edu/127626655/Real_world_holistic_care_for_adult_cancer_survivors_and_their_families_improved_family_dynamics_and_positive_outlook
Tags: Add Tag
No Tags, Be the first to tag this record!
_version_ 1850141528085757952
author Natalie Hamrick
Marcella Bossow Schankweiler
Pamela Brumbaugh
Marissa Lambrecht
Aimee Lillie
Stephanie Magoon
Samantha Sloan
Ryann Gallagher Kulak
Virginia Dunne
Robert Leonard
Eric Toppy
author_facet Natalie Hamrick
Marcella Bossow Schankweiler
Pamela Brumbaugh
Marissa Lambrecht
Aimee Lillie
Stephanie Magoon
Samantha Sloan
Ryann Gallagher Kulak
Virginia Dunne
Robert Leonard
Eric Toppy
author_sort Natalie Hamrick
collection DOAJ
description For Pete’s Sake is a non-profit organization that provides adult cancer survivors and their families with complimentary holistic support. Families receive a 4–7-day respite experience. Post-respite, family members receive ongoing support (monthly newsletters, private Facebook groups, monthly gatherings, annual events). Anecdotally, families report feeling happier, closer, and recharged for battling cancer, so the purpose of this study was to assess these outcomes. This was a single group, pre-test/post-test study. Oncology professionals nominated 24–55-year-olds with physician-diagnosed cancer (any stage/site) clinically able to partake in a respite experience. Families selected destinations (e.g., Florida, Caribbean, Jersey Shore) and received materials to encourage communication and an emotionally/spiritually meaningful experience. Of the 464 families completing respites in 2014–2019, 190 families (41%) provided pre- and post-respite data, and 104 families (55%) completed the 6-month follow-up. Pre-, immediately post-, and 6-months post-respite, cancer survivors, caregivers, and children completed surveys assessing family hardiness, spousal or parent–child communication, cancer coping efficacy, and joviality. Cancer survivors experienced post-respite increases in family hardiness, caregiver and child communication, joviality, and coping efficacy. Caregivers experienced post-respite increases in survivor communication, joviality, and coping efficacy but not family hardiness. Children experienced post-respite increases in joviality, but not family hardiness or communication. At the 6-month follow-up, survivor family hardiness returned to pre-respite levels and child communication decreased, but all other outcomes were higher than pre-respite levels. All caregiver outcomes were higher than pre-respite levels; child outcomes returned to pre-respite levels. These results suggest that investing resources in families may help improve relationships and facilitate efforts to stay engaged in the cancer battle.
format Article
id doaj-art-38764d68d8cb4f6da14143103fd6eb0d
institution OA Journals
issn 2997-9196
language English
publishDate 2025-02-01
publisher Academia.edu Journals
record_format Article
series Academia Mental Health & Well-Being
spelling doaj-art-38764d68d8cb4f6da14143103fd6eb0d2025-08-20T02:29:24ZengAcademia.edu JournalsAcademia Mental Health & Well-Being2997-91962025-02-012110.20935/MHealthWellB7525Real-world holistic care for adult cancer survivors and their families: improved family dynamics and positive outlookNatalie Hamrick0Marcella Bossow Schankweiler1Pamela Brumbaugh2Marissa Lambrecht3Aimee Lillie4Stephanie Magoon5Samantha Sloan6Ryann Gallagher Kulak7Virginia Dunne8Robert Leonard9Eric Toppy10Department of Psychology, Liberty University, Lynchburg, VA 24515, USA.For Pete’s Sake Cancer Respite Foundation, Plymouth Meeting, PA 19462, USA.For Pete’s Sake Cancer Respite Foundation, Plymouth Meeting, PA 19462, USA.For Pete’s Sake Cancer Respite Foundation, Plymouth Meeting, PA 19462, USA.Department of Psychology, Liberty University, Lynchburg, VA 24515, USA.Department of Psychology, Northcentral University, Minneapolis, MN 55404, USA.Department of Psychology, Northcentral University, Minneapolis, MN 55404, USA.For Pete’s Sake Cancer Respite Foundation, Plymouth Meeting, PA 19462, USA.For Pete’s Sake Cancer Respite Foundation, Plymouth Meeting, PA 19462, USA.For Pete’s Sake Cancer Respite Foundation, Plymouth Meeting, PA 19462, USA.For Pete’s Sake Cancer Respite Foundation, Plymouth Meeting, PA 19462, USA. For Pete’s Sake is a non-profit organization that provides adult cancer survivors and their families with complimentary holistic support. Families receive a 4–7-day respite experience. Post-respite, family members receive ongoing support (monthly newsletters, private Facebook groups, monthly gatherings, annual events). Anecdotally, families report feeling happier, closer, and recharged for battling cancer, so the purpose of this study was to assess these outcomes. This was a single group, pre-test/post-test study. Oncology professionals nominated 24–55-year-olds with physician-diagnosed cancer (any stage/site) clinically able to partake in a respite experience. Families selected destinations (e.g., Florida, Caribbean, Jersey Shore) and received materials to encourage communication and an emotionally/spiritually meaningful experience. Of the 464 families completing respites in 2014–2019, 190 families (41%) provided pre- and post-respite data, and 104 families (55%) completed the 6-month follow-up. Pre-, immediately post-, and 6-months post-respite, cancer survivors, caregivers, and children completed surveys assessing family hardiness, spousal or parent–child communication, cancer coping efficacy, and joviality. Cancer survivors experienced post-respite increases in family hardiness, caregiver and child communication, joviality, and coping efficacy. Caregivers experienced post-respite increases in survivor communication, joviality, and coping efficacy but not family hardiness. Children experienced post-respite increases in joviality, but not family hardiness or communication. At the 6-month follow-up, survivor family hardiness returned to pre-respite levels and child communication decreased, but all other outcomes were higher than pre-respite levels. All caregiver outcomes were higher than pre-respite levels; child outcomes returned to pre-respite levels. These results suggest that investing resources in families may help improve relationships and facilitate efforts to stay engaged in the cancer battle.https://www.academia.edu/127626655/Real_world_holistic_care_for_adult_cancer_survivors_and_their_families_improved_family_dynamics_and_positive_outlook
spellingShingle Natalie Hamrick
Marcella Bossow Schankweiler
Pamela Brumbaugh
Marissa Lambrecht
Aimee Lillie
Stephanie Magoon
Samantha Sloan
Ryann Gallagher Kulak
Virginia Dunne
Robert Leonard
Eric Toppy
Real-world holistic care for adult cancer survivors and their families: improved family dynamics and positive outlook
Academia Mental Health & Well-Being
title Real-world holistic care for adult cancer survivors and their families: improved family dynamics and positive outlook
title_full Real-world holistic care for adult cancer survivors and their families: improved family dynamics and positive outlook
title_fullStr Real-world holistic care for adult cancer survivors and their families: improved family dynamics and positive outlook
title_full_unstemmed Real-world holistic care for adult cancer survivors and their families: improved family dynamics and positive outlook
title_short Real-world holistic care for adult cancer survivors and their families: improved family dynamics and positive outlook
title_sort real world holistic care for adult cancer survivors and their families improved family dynamics and positive outlook
url https://www.academia.edu/127626655/Real_world_holistic_care_for_adult_cancer_survivors_and_their_families_improved_family_dynamics_and_positive_outlook
work_keys_str_mv AT nataliehamrick realworldholisticcareforadultcancersurvivorsandtheirfamiliesimprovedfamilydynamicsandpositiveoutlook
AT marcellabossowschankweiler realworldholisticcareforadultcancersurvivorsandtheirfamiliesimprovedfamilydynamicsandpositiveoutlook
AT pamelabrumbaugh realworldholisticcareforadultcancersurvivorsandtheirfamiliesimprovedfamilydynamicsandpositiveoutlook
AT marissalambrecht realworldholisticcareforadultcancersurvivorsandtheirfamiliesimprovedfamilydynamicsandpositiveoutlook
AT aimeelillie realworldholisticcareforadultcancersurvivorsandtheirfamiliesimprovedfamilydynamicsandpositiveoutlook
AT stephaniemagoon realworldholisticcareforadultcancersurvivorsandtheirfamiliesimprovedfamilydynamicsandpositiveoutlook
AT samanthasloan realworldholisticcareforadultcancersurvivorsandtheirfamiliesimprovedfamilydynamicsandpositiveoutlook
AT ryanngallagherkulak realworldholisticcareforadultcancersurvivorsandtheirfamiliesimprovedfamilydynamicsandpositiveoutlook
AT virginiadunne realworldholisticcareforadultcancersurvivorsandtheirfamiliesimprovedfamilydynamicsandpositiveoutlook
AT robertleonard realworldholisticcareforadultcancersurvivorsandtheirfamiliesimprovedfamilydynamicsandpositiveoutlook
AT erictoppy realworldholisticcareforadultcancersurvivorsandtheirfamiliesimprovedfamilydynamicsandpositiveoutlook