<i>‘Changing the Focus’</i>: Co-Design of a Novel Approach for Engaging People with Dementia in Physical Activity
Background: Promoting physical activity among people living with dementia is critical to maximise physical, cognitive and social benefits; yet the lack of knowledge, skills and confidence among health professionals, informal care partners and people with dementia deters participation. As the initial...
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2024-12-01
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| Online Access: | https://www.mdpi.com/2039-4403/15/1/2 |
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| author | Claudia Meyer Den-Ching A. Lee Michele Callisaya Morag E. Taylor Katherine Lawler Pazit Levinger Susan Hunter Dawn C. Mackey Elissa Burton Natasha Brusco Terry Haines Christina L. Ekegren Amelia Crabtree Keith D. Hill |
| author_facet | Claudia Meyer Den-Ching A. Lee Michele Callisaya Morag E. Taylor Katherine Lawler Pazit Levinger Susan Hunter Dawn C. Mackey Elissa Burton Natasha Brusco Terry Haines Christina L. Ekegren Amelia Crabtree Keith D. Hill |
| author_sort | Claudia Meyer |
| collection | DOAJ |
| description | Background: Promoting physical activity among people living with dementia is critical to maximise physical, cognitive and social benefits; yet the lack of knowledge, skills and confidence among health professionals, informal care partners and people with dementia deters participation. As the initial phase of a larger feasibility study, co-design was employed to develop a new model of community care, <i>‘Changing the Focus’,</i> to facilitate the physical activity participation of older people living with mild dementia. Methods: Co-design methodology was utilised with nine stakeholders (with experience in referring to or providing physical activity programs and/or contributing to policy and program planning) over three workshops plus individual interviews with four care partners of people with dementia. Insights were gathered on the physical activity for people with mild dementia, referral pathways were explored and ‘personas’ were developed and refined. Materials and resources to support exercise providers and referrers to work effectively with people with mild dementia were finalised. Results: Three ‘personas’ emerged from the co-design sessions, aligned with stages of behaviour change: (1) hesitant to engage; (2) preparing to engage; and (3) actively engaged. Referral pathway discussions identified challenges related to limited resources, limited knowledge, access constraints and individual factors. Opportunities were classified as using champions, streamlining processes, recognising triggers for disengagement, influencing beliefs and attitudes, and means of communication. Conclusion: This study captured the views of physical activity referrers and providers and informal care partners in an inclusive and iterative manner. The use of co-design ensured a robust approach to facilitating participation in formal and informal physical activity options for people living with mild dementia. This study has provided the necessary framework from which to develop and test training and resources for the next stage of intervention (a feasibility trial) to improve physical activity participation for people with dementia. |
| format | Article |
| id | doaj-art-371b0c6b9b244b72833157f951368e12 |
| institution | Kabale University |
| issn | 2039-439X 2039-4403 |
| language | English |
| publishDate | 2024-12-01 |
| publisher | MDPI AG |
| record_format | Article |
| series | Nursing Reports |
| spelling | doaj-art-371b0c6b9b244b72833157f951368e122025-01-24T13:44:26ZengMDPI AGNursing Reports2039-439X2039-44032024-12-01151210.3390/nursrep15010002<i>‘Changing the Focus’</i>: Co-Design of a Novel Approach for Engaging People with Dementia in Physical ActivityClaudia Meyer0Den-Ching A. Lee1Michele Callisaya2Morag E. Taylor3Katherine Lawler4Pazit Levinger5Susan Hunter6Dawn C. Mackey7Elissa Burton8Natasha Brusco9Terry Haines10Christina L. Ekegren11Amelia Crabtree12Keith D. Hill13Bolton Clarke Research Institute, Forest Hill, VIC 3131, AustraliaRehabilitation, Ageing and Independent Living (RAIL) Research Centre, Monash University, Frankston, VIC 3199, AustraliaNational Centre for Healthy Ageing (NCHA), Monash University (Peninsula Campus) and Peninsula Health, Frankston, VIC 3199, AustraliaFalls, Balance and Injury Research Centre, Neuroscience Research Australia, Randwick, NSW 2031, AustraliaSchool of Allied Health, Human Services and Sport, La Trobe University, Bundoora, VIC 3083, AustraliaNational Ageing Research Institute, Parkville, VIC 3052, AustraliaSchool of Physical Therapy, University of Western Ontario, London, ON N6A 0E5, CanadaDepartment of Biomedical Physiology and Kinesiology, Simon Fraser University, Burnaby, BC V5A 1S6, CanadaCurtin School of Allied Health, Faculty of Health Sciences, Curtin University, Perth, WA 6000, AustraliaRehabilitation, Ageing and Independent Living (RAIL) Research Centre, Monash University, Frankston, VIC 3199, AustraliaNational Centre for Healthy Ageing (NCHA), Monash University (Peninsula Campus) and Peninsula Health, Frankston, VIC 3199, AustraliaRehabilitation, Ageing and Independent Living (RAIL) Research Centre, Monash University, Frankston, VIC 3199, AustraliaAged & Rehabilitation Division, Monash Health, Clayton, VIC 3168, AustraliaRehabilitation, Ageing and Independent Living (RAIL) Research Centre, Monash University, Frankston, VIC 3199, AustraliaBackground: Promoting physical activity among people living with dementia is critical to maximise physical, cognitive and social benefits; yet the lack of knowledge, skills and confidence among health professionals, informal care partners and people with dementia deters participation. As the initial phase of a larger feasibility study, co-design was employed to develop a new model of community care, <i>‘Changing the Focus’,</i> to facilitate the physical activity participation of older people living with mild dementia. Methods: Co-design methodology was utilised with nine stakeholders (with experience in referring to or providing physical activity programs and/or contributing to policy and program planning) over three workshops plus individual interviews with four care partners of people with dementia. Insights were gathered on the physical activity for people with mild dementia, referral pathways were explored and ‘personas’ were developed and refined. Materials and resources to support exercise providers and referrers to work effectively with people with mild dementia were finalised. Results: Three ‘personas’ emerged from the co-design sessions, aligned with stages of behaviour change: (1) hesitant to engage; (2) preparing to engage; and (3) actively engaged. Referral pathway discussions identified challenges related to limited resources, limited knowledge, access constraints and individual factors. Opportunities were classified as using champions, streamlining processes, recognising triggers for disengagement, influencing beliefs and attitudes, and means of communication. Conclusion: This study captured the views of physical activity referrers and providers and informal care partners in an inclusive and iterative manner. The use of co-design ensured a robust approach to facilitating participation in formal and informal physical activity options for people living with mild dementia. This study has provided the necessary framework from which to develop and test training and resources for the next stage of intervention (a feasibility trial) to improve physical activity participation for people with dementia.https://www.mdpi.com/2039-4403/15/1/2dementiaphysical activitycommunityco-designnursing |
| spellingShingle | Claudia Meyer Den-Ching A. Lee Michele Callisaya Morag E. Taylor Katherine Lawler Pazit Levinger Susan Hunter Dawn C. Mackey Elissa Burton Natasha Brusco Terry Haines Christina L. Ekegren Amelia Crabtree Keith D. Hill <i>‘Changing the Focus’</i>: Co-Design of a Novel Approach for Engaging People with Dementia in Physical Activity Nursing Reports dementia physical activity community co-design nursing |
| title | <i>‘Changing the Focus’</i>: Co-Design of a Novel Approach for Engaging People with Dementia in Physical Activity |
| title_full | <i>‘Changing the Focus’</i>: Co-Design of a Novel Approach for Engaging People with Dementia in Physical Activity |
| title_fullStr | <i>‘Changing the Focus’</i>: Co-Design of a Novel Approach for Engaging People with Dementia in Physical Activity |
| title_full_unstemmed | <i>‘Changing the Focus’</i>: Co-Design of a Novel Approach for Engaging People with Dementia in Physical Activity |
| title_short | <i>‘Changing the Focus’</i>: Co-Design of a Novel Approach for Engaging People with Dementia in Physical Activity |
| title_sort | i changing the focus i co design of a novel approach for engaging people with dementia in physical activity |
| topic | dementia physical activity community co-design nursing |
| url | https://www.mdpi.com/2039-4403/15/1/2 |
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