A roadmap for improving representation in clinical trials
Clinical trials continue to struggle with recruiting diverse participants that include historically underrepresented and minoritized patients, who are typically patients in non-white racial and ethnic groups and have low income (Medicaid). Enrolling diverse participants will benefit the health scien...
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| Main Authors: | , , , , |
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| Format: | Article |
| Language: | English |
| Published: |
Elsevier
2024-12-01
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| Series: | Contemporary Clinical Trials Communications |
| Online Access: | http://www.sciencedirect.com/science/article/pii/S2451865424001212 |
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| _version_ | 1846117784775294976 |
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| author | Amanda F. Petrik Nora B. Henrikson Gloria D. Coronado Erin Keast Matthew P. Banegas |
| author_facet | Amanda F. Petrik Nora B. Henrikson Gloria D. Coronado Erin Keast Matthew P. Banegas |
| author_sort | Amanda F. Petrik |
| collection | DOAJ |
| description | Clinical trials continue to struggle with recruiting diverse participants that include historically underrepresented and minoritized patients, who are typically patients in non-white racial and ethnic groups and have low income (Medicaid). Enrolling diverse participants will benefit the health sciences by providing more generalizable findings. The Cancer Financial Experience project (CAFÉ) study sought to improve financial distress by providing financial navigation for newly diagnosed cancer patients, and intentionally recruited diverse participants. All diverse participants consented at slightly higher rates than non-diverse participants (21.3 % vs. 20.1 %). Spanish-speaking patients consented at a much higher rate than non-Spanish speakers (36.4 % vs. 20.2 % respectively). Here we discuss how we increased our recruitment of diverse participants. Obtaining diverse participation is achievable and will provide more meaningful findings. |
| format | Article |
| id | doaj-art-36f1de0c260d41e18e25470ab06b40a4 |
| institution | Kabale University |
| issn | 2451-8654 |
| language | English |
| publishDate | 2024-12-01 |
| publisher | Elsevier |
| record_format | Article |
| series | Contemporary Clinical Trials Communications |
| spelling | doaj-art-36f1de0c260d41e18e25470ab06b40a42024-12-18T08:49:54ZengElsevierContemporary Clinical Trials Communications2451-86542024-12-0142101374A roadmap for improving representation in clinical trialsAmanda F. Petrik0Nora B. Henrikson1Gloria D. Coronado2Erin Keast3Matthew P. Banegas4Kaiser Permanente Center for Health Research, 3800 N. Interstate Ave, Portland, OR, 97227, United States; Corresponding author.Kaiser Permanente Washington Health Research Institute, 1730 Minor Ave. #1360, Seattle, WA, 98101, United StatesKaiser Permanente Center for Health Research, 3800 N. Interstate Ave, Portland, OR, 97227, United StatesKaiser Permanente Center for Health Research, 3800 N. Interstate Ave, Portland, OR, 97227, United StatesRadiation Medicine and Applied Sciences, Cancer Control Program, Moores Cancer Center University of California San Diego, 9452 Medical Center Drive, MC 0861, La Jolla, CA, 92037, United StatesClinical trials continue to struggle with recruiting diverse participants that include historically underrepresented and minoritized patients, who are typically patients in non-white racial and ethnic groups and have low income (Medicaid). Enrolling diverse participants will benefit the health sciences by providing more generalizable findings. The Cancer Financial Experience project (CAFÉ) study sought to improve financial distress by providing financial navigation for newly diagnosed cancer patients, and intentionally recruited diverse participants. All diverse participants consented at slightly higher rates than non-diverse participants (21.3 % vs. 20.1 %). Spanish-speaking patients consented at a much higher rate than non-Spanish speakers (36.4 % vs. 20.2 % respectively). Here we discuss how we increased our recruitment of diverse participants. Obtaining diverse participation is achievable and will provide more meaningful findings.http://www.sciencedirect.com/science/article/pii/S2451865424001212 |
| spellingShingle | Amanda F. Petrik Nora B. Henrikson Gloria D. Coronado Erin Keast Matthew P. Banegas A roadmap for improving representation in clinical trials Contemporary Clinical Trials Communications |
| title | A roadmap for improving representation in clinical trials |
| title_full | A roadmap for improving representation in clinical trials |
| title_fullStr | A roadmap for improving representation in clinical trials |
| title_full_unstemmed | A roadmap for improving representation in clinical trials |
| title_short | A roadmap for improving representation in clinical trials |
| title_sort | roadmap for improving representation in clinical trials |
| url | http://www.sciencedirect.com/science/article/pii/S2451865424001212 |
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