Aphallia in a patient with 9q34 duplication syndrome: a case report

Abstract Introduction Congenital aphallia is a rare condition with less than 100 documented cases. It may occur isolated or in association with additional anomalies such as gastrointestinal malformations, caudal defects, imperforate anus, and other genitourinary anomalies. All previously reported pa...

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Main Authors: Juan Pablo Meza-Espinoza, Juan Ramón González-García, Liliana Itzel Patrón-Baro, Rosa María González-Arreola, José Alfredo Contreras-Gutiérrez, Josué Camberos-Barraza, Jesús Madueña-Molina, Alejandro Camacho-Zamora, Roberto Iván Avendaño-Gálvez, Verónica Judith Picos-Cárdenas
Format: Article
Language:English
Published: BMC 2025-05-01
Series:BMC Urology
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Online Access:https://doi.org/10.1186/s12894-025-01818-3
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author Juan Pablo Meza-Espinoza
Juan Ramón González-García
Liliana Itzel Patrón-Baro
Rosa María González-Arreola
José Alfredo Contreras-Gutiérrez
Josué Camberos-Barraza
Jesús Madueña-Molina
Alejandro Camacho-Zamora
Roberto Iván Avendaño-Gálvez
Verónica Judith Picos-Cárdenas
author_facet Juan Pablo Meza-Espinoza
Juan Ramón González-García
Liliana Itzel Patrón-Baro
Rosa María González-Arreola
José Alfredo Contreras-Gutiérrez
Josué Camberos-Barraza
Jesús Madueña-Molina
Alejandro Camacho-Zamora
Roberto Iván Avendaño-Gálvez
Verónica Judith Picos-Cárdenas
author_sort Juan Pablo Meza-Espinoza
collection DOAJ
description Abstract Introduction Congenital aphallia is a rare condition with less than 100 documented cases. It may occur isolated or in association with additional anomalies such as gastrointestinal malformations, caudal defects, imperforate anus, and other genitourinary anomalies. All previously reported patients with aphallia had a normal karyotype; here, we report the first case associated with a chromosomal imbalance. Case presentation A newborn was found to have an absence of the penis; a pre-sphincteric urethrorectal fistula was identified and a vesicostomy was performed. Hormonal studies at three months showed elevated levels of 17-α-hydroxyprogesterone. Physical examination at 2.5 years old revealed a bifid, rough, pigmented scrotum, without palpable gonads or a urethral meatus. Ultrasound imaging showed both testicles in the inguinoscrotal region. He also presented with some craniofacial features, including dolichocephaly, prominent forehead, left palpebral ptosis and strabismus of the right eye, convex nasal ridge, narrow and high nasal bridge, overhanging nasal tip, short philtrum, ogival palate and bifid uvula, and large low-set ears rotated posteriorly. He also had hypotonia, a broad-based gait with poor balance, moderate laxity, bilateral flat feet, umbilical hernia, corpus callosum hypoplasia, and mild intellectual disability. His karyotype was 46,XY, der(15)t(9;15)(q34;p11)dn. An aCGH analysis revealed a duplication of ~ 9.7 Mb of the 9qter region containing 246 genes: arr[GRCh37] 9q34.11q34.3(131,348,076_141,019,088)x3. Conclusion To our knowledge, this is the first case of aphallia possibly associated with a chromosomal imbalance, specifically a 9q34.11-> qter duplication.
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spelling doaj-art-355ce94e7661405ea4953478a66fcf292025-08-20T02:34:19ZengBMCBMC Urology1471-24902025-05-012511510.1186/s12894-025-01818-3Aphallia in a patient with 9q34 duplication syndrome: a case reportJuan Pablo Meza-Espinoza0Juan Ramón González-García1Liliana Itzel Patrón-Baro2Rosa María González-Arreola3José Alfredo Contreras-Gutiérrez4Josué Camberos-Barraza5Jesús Madueña-Molina6Alejandro Camacho-Zamora7Roberto Iván Avendaño-Gálvez8Verónica Judith Picos-Cárdenas9Facultad de Medicina Matamoros, Universidad Autónoma de TamaulipasDivisión de Genética, Centro de Investigación Biomédica de Occidente, Instituto Mexicano del Seguro SocialMaestría en Ciencias en Biomedicina Molecular, Facultad de Medicina, Universidad Autónoma de SinaloaDoctorado en Genética Humana, Universidad de GuadalajaraCentro Investigación en Docencia en Ciencias de la Salud, Universidad Autónoma de SinaloaFacultad de Medicina, Universidad Autónoma de SinaloaFacultad de Medicina, Universidad Autónoma de SinaloaFacultad de Medicina, Universidad Autónoma de SinaloaCentro de Rehabilitación y Educación Especial-DIF SinaloaFacultad de Medicina, Universidad Autónoma de SinaloaAbstract Introduction Congenital aphallia is a rare condition with less than 100 documented cases. It may occur isolated or in association with additional anomalies such as gastrointestinal malformations, caudal defects, imperforate anus, and other genitourinary anomalies. All previously reported patients with aphallia had a normal karyotype; here, we report the first case associated with a chromosomal imbalance. Case presentation A newborn was found to have an absence of the penis; a pre-sphincteric urethrorectal fistula was identified and a vesicostomy was performed. Hormonal studies at three months showed elevated levels of 17-α-hydroxyprogesterone. Physical examination at 2.5 years old revealed a bifid, rough, pigmented scrotum, without palpable gonads or a urethral meatus. Ultrasound imaging showed both testicles in the inguinoscrotal region. He also presented with some craniofacial features, including dolichocephaly, prominent forehead, left palpebral ptosis and strabismus of the right eye, convex nasal ridge, narrow and high nasal bridge, overhanging nasal tip, short philtrum, ogival palate and bifid uvula, and large low-set ears rotated posteriorly. He also had hypotonia, a broad-based gait with poor balance, moderate laxity, bilateral flat feet, umbilical hernia, corpus callosum hypoplasia, and mild intellectual disability. His karyotype was 46,XY, der(15)t(9;15)(q34;p11)dn. An aCGH analysis revealed a duplication of ~ 9.7 Mb of the 9qter region containing 246 genes: arr[GRCh37] 9q34.11q34.3(131,348,076_141,019,088)x3. Conclusion To our knowledge, this is the first case of aphallia possibly associated with a chromosomal imbalance, specifically a 9q34.11-> qter duplication.https://doi.org/10.1186/s12894-025-01818-3Aphallia9q34 duplication syndromeCase report
spellingShingle Juan Pablo Meza-Espinoza
Juan Ramón González-García
Liliana Itzel Patrón-Baro
Rosa María González-Arreola
José Alfredo Contreras-Gutiérrez
Josué Camberos-Barraza
Jesús Madueña-Molina
Alejandro Camacho-Zamora
Roberto Iván Avendaño-Gálvez
Verónica Judith Picos-Cárdenas
Aphallia in a patient with 9q34 duplication syndrome: a case report
BMC Urology
Aphallia
9q34 duplication syndrome
Case report
title Aphallia in a patient with 9q34 duplication syndrome: a case report
title_full Aphallia in a patient with 9q34 duplication syndrome: a case report
title_fullStr Aphallia in a patient with 9q34 duplication syndrome: a case report
title_full_unstemmed Aphallia in a patient with 9q34 duplication syndrome: a case report
title_short Aphallia in a patient with 9q34 duplication syndrome: a case report
title_sort aphallia in a patient with 9q34 duplication syndrome a case report
topic Aphallia
9q34 duplication syndrome
Case report
url https://doi.org/10.1186/s12894-025-01818-3
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