Frequency and factors associated with loss to follow-up in newly diagnosed rheumatoid arthritis patient: a single-centre study

Introduction Lost to follow-up (LTFU) rheumatoid arthritis (RA) patients constitute a population that potentially experiences worsening of their disease. This study aimed to determine the frequency of LTFU and the possible associated factors in newly diagnosed RA patients in our outpatient clinic....

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Main Authors: Sumariyono Sumariyono, Rudy Hidayat, Faisal Parlindungan, Suryo Anggoro Kusumo Wibowo, Anna Ariane, Johanda Damanik, Abirianty Priandani Araminta, Ryzkianty Annis Nurdin
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Language:English
Published: Termedia Publishing House 2024-12-01
Series:Rheumatology
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Online Access:https://reu.termedia.pl/Frequency-and-factors-associated-with-loss-to-follow-up-in-newly-diagnosed-rheumatoid,194158,0,2.html
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author Sumariyono Sumariyono
Rudy Hidayat
Faisal Parlindungan
Suryo Anggoro Kusumo Wibowo
Anna Ariane
Johanda Damanik
Abirianty Priandani Araminta
Ryzkianty Annis Nurdin
author_facet Sumariyono Sumariyono
Rudy Hidayat
Faisal Parlindungan
Suryo Anggoro Kusumo Wibowo
Anna Ariane
Johanda Damanik
Abirianty Priandani Araminta
Ryzkianty Annis Nurdin
author_sort Sumariyono Sumariyono
collection DOAJ
description Introduction Lost to follow-up (LTFU) rheumatoid arthritis (RA) patients constitute a population that potentially experiences worsening of their disease. This study aimed to determine the frequency of LTFU and the possible associated factors in newly diagnosed RA patients in our outpatient clinic. Material and methods A retrospective cohort study was conducted using 260 newly diagnosed RA patients. Those who did not attend their scheduled appointment for more than 3 months were defined as LTFU. We used a Likert scale questionnaire to explore the perception and the possible reasons for LTFU by phone. Bivariate and multivariate logistic regression analyses were performed to explore the factors associated with LTFU. Results There were 65 patients (25%) who were LTFU. We contacted 34 of them and selected 34 age-matched routinely followed-up (RFU) patients as controls. The reasons for LTFU were distance from house to hospital constraints (76%), busy (56%), transportation constraints (38%), dissatisfaction with the outpatient clinic service (21%), lack of information about their disease (18%), having other comorbidities that compelled them to go to another department’s clinic (15%), difficulties understanding the clinic registration flow system (9%), and having minimal symptoms (6%). Using the c 2 test, we found that transportation constraints and busyness were significantly different between LTFU and routinely followed up patients ( p -value 0.008 and 0.200, respectively). After multivariate analysis, transportation constraints remained a significant factor (OR = 6.397; 05% CI: 1.622–25.228). Conclusions Among newly diagnosed RA patients, 65 (25%) were LTFU. Transportation constraints and busyness were factors associated with LTFU. Further multivariate analysis showed that the factor transportation constraints was significantly associated with LTFU of RA patients in this study.
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spelling doaj-art-3498e92d39704a879ab4ad6197c770012025-01-27T11:21:26ZengTermedia Publishing HouseRheumatology0034-62332084-98342024-12-0162640541110.5114/reum/194158194158Frequency and factors associated with loss to follow-up in newly diagnosed rheumatoid arthritis patient: a single-centre studySumariyono Sumariyono0https://orcid.org/0000-0002-0094-6264Rudy Hidayat1https://orcid.org/0000-0003-4895-2409Faisal Parlindungan2https://orcid.org/0000-0003-0762-0408Suryo Anggoro Kusumo Wibowo3https://orcid.org/0000-0002-0089-0504Anna Ariane4https://orcid.org/0000-0001-8706-4717Johanda Damanik5https://orcid.org/0000-0001-8478-8664Abirianty Priandani Araminta6https://orcid.org/0000-0002-9549-7819Ryzkianty Annis Nurdin7https://orcid.org/0009-0008-3515-855XRheumatology Division, Department of Internal Medicine, Faculty of Medicine, Universitas Indonesia – Cipto Mangunkusumo General Hospital Jakarta, IndonesiaRheumatology Division, Department of Internal Medicine, Faculty of Medicine, Universitas Indonesia – Cipto Mangunkusumo General Hospital Jakarta, IndonesiaRheumatology Division, Department of Internal Medicine, Faculty of Medicine, Universitas Indonesia – Cipto Mangunkusumo General Hospital Jakarta, IndonesiaRheumatology Division, Department of Internal Medicine, Faculty of Medicine, Universitas Indonesia – Cipto Mangunkusumo General Hospital Jakarta, IndonesiaRheumatology Division, Department of Internal Medicine, Faculty of Medicine, Universitas Indonesia – Cipto Mangunkusumo General Hospital Jakarta, IndonesiaRheumatology Division, Department of Internal Medicine, Faculty of Medicine, Universitas Indonesia – Cipto Mangunkusumo General Hospital Jakarta, IndonesiaRheumatology Division, Department of Internal Medicine, Faculty of Medicine, Universitas Indonesia – Cipto Mangunkusumo General Hospital Jakarta, IndonesiaRheumatology Division, Department of Internal Medicine, Faculty of Medicine, Universitas Indonesia – Cipto Mangunkusumo General Hospital Jakarta, IndonesiaIntroduction Lost to follow-up (LTFU) rheumatoid arthritis (RA) patients constitute a population that potentially experiences worsening of their disease. This study aimed to determine the frequency of LTFU and the possible associated factors in newly diagnosed RA patients in our outpatient clinic. Material and methods A retrospective cohort study was conducted using 260 newly diagnosed RA patients. Those who did not attend their scheduled appointment for more than 3 months were defined as LTFU. We used a Likert scale questionnaire to explore the perception and the possible reasons for LTFU by phone. Bivariate and multivariate logistic regression analyses were performed to explore the factors associated with LTFU. Results There were 65 patients (25%) who were LTFU. We contacted 34 of them and selected 34 age-matched routinely followed-up (RFU) patients as controls. The reasons for LTFU were distance from house to hospital constraints (76%), busy (56%), transportation constraints (38%), dissatisfaction with the outpatient clinic service (21%), lack of information about their disease (18%), having other comorbidities that compelled them to go to another department’s clinic (15%), difficulties understanding the clinic registration flow system (9%), and having minimal symptoms (6%). Using the c 2 test, we found that transportation constraints and busyness were significantly different between LTFU and routinely followed up patients ( p -value 0.008 and 0.200, respectively). After multivariate analysis, transportation constraints remained a significant factor (OR = 6.397; 05% CI: 1.622–25.228). Conclusions Among newly diagnosed RA patients, 65 (25%) were LTFU. Transportation constraints and busyness were factors associated with LTFU. Further multivariate analysis showed that the factor transportation constraints was significantly associated with LTFU of RA patients in this study.https://reu.termedia.pl/Frequency-and-factors-associated-with-loss-to-follow-up-in-newly-diagnosed-rheumatoid,194158,0,2.htmlrheumatoid arthritisfactorsindonesialost to follow-up
spellingShingle Sumariyono Sumariyono
Rudy Hidayat
Faisal Parlindungan
Suryo Anggoro Kusumo Wibowo
Anna Ariane
Johanda Damanik
Abirianty Priandani Araminta
Ryzkianty Annis Nurdin
Frequency and factors associated with loss to follow-up in newly diagnosed rheumatoid arthritis patient: a single-centre study
Rheumatology
rheumatoid arthritis
factors
indonesia
lost to follow-up
title Frequency and factors associated with loss to follow-up in newly diagnosed rheumatoid arthritis patient: a single-centre study
title_full Frequency and factors associated with loss to follow-up in newly diagnosed rheumatoid arthritis patient: a single-centre study
title_fullStr Frequency and factors associated with loss to follow-up in newly diagnosed rheumatoid arthritis patient: a single-centre study
title_full_unstemmed Frequency and factors associated with loss to follow-up in newly diagnosed rheumatoid arthritis patient: a single-centre study
title_short Frequency and factors associated with loss to follow-up in newly diagnosed rheumatoid arthritis patient: a single-centre study
title_sort frequency and factors associated with loss to follow up in newly diagnosed rheumatoid arthritis patient a single centre study
topic rheumatoid arthritis
factors
indonesia
lost to follow-up
url https://reu.termedia.pl/Frequency-and-factors-associated-with-loss-to-follow-up-in-newly-diagnosed-rheumatoid,194158,0,2.html
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