Documentation of individual-level social determinants of health among adults diagnosed with cancer in the United States

Abstract The ICD-10-CM diagnosis codes ranging from Z55 to Z65 (Z codes) capture individual-level social determinants of health (SDOH) and are typically under-coded in individuals’ health records. There is limited characterization of SDOH Z codes among adults diagnosed with cancer and information ab...

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Main Authors: Chia-Yun Hsu, Gabriel Henderson, Julia F. Slejko, Arif Hussain, Richard Scott Swain, Bindu Kalesan, Pei-Lin Huang, Eberechukwu Onukwugha
Format: Article
Language:English
Published: Nature Portfolio 2025-08-01
Series:Scientific Reports
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Online Access:https://doi.org/10.1038/s41598-025-13825-3
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author Chia-Yun Hsu
Gabriel Henderson
Julia F. Slejko
Arif Hussain
Richard Scott Swain
Bindu Kalesan
Pei-Lin Huang
Eberechukwu Onukwugha
author_facet Chia-Yun Hsu
Gabriel Henderson
Julia F. Slejko
Arif Hussain
Richard Scott Swain
Bindu Kalesan
Pei-Lin Huang
Eberechukwu Onukwugha
author_sort Chia-Yun Hsu
collection DOAJ
description Abstract The ICD-10-CM diagnosis codes ranging from Z55 to Z65 (Z codes) capture individual-level social determinants of health (SDOH) and are typically under-coded in individuals’ health records. There is limited characterization of SDOH Z codes among adults diagnosed with cancer and information about oncologists’ perspectives on Z codes. Using pooled cross sections, we selected 35,099 adults from the IQVIA PharMetrics® Plus for Academics data and 17,852 individuals from linked cancer registry and claims data. The prevalence of comorbidities and metastatic cancer was higher among individuals with Z codes compared to those without Z code claims. The proportion of individuals with any Z code claims ranged from 0.6 to 0.9% in the PharMetrics Plus data and from 1.4 to 2.1% in the linked data. Among 112 medical oncologists/hematologists who responded to a survey about SDOH Z codes, 54% had not heard of Z codes to document SDOH. 26% reported that lack of reimbursement makes it difficult to increase their documentation and 64% would consider using Z codes if they are tied to payer reimbursement. Individuals with Z codes had greater comorbidity and cancer burden. Additional research is needed and depends on improved coding of SDOH Z codes.
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spelling doaj-art-33c81df7889c4a328e45f52959d3f6562025-08-20T04:03:06ZengNature PortfolioScientific Reports2045-23222025-08-0115111110.1038/s41598-025-13825-3Documentation of individual-level social determinants of health among adults diagnosed with cancer in the United StatesChia-Yun Hsu0Gabriel Henderson1Julia F. Slejko2Arif Hussain3Richard Scott Swain4Bindu Kalesan5Pei-Lin Huang6Eberechukwu Onukwugha7Department of Practice, Sciences, and Health Outcomes Research, School of Pharmacy, University of MarylandDepartment of Practice, Sciences, and Health Outcomes Research, School of Pharmacy, University of MarylandDepartment of Practice, Sciences, and Health Outcomes Research, School of Pharmacy, University of MarylandProgram in Oncology, University of Maryland Greenebaum Comprehensive Cancer CenterCardinal Health Inc., & Engagement, Real-World Evidence & InsightsCardinal Health Inc., & Engagement, Real-World Evidence & InsightsDepartment of Practice, Sciences, and Health Outcomes Research, School of Pharmacy, University of MarylandDepartment of Practice, Sciences, and Health Outcomes Research, School of Pharmacy, University of MarylandAbstract The ICD-10-CM diagnosis codes ranging from Z55 to Z65 (Z codes) capture individual-level social determinants of health (SDOH) and are typically under-coded in individuals’ health records. There is limited characterization of SDOH Z codes among adults diagnosed with cancer and information about oncologists’ perspectives on Z codes. Using pooled cross sections, we selected 35,099 adults from the IQVIA PharMetrics® Plus for Academics data and 17,852 individuals from linked cancer registry and claims data. The prevalence of comorbidities and metastatic cancer was higher among individuals with Z codes compared to those without Z code claims. The proportion of individuals with any Z code claims ranged from 0.6 to 0.9% in the PharMetrics Plus data and from 1.4 to 2.1% in the linked data. Among 112 medical oncologists/hematologists who responded to a survey about SDOH Z codes, 54% had not heard of Z codes to document SDOH. 26% reported that lack of reimbursement makes it difficult to increase their documentation and 64% would consider using Z codes if they are tied to payer reimbursement. Individuals with Z codes had greater comorbidity and cancer burden. Additional research is needed and depends on improved coding of SDOH Z codes.https://doi.org/10.1038/s41598-025-13825-3Z codesSocial determinants of healthClaims dataPhysician perspectives
spellingShingle Chia-Yun Hsu
Gabriel Henderson
Julia F. Slejko
Arif Hussain
Richard Scott Swain
Bindu Kalesan
Pei-Lin Huang
Eberechukwu Onukwugha
Documentation of individual-level social determinants of health among adults diagnosed with cancer in the United States
Scientific Reports
Z codes
Social determinants of health
Claims data
Physician perspectives
title Documentation of individual-level social determinants of health among adults diagnosed with cancer in the United States
title_full Documentation of individual-level social determinants of health among adults diagnosed with cancer in the United States
title_fullStr Documentation of individual-level social determinants of health among adults diagnosed with cancer in the United States
title_full_unstemmed Documentation of individual-level social determinants of health among adults diagnosed with cancer in the United States
title_short Documentation of individual-level social determinants of health among adults diagnosed with cancer in the United States
title_sort documentation of individual level social determinants of health among adults diagnosed with cancer in the united states
topic Z codes
Social determinants of health
Claims data
Physician perspectives
url https://doi.org/10.1038/s41598-025-13825-3
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