Returning Individual-Level Urgent or Emergent Research Results to Participants: The Project Baseline Health Study Experience

Returning Individual-Level Urgent or Emergent Research Results to Participants: The Project Baseline Health Study Experience

Background: Returning results to research participants is increasingly recognized as an ethical mandate, yet little is known about best practices to optimally communicate urgent or emergent results. Methods: We describe the development of and experience with a process to return results to participan...

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Main Authors: Neha Pagidipati, Brooke Heidenfelder, Lydia Coulter Kwee, Fatima Rodriguez, Ranee Chatterjee, Kishan S. Parikh, Michel G. Khouri, Jennifer Stiller, Julie Eckstrand, P. Kelly Marcom, Priyatham S. Mettu, Glenn J. Jaffe, Sumana Shashidhar, Susan Swope, Susan Spielman, Elizabeth Fraulo, L. Kristin Newby, Pamela Douglas, Charlene Wong, Robert Green, Scarlet Shore, Jessica Mega, Adrian Hernandez, Paul Campbell, Kenneth W. Mahaffey, Svati H. Shah
Format: Article
Language:English
Published: Elsevier 2025-06-01
Series:American Journal of Medicine Open
Subjects:
Cardiovascular disease
Diabetes
Incidental findings
Lung disease
Prospective studies
Return of results
Online Access:http://www.sciencedirect.com/science/article/pii/S2667036425000068
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