Effectiveness of Humanitude Training on Care Refusal in Dementia: A Pre-Post Study
Context: Care refusal behaviours in people living with dementia pose significant challenges in residential care settings, impacting care delivery quality and staff wellbeing. While Humanitude methodology offers a relationship-centred approach, empirical evidence for its effectiveness remains limite...
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LSE Press
2025-06-01
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| Series: | Journal of Long-Term Care |
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| Online Access: | https://account.journal.ilpnetwork.org/index.php/lse-j-jltc/article/view/425 |
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| author | Joao Partel Araujo Helena Luz Rosa Melo Catherine Van Son |
| author_facet | Joao Partel Araujo Helena Luz Rosa Melo Catherine Van Son |
| author_sort | Joao Partel Araujo |
| collection | DOAJ |
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Context: Care refusal behaviours in people living with dementia pose significant challenges in residential care settings, impacting care delivery quality and staff wellbeing. While Humanitude methodology offers a relationship-centred approach, empirical evidence for its effectiveness remains limited.
Objective: To evaluate the immediate impact of a four-day Humanitude training programme on care refusal behaviours among residents with dementia in memory care units.
Methods: A pre-post intervention study was conducted across four memory care units in the United States (October–December 2024). Participants included 47 residents with dementia exhibiting care refusal behaviours and 36 healthcare professionals. The intervention consisted of a standardised 28-hour Humanitude training programme. Primary outcome was measured using the Refusal of Care Informant Scale (RoCIS), with secondary outcomes including the Cohen-Mansfield Agitation Inventory and Neuropsychiatric Inventory Questionnaire.
Findings: RoCIS scores showed significant improvement from baseline (M = 7.5, SD = 4.0) to post-intervention (M = 2.9, SD = 2.8; p < .001), with a large effect size (Cohen’s d = 1.33). Secondary measures demonstrated substantial reductions in agitation and neuropsychiatric symptoms, particularly in residents with severe dementia.
Limitations: The pre-post design without a control group and short follow-up period limit causal inference and assessment of long-term effectiveness. Findings represent only immediate post-training effects; sustained benefits require further investigation.
Implications: Humanitude training demonstrates significant immediate effectiveness in reducing care refusal behaviours in residents living with dementia, supporting its integration into standard care practices in memory care settings.
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| format | Article |
| id | doaj-art-3142c3018edd4c209a66ebeaf66eb8d5 |
| institution | Kabale University |
| issn | 2516-9122 |
| language | English |
| publishDate | 2025-06-01 |
| publisher | LSE Press |
| record_format | Article |
| series | Journal of Long-Term Care |
| spelling | doaj-art-3142c3018edd4c209a66ebeaf66eb8d52025-08-20T03:24:29ZengLSE PressJournal of Long-Term Care2516-91222025-06-0110.31389/jltc.425Effectiveness of Humanitude Training on Care Refusal in Dementia: A Pre-Post StudyJoao Partel Araujo0https://orcid.org/0000-0003-0037-9383Helena Luz1https://orcid.org/0000-0003-1592-0953Rosa Melo2https://orcid.org/0000-0002-0941-407XCatherine Van Son3https://orcid.org/0000-0002-0491-5748Via Hominis; UICISA: E – Unidade de Investigação em Ciências da Saúde: EnfermagemFaculdade de Psicologia e Ciências da Educação da Universidade de Coimbra; Centro de Estudos Interdisciplinares – CEIS20 – Universidade de CoimbraEscola Superior de Enfermagem de Coimbra; UICISA: E – Unidade de Investigação em Ciências da Saúde: EnfermagemWashington State University-Vancouver Context: Care refusal behaviours in people living with dementia pose significant challenges in residential care settings, impacting care delivery quality and staff wellbeing. While Humanitude methodology offers a relationship-centred approach, empirical evidence for its effectiveness remains limited. Objective: To evaluate the immediate impact of a four-day Humanitude training programme on care refusal behaviours among residents with dementia in memory care units. Methods: A pre-post intervention study was conducted across four memory care units in the United States (October–December 2024). Participants included 47 residents with dementia exhibiting care refusal behaviours and 36 healthcare professionals. The intervention consisted of a standardised 28-hour Humanitude training programme. Primary outcome was measured using the Refusal of Care Informant Scale (RoCIS), with secondary outcomes including the Cohen-Mansfield Agitation Inventory and Neuropsychiatric Inventory Questionnaire. Findings: RoCIS scores showed significant improvement from baseline (M = 7.5, SD = 4.0) to post-intervention (M = 2.9, SD = 2.8; p < .001), with a large effect size (Cohen’s d = 1.33). Secondary measures demonstrated substantial reductions in agitation and neuropsychiatric symptoms, particularly in residents with severe dementia. Limitations: The pre-post design without a control group and short follow-up period limit causal inference and assessment of long-term effectiveness. Findings represent only immediate post-training effects; sustained benefits require further investigation. Implications: Humanitude training demonstrates significant immediate effectiveness in reducing care refusal behaviours in residents living with dementia, supporting its integration into standard care practices in memory care settings. https://account.journal.ilpnetwork.org/index.php/lse-j-jltc/article/view/425Humanitude training programmedementia carecare refusalperson-centred carebehavioural symptomsmemory care |
| spellingShingle | Joao Partel Araujo Helena Luz Rosa Melo Catherine Van Son Effectiveness of Humanitude Training on Care Refusal in Dementia: A Pre-Post Study Journal of Long-Term Care Humanitude training programme dementia care care refusal person-centred care behavioural symptoms memory care |
| title | Effectiveness of Humanitude Training on Care Refusal in Dementia: A Pre-Post Study |
| title_full | Effectiveness of Humanitude Training on Care Refusal in Dementia: A Pre-Post Study |
| title_fullStr | Effectiveness of Humanitude Training on Care Refusal in Dementia: A Pre-Post Study |
| title_full_unstemmed | Effectiveness of Humanitude Training on Care Refusal in Dementia: A Pre-Post Study |
| title_short | Effectiveness of Humanitude Training on Care Refusal in Dementia: A Pre-Post Study |
| title_sort | effectiveness of humanitude training on care refusal in dementia a pre post study |
| topic | Humanitude training programme dementia care care refusal person-centred care behavioural symptoms memory care |
| url | https://account.journal.ilpnetwork.org/index.php/lse-j-jltc/article/view/425 |
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