Care-related quality of life of informal caregivers of stroke survivors: Cross-sectional analysis of a randomized clinical trial.
<h4>Purpose</h4>We aimed to describe the intensity of care and its consequences on informal caregivers of stroke survivors according to the degree of care receivers' functional dependence for activities of daily living; and to identify the factors associated with caregivers' ca...
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| Format: | Article |
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Public Library of Science (PLoS)
2024-01-01
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| Series: | PLoS ONE |
| Online Access: | https://doi.org/10.1371/journal.pone.0307930 |
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| author | Lorena Villa-García Mercè Salvat-Plana John Slof Natalia Pérez de la Ossa Sònia Abilleira Marc Ribó Verónica Hidalgo-Benítez Marco Inzitari Aida Ribera |
| author_facet | Lorena Villa-García Mercè Salvat-Plana John Slof Natalia Pérez de la Ossa Sònia Abilleira Marc Ribó Verónica Hidalgo-Benítez Marco Inzitari Aida Ribera |
| author_sort | Lorena Villa-García |
| collection | DOAJ |
| description | <h4>Purpose</h4>We aimed to describe the intensity of care and its consequences on informal caregivers of stroke survivors according to the degree of care receivers' functional dependence for activities of daily living; and to identify the factors associated with caregivers' care-related quality of life.<h4>Methods</h4>Cross-sectional analysis of prospective data collected in a cost-utility study alongside the RACECAT trial in Catalonia (Spain). One-hundred and thirty-two care receiver-caregiver pairs were interviewed six months after stroke. Functional dependence for activities of daily living was measured with the Barthel index. We assessed caregivers care-related quality of life with the CarerQoL, which measures seven dimensions of subjective burden (CarerQoL-7D) and a happiness score (CarerQoL-VAS). We evaluated the association between characteristics of informal caregivers, characteristics of care receivers, and intensity of care, and the caregiver's care-related quality of life (subjective burden and happiness) in a hypothesized model using a structural equation model.<h4>Results</h4>Of the 132 caregivers, 74,2% were women with an average age of 59.4 ± 12.5 years. The 56.8% of them were spouses. The care intensity ranged from a mean of 24h/week for mild to 40h/week for severe dependence. Most caregivers (76.3%) were satisfied with their task, regardless of dependence, but showed increasing problems in caring for severely dependent persons. Being a woman (coeff. -0.23; 95%CI: -0.40, -0.07), spending more time in care tasks (coeff -0.37; -0.53, -0.21) and care receiver need of constant supervision (coeff 0.31; -0.47, -0.14) were associated with higher burden of care, irrespective of the degree of dependence. Caregiver burden (coeff 0.46; 0.30-0.61) and care receiver anxiety or depression (coeff -0.19; -0.34, -0.03) were associated with lower caregiver happiness.<h4>Conclusions</h4>The findings suggest the importance of developing mainly two types of support interventions for caregivers: respite and psychosocial support. Especially for women with high caring burden and/or caring for persons with high levels of anxiety or depression. |
| format | Article |
| id | doaj-art-2cf18997e4f04c1a8b30186b85743a87 |
| institution | Kabale University |
| issn | 1932-6203 |
| language | English |
| publishDate | 2024-01-01 |
| publisher | Public Library of Science (PLoS) |
| record_format | Article |
| series | PLoS ONE |
| spelling | doaj-art-2cf18997e4f04c1a8b30186b85743a872024-11-09T05:31:56ZengPublic Library of Science (PLoS)PLoS ONE1932-62032024-01-011910e030793010.1371/journal.pone.0307930Care-related quality of life of informal caregivers of stroke survivors: Cross-sectional analysis of a randomized clinical trial.Lorena Villa-GarcíaMercè Salvat-PlanaJohn SlofNatalia Pérez de la OssaSònia AbilleiraMarc RibóVerónica Hidalgo-BenítezMarco InzitariAida Ribera<h4>Purpose</h4>We aimed to describe the intensity of care and its consequences on informal caregivers of stroke survivors according to the degree of care receivers' functional dependence for activities of daily living; and to identify the factors associated with caregivers' care-related quality of life.<h4>Methods</h4>Cross-sectional analysis of prospective data collected in a cost-utility study alongside the RACECAT trial in Catalonia (Spain). One-hundred and thirty-two care receiver-caregiver pairs were interviewed six months after stroke. Functional dependence for activities of daily living was measured with the Barthel index. We assessed caregivers care-related quality of life with the CarerQoL, which measures seven dimensions of subjective burden (CarerQoL-7D) and a happiness score (CarerQoL-VAS). We evaluated the association between characteristics of informal caregivers, characteristics of care receivers, and intensity of care, and the caregiver's care-related quality of life (subjective burden and happiness) in a hypothesized model using a structural equation model.<h4>Results</h4>Of the 132 caregivers, 74,2% were women with an average age of 59.4 ± 12.5 years. The 56.8% of them were spouses. The care intensity ranged from a mean of 24h/week for mild to 40h/week for severe dependence. Most caregivers (76.3%) were satisfied with their task, regardless of dependence, but showed increasing problems in caring for severely dependent persons. Being a woman (coeff. -0.23; 95%CI: -0.40, -0.07), spending more time in care tasks (coeff -0.37; -0.53, -0.21) and care receiver need of constant supervision (coeff 0.31; -0.47, -0.14) were associated with higher burden of care, irrespective of the degree of dependence. Caregiver burden (coeff 0.46; 0.30-0.61) and care receiver anxiety or depression (coeff -0.19; -0.34, -0.03) were associated with lower caregiver happiness.<h4>Conclusions</h4>The findings suggest the importance of developing mainly two types of support interventions for caregivers: respite and psychosocial support. Especially for women with high caring burden and/or caring for persons with high levels of anxiety or depression.https://doi.org/10.1371/journal.pone.0307930 |
| spellingShingle | Lorena Villa-García Mercè Salvat-Plana John Slof Natalia Pérez de la Ossa Sònia Abilleira Marc Ribó Verónica Hidalgo-Benítez Marco Inzitari Aida Ribera Care-related quality of life of informal caregivers of stroke survivors: Cross-sectional analysis of a randomized clinical trial. PLoS ONE |
| title | Care-related quality of life of informal caregivers of stroke survivors: Cross-sectional analysis of a randomized clinical trial. |
| title_full | Care-related quality of life of informal caregivers of stroke survivors: Cross-sectional analysis of a randomized clinical trial. |
| title_fullStr | Care-related quality of life of informal caregivers of stroke survivors: Cross-sectional analysis of a randomized clinical trial. |
| title_full_unstemmed | Care-related quality of life of informal caregivers of stroke survivors: Cross-sectional analysis of a randomized clinical trial. |
| title_short | Care-related quality of life of informal caregivers of stroke survivors: Cross-sectional analysis of a randomized clinical trial. |
| title_sort | care related quality of life of informal caregivers of stroke survivors cross sectional analysis of a randomized clinical trial |
| url | https://doi.org/10.1371/journal.pone.0307930 |
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