The Impact of Trachomatous Trichiasis on Quality of Life: A Case Control Study.

<h4>Background</h4>Trachomatous trichiasis is thought to have a profound effect on quality of life (QoL), however, there is little research in this area. We measured vision and health-related QoL in a case-control study in Amhara Region, Ethiopia.<h4>Methodology/principal findings&...

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Main Authors: Esmael Habtamu, Tariku Wondie, Sintayehu Aweke, Zerihun Tadesse, Mulat Zerihun, Zebideru Zewudie, Wondimu Gebeyehu, Kelly Callahan, Paul M Emerson, Hannah Kuper, Robin L Bailey, David C W Mabey, Saul N Rajak, Sarah Polack, Helen A Weiss, Matthew J Burton
Format: Article
Language:English
Published: Public Library of Science (PLoS) 2015-11-01
Series:PLoS Neglected Tropical Diseases
Online Access:https://doi.org/10.1371/journal.pntd.0004254
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author Esmael Habtamu
Tariku Wondie
Sintayehu Aweke
Zerihun Tadesse
Mulat Zerihun
Zebideru Zewudie
Wondimu Gebeyehu
Kelly Callahan
Paul M Emerson
Hannah Kuper
Robin L Bailey
David C W Mabey
Saul N Rajak
Sarah Polack
Helen A Weiss
Matthew J Burton
author_facet Esmael Habtamu
Tariku Wondie
Sintayehu Aweke
Zerihun Tadesse
Mulat Zerihun
Zebideru Zewudie
Wondimu Gebeyehu
Kelly Callahan
Paul M Emerson
Hannah Kuper
Robin L Bailey
David C W Mabey
Saul N Rajak
Sarah Polack
Helen A Weiss
Matthew J Burton
author_sort Esmael Habtamu
collection DOAJ
description <h4>Background</h4>Trachomatous trichiasis is thought to have a profound effect on quality of life (QoL), however, there is little research in this area. We measured vision and health-related QoL in a case-control study in Amhara Region, Ethiopia.<h4>Methodology/principal findings</h4>We recruited 1000 adult trichiasis cases and 200 trichiasis-free controls, matched to every fifth trichiasis case on age (+/- two years), sex and location. Vision-related quality of life (VRQoL) and health-related quality of life (HRQoL) were measured using the WHO/PBD-VF20 and WHOQOL-BREF questionnaires. Comparisons were made using linear regression adjusted for age, sex and socioeconomic status. Trichiasis cases had substantially lower VRQoL than controls on all subscales (overall eyesight, visual symptom, general functioning and psychosocial, p<0.0001), even in the sub-group with normal vision (p<0.0001). Lower VRQoL scores in cases were associated with longer trichiasis duration, central corneal opacity, visual impairment and poor contrast sensitivity. Trichiasis cases had lower HRQoL in all domains (Physical-health, Psychological, Social, Environment, p<0.0001), lower overall QoL (mean, 34.5 v 64.6; p<0.0001) and overall health satisfaction (mean, 38.2 v 71.7; p<0.0001). This association persisted in a sub-group analysis of cases and controls with normal vision. Not having a marriage partner (p<0.0001), visual impairment (p = 0.0068), daily labouring (p<0.0001), presence of other health problems (p = 0.0018) and low self-rated wealth (p<0.0001) were independently associated with lower overall QoL scores in cases. Among cases, trichiasis caused 596 (59%) to feel embarrassed, 913 (91.3%) to worry they may lose their remaining eyesight and 681 (68.1%) to have sleep disturbance.<h4>Conclusions/significance</h4>Trachomatous trichiasis substantially reduces vision and health related QoL and is disabling, even without visual impairment. Prompt trichiasis intervention is needed both to prevent vision loss and to alleviate physical and psychological suffering, social exclusion and improve overall well-being. Implementation of the full SAFE strategy is needed to prevent the development of trachomatous trichiasis.
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spelling doaj-art-2c00ffd1c37c421b98476feead8992e72025-08-20T02:33:12ZengPublic Library of Science (PLoS)PLoS Neglected Tropical Diseases1935-27271935-27352015-11-01911e000425410.1371/journal.pntd.0004254The Impact of Trachomatous Trichiasis on Quality of Life: A Case Control Study.Esmael HabtamuTariku WondieSintayehu AwekeZerihun TadesseMulat ZerihunZebideru ZewudieWondimu GebeyehuKelly CallahanPaul M EmersonHannah KuperRobin L BaileyDavid C W MabeySaul N RajakSarah PolackHelen A WeissMatthew J Burton<h4>Background</h4>Trachomatous trichiasis is thought to have a profound effect on quality of life (QoL), however, there is little research in this area. We measured vision and health-related QoL in a case-control study in Amhara Region, Ethiopia.<h4>Methodology/principal findings</h4>We recruited 1000 adult trichiasis cases and 200 trichiasis-free controls, matched to every fifth trichiasis case on age (+/- two years), sex and location. Vision-related quality of life (VRQoL) and health-related quality of life (HRQoL) were measured using the WHO/PBD-VF20 and WHOQOL-BREF questionnaires. Comparisons were made using linear regression adjusted for age, sex and socioeconomic status. Trichiasis cases had substantially lower VRQoL than controls on all subscales (overall eyesight, visual symptom, general functioning and psychosocial, p<0.0001), even in the sub-group with normal vision (p<0.0001). Lower VRQoL scores in cases were associated with longer trichiasis duration, central corneal opacity, visual impairment and poor contrast sensitivity. Trichiasis cases had lower HRQoL in all domains (Physical-health, Psychological, Social, Environment, p<0.0001), lower overall QoL (mean, 34.5 v 64.6; p<0.0001) and overall health satisfaction (mean, 38.2 v 71.7; p<0.0001). This association persisted in a sub-group analysis of cases and controls with normal vision. Not having a marriage partner (p<0.0001), visual impairment (p = 0.0068), daily labouring (p<0.0001), presence of other health problems (p = 0.0018) and low self-rated wealth (p<0.0001) were independently associated with lower overall QoL scores in cases. Among cases, trichiasis caused 596 (59%) to feel embarrassed, 913 (91.3%) to worry they may lose their remaining eyesight and 681 (68.1%) to have sleep disturbance.<h4>Conclusions/significance</h4>Trachomatous trichiasis substantially reduces vision and health related QoL and is disabling, even without visual impairment. Prompt trichiasis intervention is needed both to prevent vision loss and to alleviate physical and psychological suffering, social exclusion and improve overall well-being. Implementation of the full SAFE strategy is needed to prevent the development of trachomatous trichiasis.https://doi.org/10.1371/journal.pntd.0004254
spellingShingle Esmael Habtamu
Tariku Wondie
Sintayehu Aweke
Zerihun Tadesse
Mulat Zerihun
Zebideru Zewudie
Wondimu Gebeyehu
Kelly Callahan
Paul M Emerson
Hannah Kuper
Robin L Bailey
David C W Mabey
Saul N Rajak
Sarah Polack
Helen A Weiss
Matthew J Burton
The Impact of Trachomatous Trichiasis on Quality of Life: A Case Control Study.
PLoS Neglected Tropical Diseases
title The Impact of Trachomatous Trichiasis on Quality of Life: A Case Control Study.
title_full The Impact of Trachomatous Trichiasis on Quality of Life: A Case Control Study.
title_fullStr The Impact of Trachomatous Trichiasis on Quality of Life: A Case Control Study.
title_full_unstemmed The Impact of Trachomatous Trichiasis on Quality of Life: A Case Control Study.
title_short The Impact of Trachomatous Trichiasis on Quality of Life: A Case Control Study.
title_sort impact of trachomatous trichiasis on quality of life a case control study
url https://doi.org/10.1371/journal.pntd.0004254
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