Improving the health-related quality of life of children with congenital heart disease undergoing corrective surgery: The impact of a family-based care transition program
Background & Aim: Postoperative care presents diverse needs that affect the quality of life in children with congenital heart disease. The objective of the study was to determine the effect of a family-based care transition program on the health-related quality of life of children with congenita...
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Tehran University of Medical Sciences
2025-01-01
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| Online Access: | http://hayat.tums.ac.ir/article-1-5399-en.pdf |
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| author | Parvaneh Vasli Zohreh Komijani Meimanat Hosseini Malihe Nasiri |
| author_facet | Parvaneh Vasli Zohreh Komijani Meimanat Hosseini Malihe Nasiri |
| author_sort | Parvaneh Vasli |
| collection | DOAJ |
| description | Background & Aim: Postoperative care presents diverse needs that affect the quality of life in children with congenital heart disease. The objective of the study was to determine the effect of a family-based care transition program on the health-related quality of life of children with congenital heart disease undergoing corrective surgery.
Methods & Materials: This quasi-experimental study involved 78 mother-child dyads diagnosed with congenital heart disease and undergoing corrective surgery at the Shaheed Rajaie Cardiovascular Hospital in Tehran. The samples were divided to one of two groups: an intervention group (n=40) and a control group (n=38). Convenience sampling was employed to select participants during the 2023-2024 period. Data were collected using the TNO-AZL Preschool Quality of Life Scale across four assessment stages. The intervention group participated in 11 sessions of the family-based care transition program, while the control group followed routine discharge protocols. Data were analyzed using SPSS software version 22, employing independent t-tests, the Bonferroni test, and both one-way and two-way repeated measures analysis of variance.
Results: Within-group comparisons showed a significant increase in quality of life scores for both the intervention and control groups (P<0.001), with the intervention group indicating a more pronounced improvement. However, between-group comparisons showed no significant differences in quality of life scores at baseline, immediately post-intervention, or one month post-discharge. Notably, a significant difference was observed three months post-discharge (P=0.003).
Conclusion: The implementation of a family-based care program may improve the health-related quality of life of children with congenital heart disease undergoing surgery. These findings suggest that pediatric nurses can utilize family-centered interventions to improve the health-related quality of life of these children. |
| format | Article |
| id | doaj-art-2b105144850341dcabc16e9c1b72f7a5 |
| institution | OA Journals |
| issn | 1735-2215 2008-188X |
| language | fas |
| publishDate | 2025-01-01 |
| publisher | Tehran University of Medical Sciences |
| record_format | Article |
| series | حیات |
| spelling | doaj-art-2b105144850341dcabc16e9c1b72f7a52025-08-20T01:49:07ZfasTehran University of Medical Sciencesحیات1735-22152008-188X2025-01-01304372386Improving the health-related quality of life of children with congenital heart disease undergoing corrective surgery: The impact of a family-based care transition programParvaneh Vasli0Zohreh Komijani1Meimanat Hosseini2Malihe Nasiri3 Dept. of Community Health Nursing, School of Nursing and Midwifery, Shahid Beheshti University of Medical Sciences, Tehran, Iran Dept. of Community Health Nursing, School of Nursing and Midwifery, Shahid Beheshti University of Medical Sciences, Tehran, Iran Dept. of Community Health Nursing, School of Nursing and Midwifery, Shahid Beheshti University of Medical Sciences, Tehran, Iran Dept. of Pediatric Nursing, School of Nursing and Midwifery, Shahid Beheshti University of Medical Sciences, Tehran, Iran Background & Aim: Postoperative care presents diverse needs that affect the quality of life in children with congenital heart disease. The objective of the study was to determine the effect of a family-based care transition program on the health-related quality of life of children with congenital heart disease undergoing corrective surgery. Methods & Materials: This quasi-experimental study involved 78 mother-child dyads diagnosed with congenital heart disease and undergoing corrective surgery at the Shaheed Rajaie Cardiovascular Hospital in Tehran. The samples were divided to one of two groups: an intervention group (n=40) and a control group (n=38). Convenience sampling was employed to select participants during the 2023-2024 period. Data were collected using the TNO-AZL Preschool Quality of Life Scale across four assessment stages. The intervention group participated in 11 sessions of the family-based care transition program, while the control group followed routine discharge protocols. Data were analyzed using SPSS software version 22, employing independent t-tests, the Bonferroni test, and both one-way and two-way repeated measures analysis of variance. Results: Within-group comparisons showed a significant increase in quality of life scores for both the intervention and control groups (P<0.001), with the intervention group indicating a more pronounced improvement. However, between-group comparisons showed no significant differences in quality of life scores at baseline, immediately post-intervention, or one month post-discharge. Notably, a significant difference was observed three months post-discharge (P=0.003). Conclusion: The implementation of a family-based care program may improve the health-related quality of life of children with congenital heart disease undergoing surgery. These findings suggest that pediatric nurses can utilize family-centered interventions to improve the health-related quality of life of these children.http://hayat.tums.ac.ir/article-1-5399-en.pdftransition carecongenital heart diseasesquality of lifefamily |
| spellingShingle | Parvaneh Vasli Zohreh Komijani Meimanat Hosseini Malihe Nasiri Improving the health-related quality of life of children with congenital heart disease undergoing corrective surgery: The impact of a family-based care transition program حیات transition care congenital heart diseases quality of life family |
| title | Improving the health-related quality of life of children with congenital heart disease undergoing corrective surgery: The impact of a family-based care transition program |
| title_full | Improving the health-related quality of life of children with congenital heart disease undergoing corrective surgery: The impact of a family-based care transition program |
| title_fullStr | Improving the health-related quality of life of children with congenital heart disease undergoing corrective surgery: The impact of a family-based care transition program |
| title_full_unstemmed | Improving the health-related quality of life of children with congenital heart disease undergoing corrective surgery: The impact of a family-based care transition program |
| title_short | Improving the health-related quality of life of children with congenital heart disease undergoing corrective surgery: The impact of a family-based care transition program |
| title_sort | improving the health related quality of life of children with congenital heart disease undergoing corrective surgery the impact of a family based care transition program |
| topic | transition care congenital heart diseases quality of life family |
| url | http://hayat.tums.ac.ir/article-1-5399-en.pdf |
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