Educational videos in genetic counseling: Meeting patients where they are?
Purpose: This study examined the effects of self-developed educational videos on patient satisfaction and the physician-patient relationship in genetic outpatient clinics. Methods: Patients with suspected hereditary breast and ovarian cancer (HBOC, n = 311) or requiring exome sequencing for syndromi...
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Elsevier
2025-01-01
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| Series: | Genetics in Medicine Open |
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| Online Access: | http://www.sciencedirect.com/science/article/pii/S294977442501475X |
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| author | Julia Mahal Carlotta J. Mayer Sebastian Sailer Melanie Wittenberg-Marangione Johanna Tecklenburg Elena S. Doll Elias Staatz Seraina P. Lerch Hannah Wallaschek Christian P. Schaaf Beate Ditzen |
| author_facet | Julia Mahal Carlotta J. Mayer Sebastian Sailer Melanie Wittenberg-Marangione Johanna Tecklenburg Elena S. Doll Elias Staatz Seraina P. Lerch Hannah Wallaschek Christian P. Schaaf Beate Ditzen |
| author_sort | Julia Mahal |
| collection | DOAJ |
| description | Purpose: This study examined the effects of self-developed educational videos on patient satisfaction and the physician-patient relationship in genetic outpatient clinics. Methods: Patients with suspected hereditary breast and ovarian cancer (HBOC, n = 311) or requiring exome sequencing for syndromic conditions (SYN, n = 52) were randomized to experimental or control groups. Before their consultations, the experimental group viewed videos detailing relevant genetic information. Patient and physician satisfaction and the quality of the physician-patient interaction were then assessed using questionnaires. Results: The videos were found to be understandable and useful. The video intervention did not affect patient or physician satisfaction scales or the physicians’ workload. However, there were significant interaction effects: The video intervention was associated with significantly lower satisfaction scores among patients with SYN. Additionally, in post-hoc tests, we partially found lower satisfaction with patient decision making, as well as increased physician workload in the SYN group compared with the HBOC group. Conclusion: Educational videos can improve patient satisfaction in HBOC consultations. In complex and less homogenous clinical situations, such as genetic consultation and testing for syndromic conditions, however, face-to-face physician-patient contact may be more appropriate to reduce stress and adequately address individual questions. |
| format | Article |
| id | doaj-art-269d88e76783494c98936daaea6770e0 |
| institution | OA Journals |
| issn | 2949-7744 |
| language | English |
| publishDate | 2025-01-01 |
| publisher | Elsevier |
| record_format | Article |
| series | Genetics in Medicine Open |
| spelling | doaj-art-269d88e76783494c98936daaea6770e02025-08-20T02:36:07ZengElsevierGenetics in Medicine Open2949-77442025-01-01310343610.1016/j.gimo.2025.103436Educational videos in genetic counseling: Meeting patients where they are?Julia Mahal0Carlotta J. Mayer1Sebastian Sailer2Melanie Wittenberg-Marangione3Johanna Tecklenburg4Elena S. Doll5Elias Staatz6Seraina P. Lerch7Hannah Wallaschek8Christian P. Schaaf9Beate Ditzen10Institute of Medical Psychology, Center for Psychosocial Medicine, Heidelberg University Hospital, Ruprecht-Karls University Heidelberg, Heidelberg, GermanyInstitute of Medical Psychology, Center for Psychosocial Medicine, Heidelberg University Hospital, Ruprecht-Karls University Heidelberg, Heidelberg, GermanyInstitute of Human Genetics, Heidelberg University Hospital, Heidelberg, GermanyDepartment of Human Genetics, Hannover Medical School, Hannover, GermanyDepartment of Human Genetics, Hannover Medical School, Hannover, GermanyInstitute of Medical Psychology, Center for Psychosocial Medicine, Heidelberg University Hospital, Ruprecht-Karls University Heidelberg, Heidelberg, GermanyInstitute of Medical Psychology, Center for Psychosocial Medicine, Heidelberg University Hospital, Ruprecht-Karls University Heidelberg, Heidelberg, GermanyInstitute of Medical Psychology, Center for Psychosocial Medicine, Heidelberg University Hospital, Ruprecht-Karls University Heidelberg, Heidelberg, Germany; Department of Medical Psychology, University Medicine Greifswald, Greifswald, GermanyDepartment of Human Genetics, Hannover Medical School, Hannover, GermanyInstitute of Human Genetics, Heidelberg University Hospital, Heidelberg, Germany; Christian P. Schaaf, Institute of Human Genetics, Heidelberg University Hospital, Im Neuenheimer Feld 366, Heidelberg BW 69120, GermanyInstitute of Medical Psychology, Center for Psychosocial Medicine, Heidelberg University Hospital, Ruprecht-Karls University Heidelberg, Heidelberg, Germany; Correspondence and requests for materials should be addressed to Beate Ditzen, Institute of Medical Psychology, Heidelberg University Hospital, Heidelberg University, Bergheimer Str. 20, Heidelberg BW 69115, GermanyPurpose: This study examined the effects of self-developed educational videos on patient satisfaction and the physician-patient relationship in genetic outpatient clinics. Methods: Patients with suspected hereditary breast and ovarian cancer (HBOC, n = 311) or requiring exome sequencing for syndromic conditions (SYN, n = 52) were randomized to experimental or control groups. Before their consultations, the experimental group viewed videos detailing relevant genetic information. Patient and physician satisfaction and the quality of the physician-patient interaction were then assessed using questionnaires. Results: The videos were found to be understandable and useful. The video intervention did not affect patient or physician satisfaction scales or the physicians’ workload. However, there were significant interaction effects: The video intervention was associated with significantly lower satisfaction scores among patients with SYN. Additionally, in post-hoc tests, we partially found lower satisfaction with patient decision making, as well as increased physician workload in the SYN group compared with the HBOC group. Conclusion: Educational videos can improve patient satisfaction in HBOC consultations. In complex and less homogenous clinical situations, such as genetic consultation and testing for syndromic conditions, however, face-to-face physician-patient contact may be more appropriate to reduce stress and adequately address individual questions.http://www.sciencedirect.com/science/article/pii/S294977442501475XEducational videosGenetic consultationPatient satisfactionPhysician-patient interactionPhysician workload |
| spellingShingle | Julia Mahal Carlotta J. Mayer Sebastian Sailer Melanie Wittenberg-Marangione Johanna Tecklenburg Elena S. Doll Elias Staatz Seraina P. Lerch Hannah Wallaschek Christian P. Schaaf Beate Ditzen Educational videos in genetic counseling: Meeting patients where they are? Genetics in Medicine Open Educational videos Genetic consultation Patient satisfaction Physician-patient interaction Physician workload |
| title | Educational videos in genetic counseling: Meeting patients where they are? |
| title_full | Educational videos in genetic counseling: Meeting patients where they are? |
| title_fullStr | Educational videos in genetic counseling: Meeting patients where they are? |
| title_full_unstemmed | Educational videos in genetic counseling: Meeting patients where they are? |
| title_short | Educational videos in genetic counseling: Meeting patients where they are? |
| title_sort | educational videos in genetic counseling meeting patients where they are |
| topic | Educational videos Genetic consultation Patient satisfaction Physician-patient interaction Physician workload |
| url | http://www.sciencedirect.com/science/article/pii/S294977442501475X |
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