Person-centred health outcomes in the routine care for people with progressive pulmonary fibrosis: the COCOS-IPF project’s European survey on healthcare professionals’ views and practices

Person-centred health outcomes in the routine care for people with progressive pulmonary fibrosis: the COCOS-IPF project’s European survey on healthcare professionals’ views and practices

Abstract Background Idiopathic pulmonary fibrosis (IPF) and progressive pulmonary fibrosis (PPF) are interstitial lung diseases (ILD) that carry a high burden and mortality. IPF/PPF experts and patients call for standardized care, outcome harmonization and holistic management in these complex and de...

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Main Authors: Vivien Somogyi, Anouk Delameillieure, Silja Schenk, Liesbet Van Bulck, Sofie Breuls, Nazli Üçkuyu, Zehra Nur Töreyin, Nikola Stenzel, Nesrin Moğulkoç, Wim Wuyts, Steve Jones, Liam Galvin, Jeanette Boyd, Thomy Tonia, Fabienne Dobbels, Michael Kreuter
Format: Article
Language:English
Published: BMC 2025-02-01
Series:Respiratory Research
Subjects:
Idiopathic pulmonary fibrosis
Progressive Pulmonary Fibrosis
Core Outcome Set
Person-centred outcomes
Online Access:https://doi.org/10.1186/s12931-025-03146-4
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