Planning community-based intervention for speech for children with cleft lip and palate from rural South India: A needs assessment

Background and Aim: A community-based rehabilitation programme, Sri Ramachandra University-Transforming Faces project, was initiated to provide comprehensive management of communication disorders in individuals with CLP in two districts in Tamil Nadu, India. This community-based programme aims to in...

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Main Authors: Subramaniyan Balasubramaniyan, Vaidyanathan Raghunathan, B. Rajashekhar, B. W. C. Sathiyasekaran, Roopa Nagarajan
Format: Article
Language:English
Published: Thieme Medical and Scientific Publishers Pvt. Ltd. 2017-09-01
Series:Indian Journal of Plastic Surgery
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Online Access:http://www.thieme-connect.de/DOI/DOI?10.4103/ijps.IJPS_174_17
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author Subramaniyan Balasubramaniyan
Vaidyanathan Raghunathan
B. Rajashekhar
B. W. C. Sathiyasekaran
Roopa Nagarajan
author_facet Subramaniyan Balasubramaniyan
Vaidyanathan Raghunathan
B. Rajashekhar
B. W. C. Sathiyasekaran
Roopa Nagarajan
author_sort Subramaniyan Balasubramaniyan
collection DOAJ
description Background and Aim: A community-based rehabilitation programme, Sri Ramachandra University-Transforming Faces project, was initiated to provide comprehensive management of communication disorders in individuals with CLP in two districts in Tamil Nadu, India. This community-based programme aims to integrate hospital-based services with the community-based initiatives and to enable long-term care. The programme was initiated in Thiruvannamalai (2005) district and extended to Cuddalore (2011). The aim of this study was to identify needs related to speech among children with CLP, enroled in the above community-based programme in two districts in Tamil Nadu, India. Design: This was a cross–sectional study. Participants and Setting: Ten camps were conducted specifically for speech assessments in two districts over a 12-month period. Two hundred and seventeen individuals (116 males and 101 females) >3 years of age reported to the camps. Methods: Investigator (SLP) collected data using the speech protocol of the cleft and craniofacial centre. Descriptive analysis and profiling of speech samples were carried out and reported using universal protocol for reporting speech outcomes. Fleiss’ Kappa test was used to estimate inter-rater reliability. Results: In this study, inter-rater reliability between three evaluators revealed good agreement for the parameters: resonance, articulatory errors and voice disorder. About 83.8% (n = 151/180) of the participants demonstrated errors in articulation and 69% (n = 124/180) exhibited abnormal resonance. Velopharyngeal port functioning assessment was completed for 55/124 participants. Conclusion: This study allows us to capture a “snapshot” of children with CLP, living in a specific geographical location, and assist in planning intervention programmes.
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publisher Thieme Medical and Scientific Publishers Pvt. Ltd.
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spelling doaj-art-21861bc83534472b821d698af2fbac7f2025-08-20T02:04:05ZengThieme Medical and Scientific Publishers Pvt. Ltd.Indian Journal of Plastic Surgery0970-03581998-376X2017-09-01500329530110.4103/ijps.IJPS_174_17Planning community-based intervention for speech for children with cleft lip and palate from rural South India: A needs assessmentSubramaniyan Balasubramaniyan0Vaidyanathan Raghunathan1B. Rajashekhar2B. W. C. Sathiyasekaran3Roopa Nagarajan4Department of Speech, Language and Hearing Sciences and Sri Ramachandra Medical College and Research Institute (Deemed University), Chennai, Tamil Nadu, IndiaDepartment of Speech, Language and Hearing Sciences and Sri Ramachandra Medical College and Research Institute (Deemed University), Chennai, Tamil Nadu, IndiaDepartment of Speech and Hearing, School of Allied Health Sciences, Manipal Academy of Higher Education, Manipal, Karnataka, IndiaDepartment of Community Medicine, Sri Ramachandra Medical College and Research Institute (Deemed University), Chennai, Tamil Nadu, IndiaDepartment of Speech, Language and Hearing Sciences and Sri Ramachandra Medical College and Research Institute (Deemed University), Chennai, Tamil Nadu, IndiaBackground and Aim: A community-based rehabilitation programme, Sri Ramachandra University-Transforming Faces project, was initiated to provide comprehensive management of communication disorders in individuals with CLP in two districts in Tamil Nadu, India. This community-based programme aims to integrate hospital-based services with the community-based initiatives and to enable long-term care. The programme was initiated in Thiruvannamalai (2005) district and extended to Cuddalore (2011). The aim of this study was to identify needs related to speech among children with CLP, enroled in the above community-based programme in two districts in Tamil Nadu, India. Design: This was a cross–sectional study. Participants and Setting: Ten camps were conducted specifically for speech assessments in two districts over a 12-month period. Two hundred and seventeen individuals (116 males and 101 females) >3 years of age reported to the camps. Methods: Investigator (SLP) collected data using the speech protocol of the cleft and craniofacial centre. Descriptive analysis and profiling of speech samples were carried out and reported using universal protocol for reporting speech outcomes. Fleiss’ Kappa test was used to estimate inter-rater reliability. Results: In this study, inter-rater reliability between three evaluators revealed good agreement for the parameters: resonance, articulatory errors and voice disorder. About 83.8% (n = 151/180) of the participants demonstrated errors in articulation and 69% (n = 124/180) exhibited abnormal resonance. Velopharyngeal port functioning assessment was completed for 55/124 participants. Conclusion: This study allows us to capture a “snapshot” of children with CLP, living in a specific geographical location, and assist in planning intervention programmes.http://www.thieme-connect.de/DOI/DOI?10.4103/ijps.IJPS_174_17cleft lip and palatecleft speechcommunity-based rehabilitation
spellingShingle Subramaniyan Balasubramaniyan
Vaidyanathan Raghunathan
B. Rajashekhar
B. W. C. Sathiyasekaran
Roopa Nagarajan
Planning community-based intervention for speech for children with cleft lip and palate from rural South India: A needs assessment
Indian Journal of Plastic Surgery
cleft lip and palate
cleft speech
community-based rehabilitation
title Planning community-based intervention for speech for children with cleft lip and palate from rural South India: A needs assessment
title_full Planning community-based intervention for speech for children with cleft lip and palate from rural South India: A needs assessment
title_fullStr Planning community-based intervention for speech for children with cleft lip and palate from rural South India: A needs assessment
title_full_unstemmed Planning community-based intervention for speech for children with cleft lip and palate from rural South India: A needs assessment
title_short Planning community-based intervention for speech for children with cleft lip and palate from rural South India: A needs assessment
title_sort planning community based intervention for speech for children with cleft lip and palate from rural south india a needs assessment
topic cleft lip and palate
cleft speech
community-based rehabilitation
url http://www.thieme-connect.de/DOI/DOI?10.4103/ijps.IJPS_174_17
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